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Latest Celiac Disease News & Research:
Everything posted by bartfull
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ARCHIVED I'm New And Stupid!
bartfull replied to ssMarilyn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yeah, the best thing is to learn how to read labels. And it's a lot easier now than it was years ago. In the US, wheat MUST be listed on the ingredients label because it is one of the top eight allergens. Rye is pretty much only in rye bread. Barley is the only one you have to watch out for. Sometimes a product will contain malt but it won't say from barley... -
ARCHIVED Risks Of Delaying Second Endo To Determine Refractory Celiac?
bartfull replied to megsybeth's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
If you had celiac for 30 years it doesn't surprise me that your numbers are still positive. But the point is, they are on a steady decline which means you are still healing. Some folks take three years to heal. I would definitely NOT be concerned about refactory celiac. If it were me I wouldn't give it another thought. If you want to wait and do the endoscopy... -
ARCHIVED If There Were No Coffee
bartfull replied to bartfull's topic in Introduce Yourself / Share Stuff
Yeah, that seventh string is tuned to B. Gives the guitar a great bass sound and opens up all kinds of options. I've had a few seven strings in the shop over the years. -
ARCHIVED Dh Sometimes Look Like Poison Ivy?
bartfull replied to Rita L's topic in Dermatitis Herpetiformis
DH isn't SIMILAR to celiac, it IS celiac. It's just that DH manifests in the skin rather than the gut. Quite a few folks with DH have no gut symptoms, although some do. Usually if they do, those gut symptoms are milder. The way to know for sure is to see a dermatologist and have a biopsy of CLEAR skin near an ACTIVE lesion. Read as much as you can in... -
ARCHIVED Dh Sometimes Look Like Poison Ivy?
bartfull replied to Rita L's topic in Dermatitis Herpetiformis
And usually with DH if you have it on one heel (or knee or arm, etc.) you'll have it on the other. -
Now normally this is not my style, but this is one of the hardest songs in the world to play and this guy does it effortlessly. And the arrangement is SUPERB! Open Original Shared Link
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ARCHIVED These Ingredients Look Ok To You?
bartfull replied to SMRI's topic in Gluten-Free Foods, Products, Shopping & Medications
The ingredients look OK to me from a gluten standpoint. I wouldn't eat it myself because first of all, I can't have corn syrup, and second of all, I don't like the idea of eating Emulsifier/Stabilizer Blend (Cellulose Gum, Mono and Diglycerides, Guar Gum, Carrageenan, Polysorbate 80). But that's just me. I've become a bit of a food snob and try to stick... -
ARCHIVED Does Anyone Else React To Ingredients In gluten-free Breads?
bartfull replied to 3bears2's topic in Food Intolerance & Leaky Gut
Welcome to the forum, Valerie. There is a lot of good information available here. One bit of info that I have to pass along to you is that gluten cross-reactivity is a myth. A lot of naturapaths will test for it but those tests are not valid. Here is the word from the foremost celiac researcher in the country. He is at the University of Chicago. Scroll... -
After hearing about cauliflower pizza crust I decided to google cauliflower bread. I found several different recipes, some with 4 eggs, some with 2. Some added gluten-free flours, some didn't. Some had yeast, some didn't. Some had cheese, some didn't. Some were cooked on a cookie sheet, some in muffin pans. All of them had garlic or other spices. I want...
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ARCHIVED Explosion Of Autoimmune Disease And Other Disease Being Caused By Glyphosate?
bartfull replied to Seeking2012's topic in Related Issues & Disorders
I don't know if it has anything to do with celiac, but I do know that because these things (corn, soy, and sugar, among other things) are resistant to these weed killers, they use a lot more of this weed killer. It soaks into the ground and is taken up by the roots of the plant. It becomes part of the plant. It may not cause celiac, but I don't think it can... -
Yes, organic sweet potatoes worked just fine while grocery stre potatoes went right through me. As I said, after a few weeks, maybe a month, I went back to grocery store produce without any problems. At first I ate meat, sweet potatoes, rice, broccoli, cauliflower, avocados, bananas, cheese and rice cakes. That was all I ate for a month or three. Organic...
