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MJ-S

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Everything posted by MJ-S

  1. MJ-S
    I'm a super sensitive. Believe me, the implications suck. So do yourself a favor and don't assume you are one until you've ruled out some other more common causes of cross contamination. That means things like kissing a gluten eater, going out to eat, and sharing a kitchen with a gluten eater.
  2. MJ-S
    Can you make an appt with your dermatologist? They usually have fast availability, and should be able to get you in quickly if you explain the problem. If you need a referral you should be able to request one from your PCP's office. The dermatologist would be able to biopsy you, and put you on dapsone.
  3. MJ-S
    I don't think that sort of place exists anymore. Even in regions of the world that traditionally have not comsumed gluten, western foods are now ubiquitous. Wheat is the most commonly grown crop in the world, and is transported everywhere.
  4. MJ-S
    What foods are you eating? Specifically, which processed foods? The next step for you would be to try to Fasano diet, which is specifically designed for people exactly in your situation. It focuses on eliminating trace gluten contamination in the diet by eliminating processed "gluten-free" foods. His book is excellent.
  5. MJ-S

    ARCHIVED Dh Please Help

    MJ-S replied to RCV's topic in Dermatitis Herpetiformis

    My DH usually appears about 48 hours after exposure. According to the University of Chicago Celiac Disease Center, DH usually appears within a day or two, sometimes within hours, after gluten exposure: Open Original Shared Link
  6. MJ-S
    In order of how I would approach this: 1. I second the idea of exploring what's happening at school/sports or with friends, especially since there's been a sudden change. 2. Doctor's visit to rule out other health issues. 3. 6 months is around the time that some patients start to report increased sensitivity. If 1 & 2 yield no answers, you may need...
  7. MJ-S
    I use Tom's of Maine. It's been fine.
  8. MJ-S

    ARCHIVED So Discouraged

    MJ-S replied to across's topic in Super Sensitive People

    Frosted, refractory is really rare so if you still have high antibodies it's more likely that you're still getting glutened. Have you tried giving up processed foods to see if it helps? Most celiacs do fine with the standard gluten-free diet, but there are some of us who are more sensitive and require a non-processed food diet. Even though it's a pain, it...
  9. MJ-S
    You can try contacting the manufacturer of the water pill and see what they tell you. Many will give a standard disclaimer, but they may also confirm if the pill is gluten free.
  10. MJ-S
    I did - I thought it was great. Thanks again.
  11. MJ-S
    Google Fasano diet. This diet is targeted towards super sensitives, but is also a great unprocessed diet to use in the beginning while you're in healing mode. It allows for plain rice (not processed cream of rice), all fresh fruits, vegetables, eggs and meats (no processed/canned items), olive oil, salt, beans, and nuts still in the shell. Some fruit juices...
  12. MJ-S
    Wow - that's great! I didn't know Fasano is in Lexington today. That's very close to me. If it's not too late, where and when is he speaking? I'm having trouble finding any information about it online. Edit: I found it: St. Brigid's Parish Hall at 7:00pm. Thank you so much for the heads up!!
  13. MJ-S
    You don't need the broth since you also bought the ingredients to make broth. Just combine the greens and chicken, add water, salt, and some olive oil (since the breasts aren't too fatty) and bring to full boil. Simmer, covered, for 1.5 hours (or 40 minutes with a pressure cooker since you said quick). Once it's done, add the noodles and cook them for...
  14. MJ-S
    I lose much more hair than normal when I have a gluten reaction. It gets better after a week or so.
  15. MJ-S
    Do they bake a lot? This would be especially more likely at Christmas. If flour is being used, it's in the air, and that could be one way you're getting sick from just being around the kitchen. There's no easy way about this. You should really find out ahead of time if they are going to be baking heavily for the holiday meals, because if so you should...
  16. MJ-S
    Same as gluten, but with more immediate strong GI symptoms.
  17. MJ-S
    When I was going through similar issues, I contacted two major air freshener manufacturers that are used in the bathrooms in my work (Lysol NeutraAir and Febreze Air Effects) and both manufacturers confirmed the products were gluten free. If you're unsure about what is being used, maybe you can bring in your own can and replace what's there? Ultimately...
  18. MJ-S
    Did you really really clean your mouse, keyboard, and phone, along with all desk surfaces, when you went gluten free? I used to eat at my desk at all the time, so I just bought myself a new keyboard. How about the water cooler. Are you using it? I'm as sensitive as they come, and I manage fine in an office with tons of food being eaten around me all...
  19. MJ-S
    DQ 2 represents the highest risk factor for celiac, not low. DQ 8 is the other common risk factor, although not as high as DQ 2.
  20. MJ-S
    Would pepto bismol help? For me the nausea is a function of gas, and pepto bismol helps, if only temporarily.
  21. MJ-S
    i LOVE my Lifefactory water bottles. They're made of glass, and protected with an outer rubber sheath. No BPA concerns: Open Original Shared Link
  22. MJ-S
    This study looks at wine that is fined with wheat: http://pubs.acs.org/doi/abs/10.1021/jf104490z?journalCode=jafcau, so the concept does exist. I agree that wheat is not a common fining agent, and not something for most celiacs to worry about. This Wine Spectator article states this. It also discusses the practice of sealing barrels with wheat paste,...
  23. MJ-S
    Fascinating. Thanks for that. We regularly donate to a food bank in Massachusetts. Will look into Pierce's Pantry now. Had no idea this existed.
  24. MJ-S
    Here's an interesting one my husband came across in a Southwest travel magazine: http://www.freywine.com/ This is the quote from their website: Frey Organic Wines are Vegan and Gluten Free: No Animal or Gluten-Based Fining Agents Used What are Fining Agents? Since ancient times, fining agents have been added to a barrel or tank of wine to...
  25. MJ-S
    Beth, OP posted her question to the super sensitive forum. Not the newbie forum. None of this applies to newbies. That's why there's a sticky at the top of this forum with a big giant DISCLAIMER. I NEVER would have posted my reply outside of this forum. I thought I was clear with that in my original reply, as well as telling her that she should just try...
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