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cavernio

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Latest Celiac Disease News & Research:

Everything posted by cavernio

  1. cavernio

    ARCHIVED Headache

    cavernio replied to Mgyoung77's topic in Coping with Celiac Disease

    You live in shared house and eat shared meals. Residual gluten could be more diffuse than you think. From what I've read of people's stories here, many people experience full-out attacks when they've eaten enough gluten beyond some sort of personal threshold, but will feel just a little of before that.
  2. cavernio
    Yep, it's the helpful people who mess up unintentionally that's terrible. I'd rather be offered food I can't eat most of the time and just say no than have to explain that what they did wasn't good enough. The worst is when someone takes a 'risk' with an ingredient that I wouldn't use myself but that's probably safe. Like the book club and someone making...
  3. cavernio

    ARCHIVED Headache

    cavernio replied to Mgyoung77's topic in Coping with Celiac Disease

    Ditto on looking over everything and everywhere you eat for gluten. I get headaches when I eat too much tyramine. It's high in cured meats, nuts, aged cheese and pickles and probably a few more things. Some people here follow a very strict low tyramine diet; I don't but my headaches have improved a fair bit and I know I should avoid eating all those foods...
  4. cavernio
    Any ingredient that knowingly has gluten in it must be on a label. Therefore if the caramel color has gluten it would be on the label. Note that possible cross contamination doesn't have to be on a label though. If you want to know email a company and specifcally ask them if it's gluten free. If they say yes, then eat it without worry. If they start to explain...
  5. cavernio
    No. But I just found out that I do get gum and tooth pain when I eat gluten. The same type of pain that my hands and feet get, pulsing or in waves (not evenly spaced) and varying from dull to sharp and can stop or start seemingly randomly. It's got to be neuropathy in me. My gums are in pretty good shape. Which vitamins are you taking? I thought I may...
  6. cavernio
    "It was the stinging without the sores when I put chocolate covered almonds in my mouth" Well, I'm having a frustrating time finding any nuts that are gluten free. I've been buying the bulk barn ones that aren't roasted or anything, and although the label didn't say gluten free, they've been one of the few that didn't say may contain traces of or outright...
  7. cavernio
    I don't understand why your gluten-free hasn't stopped wearing make-up, spray tans, and body spray when she's going to see you.
  8. cavernio

    ARCHIVED Eggs?

    cavernio replied to carolynmay's topic in Super Sensitive People

    Has anyone ever just been concerned about what's ON the egg? Egg cartoons always smell like s$#& or rotten milk or something else gross as it is. Well, the cardboard ones. If I thought I was getting glutened from eggs I'd wash them (in the shells of course) and my hands thoroughly after handling them, and probably keep the cartoon in a plastic bag too. Then...
  9. cavernio
    Gluten test strips?
  10. cavernio
    It's been a weird weekend because I had what I think I had a fairly immediate reaction to a food and I'm happy to know that I shouldn't be eating it. But I'm also sad because I want to eat it :-p To start with when I first went gluten free after my blood test for a month or so, and then I went back on gluten for the biopsy, I didn't notice anything close...
  11. cavernio

    ARCHIVED Help Please

    cavernio replied to AZGirl's topic in Coping with Celiac Disease

    The only time you felt good in your life was when you were gluten free. Being gluten free is the correct course of action. You may also find you have issues with other foods too. Celiac disease is multifaceted and while most people know it as the intestinal damage disease (including doctors) there can be skin immune reactions and neurological immune reactions...
  12. cavernio
    I might try it if trials turned out alright for occasional eating out for celebrations (eg: christmas dinner CC...had to avoid it this year) or going on a trip. But I'm pretty skeptical about many drugs not just for efficacy but side-effects too. Particularly with a drug like this I'd be concerned it'd be geared to break down gliadin only or something and...
  13. cavernio
    I imagine if I were in your shoes each day (or each hour even) I'd firmly decide to eat or not eat gluten. It's a very hard place to be in. I expect at some low point in your almost-gluten-free life it'll hit you that cheating isn't worth it. I just hope it hits you sooner rather than later. I'm actually very glad I never tried to go gluten free on my...
  14. cavernio
    "I just don't know if that happens if it's a sensitivity since it's not the exact same issues?" Firstly, to reiterate, you can't say you don't have celiac disease if you've never been tested. My intestines were seriously damaged by the time I got diagnosed but bowel issues weren't my main symptom. I think my mental health problems (and all the usual unemotional...
  15. cavernio
    Try telling that to someone who's been bummed most of their life and who doesn't want to try and fix 'who they are' because 'there's nothing wrong with them'. That's my sister and my dad. Unfortunately for me I didn't have any idea what celiac disease was or that I could have it until got abdominal issues that only occured after I tried going on birth...
  16. cavernio
    Yeah this is an old thread, but I recently found that only Citrus five alive is gluten free. (not peach citrus or -insert other flavour here- citrus, just citrus).
  17. cavernio
    I'm a celiac who doesn't know when they've eaten wheat. I haven't travelled anywhere else to know if I have issues other places. Just because you don't notice anything, doesn't mean you aren't damaging yourself. I've said it time and again, but I don't think villous damage is a good indication of wheat sensitivy. Secondly, everyone's mentioned other...
  18. cavernio
    The linked abstract says that 2 types ("cultivars" as it puts it, whatever that means) of quinoa activate T cell responses like gluten does in labortary cultured tissue taken from celiacs.
  19. cavernio
    I've read the claim that vegans can get enough b12 from whatever bacteria animals get the b12 from, that the microorganisms in the gut can adapt to getting enough or something. Also foods like nutritional yeast have b12. In any case, just because you have to supplement b12 or other vitamins if you choose to be vegan, doesn't mean you have to eat meat to be...
  20. cavernio
    Well, if iodine is in salted processed foods, and if your only possible source of CC is processed foods, you can kill 2 birds with one stone right there.
  21. cavernio
    I had this at my sister's awhile back because after calling up nestle they said they'd be gluten free because the label would say otherwise if they did, and I felt fine then. So I bought some, (strawberry and rolo) at home and now I notice that I don't feel very good after having them. Since I have nebulous reactions to gluten itself, I'm wondering what...
  22. cavernio
    Well something's wrong with him beyond his symptoms, his lymphocytes are too high too. Any mention of that from the doctor?? Just don't get too caught up about gluten to overlook that there could be something else wrong instead/also. Dead set against celiac disease doesn't make any sense to me either. As to worry about invasiveness, I don't know what you...
  23. cavernio
    "If your husband did not have problems digesting gluten he would not react to it upon its reintroduction to his diet. It is the same with all foods; no intolerance, no problem with consuming / not consuming and then resuming." Ignoring celiacs for the time being, why do people become lactose intolerant and why is it thought that if you stop ingesting lactose...
  24. cavernio
    I have what I and doctors have assumed (never been tested) to be peripheral neuropathy. I have no reason to believe that's not it, plus I took some medication that's supposed to help nerve pain, and it did help a lot. B vitamin deficiency or overdose can cause it, and I figured that's why I have it. However, if that's the case, then I'd expect it to have...
  25. cavernio
    A few things: 1. Well, you already saw someone and a rash has developed, but if you feel bad otherwise, getting your liver checked out isn't a bad idea. 2. I don't have any DH per se, but I get itchy mildly skin especially during the winter. So far this year (first year being gluten-free), it's much better. I do get occasional itchy bumps on my forearms...
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