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It's early yet. When I first started salad greens and sweet potatoes set me off. A nutritionist suggested I go completely organic for a while and it worked. After a few weeks I was able to go back to grocery store produce. There are still a few foods that don't work for me no matter what. I keep trialing blueberries every six months or so. Last time ...
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ARCHIVED Nuts?
bartfull replied to Pollymo's topic in Gluten-Free Foods, Products, Shopping & Medications
"Nuts?" Why yes. Yes I am. (Sorry. I saw the title of this thread and couldn't resist. ) -
ARCHIVED Could Your Retainer Be Preventing Healing? Yes.
bartfull replied to powerofpositivethinking's topic in Publications & Publicity
I'm not trying to warn anyone off of dental care, but if you google "plastic made from wheat" you will find dozens of articles about it. Here is one from Kansas State University from 2002: Open Original Shared Link I also saw one about wheat plastic from China. Since the manufacturer of these devices refuses to disclose where the plastic comes from, I... -
ARCHIVED Do You Ever Break Down And Eat Gluten Every Once In A While?
bartfull replied to supersquatchy's topic in Coping with Celiac Disease
I used to think if I were diagnosed with a terminal illness and knew I only had three weeks to live, I would start eating doughnuts and the like. But now I realize I would rather put those three weeks to good use by going to my favorite places and enjoying the view, playing all of my favorite songs on the guitar and the banjo, enjoying quality time with friends... -
I never agreed to their terms of service. How can they skip over that part? I just filed a complaint with the FTC. I also contacted NPR to see if they want to do a story about it. I'm sure I'm not the only business owner who does not want anything to do with Facebook. And I'm sure Facebook has put up pages on them too. The info they have on my business...
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I don't do Facebook. I don't like their (lack of) privacy policy, and I don't like anything else about them either. Well this morning I was talking to a friend in Mass. whom I haven't seen in years and he told me he just commented on my business' Facebook page. I looked it up and sure enough, there is a facebook page with the name and address of my business...
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ARCHIVED Gi Appt -- Lots To Take In
bartfull replied to CanadianK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Get the one with the most live organisms as you can find. And do NOT take them at the same time as the antibiotic. Most antibiotics you take with meals so if you do breakfast at 6 and lunch at noon, take the probiotic on an empty stomach at 9. -
Thank you!
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I just saw this on the news: Open Original Shared Link Let us know you're OK.
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ARCHIVED Gi Appt -- Lots To Take In
bartfull replied to CanadianK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Almond milk, olive oil instead of butter, and they make a dairy-free cheese substitute too. And gluten-free of course, you already know how to do. Eggs? Well I haven't tried it because I can eat eggs, but they say chia seeds soaked in water make a good egge substitute in cooking. The important thing right now is your testing is done and you can now start... -
Tell these "friends" that it would be like getting miffed at a person with asthma who had a "No Somking" sign on their door. If they STILL don't understand, tell them to stay home.
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ARCHIVED Science To Research On Soy With Eggs And Chicken
bartfull replied to John Burlingame's topic in Food Intolerance & Leaky Gut
I react badly to soy and I eat eggs without a problem. Most of the time I buy farm fresh eggs, but when I can't get them I buy the factory eggs at the grocery store. Still no problems. -
ARCHIVED Is There A Program That Weeds Out The Bad Stuff
bartfull replied to John Burlingame's topic in Gluten-Free Foods, Products, Shopping & Medications
You've already got one. It's called your brain, and the connection is your eyes. Seriously, did you read Karen's post? You can go into a store and pick up two identical packages of the same product, but if one came in last week's shipment and the other in this week's, the ingredients might be different. Companies change their "recipes" all the time,... -
ARCHIVED Getting An Answer From Pepsi Or Coke Is Like Pulling Teeth
bartfull replied to John Burlingame's topic in Gluten-Free Foods, Products, Shopping & Medications
As has been stated, in the US if soy is in the ingredients it MUST be stated on the label. Maybe you are reacting to something else.