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Latest Celiac Disease News & Research:
Everything posted by notme
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ARCHIVED Did You Have A Dark Time Dealing With This?
notme replied to Newtoitall's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
ha he is wanting a skillet anyway - he has a power inverter - so, yeah, nuke a baked potato, fry up some protien, oh and i have a rice steamer so hmmmm - i would be happy to skip some truckstop meals. guess i'll hafta save the chicken-fried steak to make at the house haha :)yeah, i love to go with him - looking into some northeast freight maybe go up and... -
ARCHIVED Blood Pressure Meds
notme posted a topic in Gluten-Free Foods, Products, Shopping & Medications
i take blood pressure meds once a day. my script ran out and i kept forgetting to call my dr, so i didn't take them for a few weeks. then i started taking them and got D - called the pharmacy when i was first dx and they said the drug was gluten free. but i looked up the inert ingredients (gel capsules) and found out they are made of some kind of starch... -
ARCHIVED Menstrual Cycle And Normal Bm's
notme replied to rgarton's topic in Coping with Celiac Disease
nope. mine wreaks havoc with my digestive system. i am not on any birth control, am 47 or 48 (k 48 whatever) and i am totally irregular as far as my period is concerned. used to be straight 28 days, you could set your clock by how regular my periods were. now they are 5 days early to 2 weeks early to 2 weeks late??? what??? generally i am trying to... -
ARCHIVED Did You Have A Dark Time Dealing With This?
notme replied to Newtoitall's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
i am stealing that! -
ARCHIVED Did You Have A Dark Time Dealing With This?
notme replied to Newtoitall's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
o gosh, how do you do it?? husband drives (16 in the air, 2 on the pavement lolol) and i used to go on the road with him. we would usually do sandwiches or whatever for breakfast/lunch, raid the truckstop (cheez crackers, snackies, etc, DONUTS) then stop at a truckstop restaurant for supper. husband has been running otr so long he knows which ones are... -
ARCHIVED Trial For Chronic Fatigue
notme replied to organicmama's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
i have been recovering (gluten-free) since july of last year and i STILL over-do it when i am feeling good! i can do more and more but some days i feel like i could take a nap for no apparent reason. reminding myself that i was misdiagnosed/doing damage for 25 years; it's going to take awhile for things to mend properly. and every month my period (not... -
ARCHIVED Finally Made A Decison With Oldest Son
notme replied to Roda's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
ugh. sorry to hear that but hopefully you will get a good dr. insurance is ridiculous sometimes! (ok, alot) i know ours is -
ARCHIVED Finally Made A Decison With Oldest Son
notme replied to Roda's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
did you go with the k-town children's hospital group? you must be further east - my in-laws live in rogersville (i was looking at that mobile farmers' market - what a great idea!) we have one right in town - no strawberries (boo) yet but i think it starts saturday (yayy!) poor little guy - i am fairly sure one of my grandkids probably has celiac (probable... -
ARCHIVED My Story.: Step One Or Something Like That
notme replied to RL2011's topic in Coping with Celiac Disease
your sleep will even out it goes with the 'withdrawal' - try eating 'plain' - when i first started i did the same thing (not eat much)(ok. nothing lol) then i was amazed at what *didn't* make me sick. i was blaming an awful lot of foods for what turned out to be gluten. then i was like a bottomless pit - hungry, starving! - like every two hours. i pack... -
ARCHIVED My Story.: Step One Or Something Like That
notme replied to RL2011's topic in Coping with Celiac Disease
i am about to try roman's! i just have to co-ordinate when the guy is there and get my kid to bring it home to me (yeah, i trust no one and i know *exactly* where the bathroom is here lolol) he works at lexus in knoxville so i think it's one more exit up on the 'pike i heard they have a gluten-free buffet! (not every day) i also am going to ask when they... -
i bet you are still in withdrawal. i was still at a month into the gluten-free diet. if you are getting cc'd it will prolong the withdrawal. try skipping the soy, too. i avoid it when i can. they have gluten-free, dairy free, (well, pretty much everything free) candy bars that don't bother me a bit. hang in there.
