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IrishHeart

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Everything posted by IrishHeart

  1. IrishHeart
    Well, hon....the nurse is correct. Sometimes, the elevated TtG can be indicative of thyroid disease, liver diseases or other autoimmune disorders....however, you have already had a positive response to being G F which to us, speaks volumes. In this case, the genetic test absolutely SHOULD be done to rule out celiac if they are not sure. Either way...
  2. IrishHeart
    Hi Jess! So good to see you driving by c.com. lol For those of you who have not read any of Jess's blog articles, I suggest you do. She's got some great information there! .
  3. IrishHeart
    Celiac Disease: The First Year by Jules Dowler Shepherd Real Life with Celiac Disease by Melinda Dennis and Daniel Leffler are two of the best books out there for a newly diagnosed person. Gluten Freedom by Alessio Fasano is also an excellent book. P.S. I do not think Wheat Belly is a good book at all. Almost everything written in it has...
  4. IrishHeart
    if it wasn't me, it was SkiLisa. since we both deal with this HIT...and we can always shoot you the info anytime you want it. And I took what my doc said as truth, but I adapted it to "every day is a healing day"because a year seemed too long and I could only take one day at a time. Hang in there, hon!
  5. IrishHeart
    There is no real medical or scientific basis for "gluten withdrawal". I have read every bit of literature on this subject. Trust me on this. You said you felt better off gluten before...so. just be positive about it and go forward. If anyone asks, you say this : "I tested positive for celiac." That's it. The End. your blood panel for celiac...
  6. IrishHeart
    I have met Dr. Fasano and I think he'd be the first to say that if gluten makes you feel bad, you should not be eating it. He is truly the celiac/NCGS community's hero. You do not need to be consuming gluten for a genetic test, hon. Your genes are your genes and they do not vary because of the amount of gluten antibodies in your body. The symptoms...
  7. IrishHeart
    Never, ever give up on symptom improvement! There are times when I realize that things that have plagued me for 20 years are lessened or gone (I'm just past the 3.5 year mark post DX) I had a 4- page symptom list, and I still find myself crossing off some things that have resolved once and a while.... It gives me joy. lol "Every year is a healing year...
  8. IrishHeart
    Having the gene for celiac does not diagnose it anyway. A negative biopsy and a negative blood test are far more telling. Up to one third of the U.S. population has the genes for celiac disease, but it is thought that only 1-4% of them will actually develop the disease at some point in their lifetimes. This means that people with DQ2 or DQ...
  9. IrishHeart
    I have never read a single Pub Med article or seen anything in the hundreds of celiac-related article/books I have read during the last 4 years that discusses tylenol as being a "problem for celiacs". Sounds like a simple adverse reaction to the medicine.
  10. IrishHeart
    You probably should, according to Mary Shomon, the mama of all things thyroid. "Soy can, however, still interfere with absorption of your thyroid hormone replacement medication, so be sure to take your medication at least three hours apart from soy foods"..... Open Original Shared Link
  11. IrishHeart
    A positive celiac blood test means celiac to me. FWIW A negative biopsy may just mean "not enough damage" YET. Don't be one of us 'statistics" --the people who go most of their lives not knowing we had it while making our lives a living hell. Some of us were dying from it. You have been a given the opportunity to turn your health around right now...
  12. IrishHeart
    Honestly. the doctor should not have made you feel like it was "worst case scenario" without all the facts. You haven't even had a consult with the hematologist yet! I will tell you this: my Dad had severe iron deficiency anemia and tanked hematocrits requiring blood transfusions. The hematologist/oncologist was the one who made him feel better. Unfortunately...
  13. IrishHeart
    My doctor didn't seem very concerned, but did counsel that I continue a minimal or gluten free diet to see how I progress. But why would he suggest that if the tests are negative and he has not done a biopsy yet? Were you eating gluten free at the time of testing? If you were gluten-free at the time of testing, the test results are invalid anyway...
  14. IrishHeart
    I agree with Gem on this issue. My DEXA may have shown some osteopenia, but despite some disc degeneration from OA (cervical spine area) my spine (according to a spine specialist at Albany Med and anyone else who has seen my MRIs) I have the spine of a 22 year old. If only I FELT like a 22 year old...
  15. IrishHeart
    Getting back to the original question and cutting to the chase here: the Total serum IgA: This test is used to check for IgA deficiency, a harmless condition associated with celiac disease that can cause a false negative tTG-IgA or EMA result. get this one run: Deaminated gliadin peptide test (DGP IgA and IgG): This test can be used to further...
  16. IrishHeart
    pole fence...it was pole fencing, wise guy! lol It was buried in snow and running low on the ground.about 1 foot high...guy put it there so kids would not ride their bikes on his lawn.....slipped on the ice, went down thinking" Oh I'm all right, it's a big pile of fluffy snow going to cushion my fall... nope...pole broke 3 ribs....ugh
  17. IrishHeart
    You know me, Lucy Ricardo and I am stunned that I have not broken anything either. I tore up ligaments in my ankle two years ago (Doc said it would have been better if I had just broken it so he could have set it) and I have tripped over my own shoes often enough and fallen on my arms, hands. Just bruised. whew! Aside from 3 broken ribs once (don't ask--stupid...
  18. IrishHeart
    I don't know hon, but people seem to be clueless about food period. It's too bad they don't teach nutrition courses in school anymore.
  19. IrishHeart
    "Wait, there's potatoes in that!...don't eat that! you can't have those right?" After taking my gluten-free order and assuring me she understands celiac and gluten free, the server asks" So did you want the bread basket?" "Oh Irish, you think you're so smart...but you're wrong....there's gluten in (and I am not making these up, okay) water, toilet...
  20. IrishHeart
    yes! to expecting improvement. My numbers improved a bit in 2 years, which my doc and I celebrated, although they still indicate slight osteopenia. I hope they improve even further. I take 1500 mg cal/ 1000 mg/mag/1000 ius D. He has had me on this dosage for nearly a year now. Besides calcum-rich dairy products, I eat a lot of green leafies for...
  21. IrishHeart
    if you read the article you will see that the author does not seem to see this one simple contradiction in her " logic" I would find her assertion that perhaps celiacs do need to use gluten-free hand soaps because "you constantly put your hands in your mouth" (well, you might if you were 2 years old) as somewhat remotely possible but then she uses...
  22. IrishHeart
    I was not scolding you. I was scolding Karen. and you're welcome! I was one of the first ones to buy this thinger and honestly, i was surprised at how well it worked. Mine is the kind that has hard sides and fits behind the driver's seat. This plugs into the cigarette lighter in the console. The garmin GPS plugs into the dash one. When I need to recharge...
  23. IrishHeart
    what? quit yer yellin..!..I'm asleep....and I'm on vacation .. When I use the Koolatron, it's because I am driving for 6-8 hours or so with it plugged in and then, I bring the food into a hotel and throw it in the fridge. If you were to leave the food in the cooler and not open it and let out the cold air, it should stay cold for a while. Especially...
  24. IrishHeart
    I was alone with him in an elevator, too............
  25. IrishHeart
    ack! I can't go north in NOVEMBAH. fah cryin out loud!! ...I gots no boots, hat, scarf, mittens, coat ...
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