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ARCHIVED My Story.: Step One Or Something Like That
notme replied to RL2011's topic in Coping with Celiac Disease
lol i will! i used to live in north jersey, wantage - right off the ny/nj/pa line at the bottom of high point mountain. through the woods to the delaware river (milford, pa) very pretty up there. east tennessee is a beautiful place - friends of ours come down from nj to ride their harleys in the mountains. smoky mountains are very popular to ride. i... -
ARCHIVED My Story.: Step One Or Something Like That
notme replied to RL2011's topic in Coping with Celiac Disease
nope, i am in east tennessee - but you know what they say: you can take the girl out of jersey, but you can't take the jersey out of the girl lol - going up to visit in july and hopefully i will be able to resist the PIZZA!! where are you at? sorry to say the redbridge is the only beer i have been able to purchase here, florida, new mexico, etc - haven... -
ARCHIVED My Story.: Step One Or Something Like That
notme replied to RL2011's topic in Coping with Celiac Disease
i suppose you have tried the redbridge? that's what i drink - it's semi-available and reminds me more of killian's than beer beer. the beer thing was huge for me, too. i'm a jersey girl: we drink beer. we don't pump gas haha i drink chardonnay on occasion, but beer and pizza was a major food group for me. i would hate to think how violently my body... -
ARCHIVED Hey, I've Just Had My One-Year Anniversary Here!
notme replied to Monklady123's topic in Coping with Celiac Disease
happy anniversary -
ARCHIVED My Story.: Step One Or Something Like That
notme replied to RL2011's topic in Coping with Celiac Disease
congratulations, rich you are facing this head on. it took several months of denial (after 25 years of misdiagnosis and suffering) when they handed me the celiac dx for me to finally jump on the gluten-free wagon. this forum is the best place to ask questions/post info/ask questions/rant (lol) honestly, these fine people on this website saved my life... -
hi wow are you in east tennessee?!! i live in harriman children's hospital is highly recommended - i don't personally know about their pediatric GI, but our grandson had to have hernia surgery when he was about 18 months old and their pediatric urilogy group is awesome. lol in fact the dr we had is on my short list of "if i ever divorce my husband i...
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never EVER cheat. maybe she has never been 100% gluten free long enough to see what a huge difference it makes. it took awhile to 'detox' (ohhh, cranky, cranky) and to even out my digestion - although every day you feel a little better... also had to cut out alot of other things when i went gluten-free like dairy, soy, certain veges and fruits, etc....
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wow! how awesome, ana you made me think about my first year anv is coming up in a few months. hard to believe as i still feel like a beginner. wierd how life is adjusted, huh? i have adapted old comfort foods and added some new ones "go-to" meals lol CONGRATULATIONS!!!
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ARCHIVED Ways Of Coping With Glutening....
notme replied to glutenfreeinminnesota's topic in Coping with Celiac Disease
oh, yeah, and have been self mj'd for years even before my dx, so i believe there is truth to it's medicinal qualities. it does help, even if it's an attitude adjuster. i get really irritable when i have been zapped, so it keeps other people from killing me. eventually, when i feel better it helps with the appetite. i agree with skylark - don't mess with... -
ARCHIVED Ways Of Coping With Glutening....
notme replied to glutenfreeinminnesota's topic in Coping with Celiac Disease
i stop eating b/c i have no appetite. also soooo tired. hot tea with sugar and lactaid.... hopefully a nap then i will feel progressively better but my digestion will be messed up for 4-5 days no matter what i eat. also feels like i am hit by a truck. i like the junior mints idea -
i totally feel ya. i feel paranoid about my FOOD o my gosh don't touch my FOOD!!!!!!! WHY are you eating a samwich over my FOOD - why in God's creation are you shaking it??!! i am always swooping in and grabbing spoons before they hit the whole pan of FOOD and make it inedible. i have always been an alpha - i do not know how a shy or non-assertive type...
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hahahaa! too funny just spent the weekend camping and almost every day there was a huge conversation about celiac - i love that people are interested but *damb* i'm sick of talking about it... on top of that, something has zapped me so now i'm cranky as all get out. i came home to eat a tuna on udi's and wait my alloted 20 minutes for my stupid body...
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ARCHIVED How To Suggest Idea Of Going Gluten Free?
notme replied to revenant's topic in Parents, Friends and Loved Ones of Celiacs
if you figure it out, let me know!!!!!! since my dx, i have noticed other people's symptoms and suggested they get tested or try gluten free. they practically run away. especially my RELATIVES who probably have it....... i have a friend who is currently being tested for Everything Else - been diagnosed with IBS, diverticulitis, etc and is on several medications... -
ARCHIVED My Husband Was Just Diagnosed
notme replied to SIP's topic in Parents, Friends and Loved Ones of Celiacs
when i was first diagnosed, i didn't tell *anyone* for like 3 months because i was in such denial. it's a tough diagnosis to hear! i didn't even tell my husband. in that timespan i lost so much weight i looked like a skeleton. by the time i admitted i needed to eat gluten-free i was so sick and fatigued i was sleeping all the time. i guess what i'm saying...