LKelly8
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Latest Celiac Disease News & Research:
Everything posted by LKelly8
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ARCHIVED Mi-del Gluten Free Cookies And Kaybee Products
LKelly8 replied to a topic in Gluten-Free Foods, Products, Shopping & Medications
The Mi-Del faux Oreos. I just bought a case (from Amazon) of the MD royal vanilla sandwich cookies and I use those ginger snaps to make a ginger crust for cheese cake. {Homer Simpson Voice} Mmmm. Cheesecaaake. -
ARCHIVED Biopsy Etc. And Amnesiac Drugs - Concern
LKelly8 replied to gfp's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My first GI doc asked me right before the endo, "Do you want to be a little awake or a little asleep?". I choose "a little awake" and I remember quite a bit of the exam. I still was drugged and woozy but felt no pain and I recovered very quickly. I felt respected and able to maintain a sense of personal control. My second GI doc had an assembly line operation... -
ARCHIVED Sharp Pain In My Breast Bone Area
LKelly8 replied to myserenityprayer's topic in Coping with Celiac Disease
I've said the exact same thing, whispering it to myself, then thinking, "Now stop talking to yourself!". About the pain, you don't have arthritis do you? Play alot of tennis/racketball? I have what Viola mentioned - although mine's got a H and a D in there too , costochondritis. I have it from long term rheumatoid but alot of the time they don... -
ARCHIVED Does Wheat Allergy = Celiac Disease?
LKelly8 replied to fee fee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Wheat allergy has a sudden onset, with typical allergic reactions, and could escalate to anaphylatic shock. Wheat intolerance/sensitivity has a much slower onset and more chronic symptoms, some of which you described, infertility and loss of tooth enamel. Celiac disease is an inherited autoimmune disorder. I'm sure you've probably found this page... -
ARCHIVED On gluten-free Diet But No Improvement
LKelly8 replied to a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Sounds like constipation. Does the gluten-soy-casein-corn restricted diet allow for enough fiber? Water? Glad to hear his appetite has improved, at least his body seems to like this new intolerance-free food - even if he can't quite digest it yet. -
ARCHIVED In Need Of A gluten-free Laxative
LKelly8 replied to sparkles's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi Dale and welcome! I found this on the Traditional Medicinals website. . . Do any of your products contain gluten? Celiac patients are advised to avoid food ingredients containing gluten and/or its derivatives (e.g. gliadin). Certain grains such as barley, oat, rye and wheat contain proteins that are composed of prolamins and/or glutelins.... -
ARCHIVED Are These Heart Palputations?
LKelly8 replied to amber-rose's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I get heart thumps occasionally too, I have PVCs. I've had them at night and it's a weird feeling to wake up to that thud/flup . You should see your family doctor to find out why you're so fatigued though and to rule out anything more serious. From the American Heart Assoc. website: Premature ventricular contraction (PVC) Premature beats or extra... -
ARCHIVED Back To Nature Rice Thins Gluten Free?
LKelly8 replied to dahams04's topic in Gluten-Free Foods, Products, Shopping & Medications
Open Original Shared Link Back to Nature is a Kraft company, they should clearly state any gluten source. (That doesn't cover cc issues of course.) I've eaten the white cheddar with no problems. My mother who's been gluten-free 40+ years, won't eat them. The coating spooks her and she trusts Kraft about as far as she can throw them. -
ARCHIVED Optimum Health Resource Laboratories?
LKelly8 replied to chewymom's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Wow, I heard something like that was in the works but I didn't know it was out already. I hope it's for real, that would be great - especially for kids. I'm off to google! . . . and I'm back! It's the same company as York allergy testing. I can't open their website for some reason (yorkallergyusa.com) maybe they're merging under the new name.... -
ARCHIVED Alternative Cure? Or Am I Just Hopeful?
LKelly8 replied to tailz's topic in Coping with Celiac Disease
Well, I like you Doll. (And I'm not even Canadian, gasp!) -
ARCHIVED Lab Tests....
LKelly8 replied to a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Enterolab is not necessarily accepted by the mainstream medical community. Dr. Fine's patented "discovery" has not been published in a peer reviewed medical journal. -
ARCHIVED Soy Icecream
LKelly8 replied to celiackids's topic in Gluten-Free Foods, Products, Shopping & Medications
Where are you? What grocery store chain/s are you looking for? I just bought Turtle Mountain's Soy Delicious Purely Decadent Purely Vanilla in Publix (with a dollar instant coupon no less ). It tastes more like frozen custard than traditional ice cream, but that's fine by me! Open Original Shared Link -
ARCHIVED Walmart Great Value Brands
LKelly8 replied to ilmotherof2's topic in Gluten-Free Foods, Products, Shopping & Medications
From the ultra scary "Forbidden List" . . . "1) If this ingredient is made in North America it is likely to be gluten-free. 3) The problem with caramel color is it may or may not contain gluten depending on how it is manufactured. In the USA caramel color must conform with the FDA standard of identity from 21CFR CH.1. This statute says: "the color... -
ARCHIVED Maraschino Cherries
LKelly8 replied to a topic in Gluten-Free Foods, Products, Shopping & Medications
For the South Carolina area - Lowes Foods (grocery store) brand maraschino cherries are gluten-free. Open Original Shared Link -
ARCHIVED Walmart Great Value Brands
LKelly8 replied to ilmotherof2's topic in Gluten-Free Foods, Products, Shopping & Medications
The usual suspects. caramel color vanillin -
ARCHIVED Walmart Great Value Brands
LKelly8 replied to ilmotherof2's topic in Gluten-Free Foods, Products, Shopping & Medications
Not. GV brands have been labeling gluten-free status for, I think, over a year. Maybe ? I can't remember when they first came out with this. It's been awhile, all the packaging should have changed by now. I use McCormicks. If you're in the south, Publix (grocery store) brand almond, lemon and vanilla extracts are gluten-free. -
ARCHIVED Rootbeer?
LKelly8 replied to JenniferH's topic in Gluten-Free Foods, Products, Shopping & Medications
Yes, generic brands of soda are iffy. Was it Good Value brand? The WalMart GV brand lists "gluten free" under the ingredients, if so. Or was it the Sam's Club brand soda? I've noticed while the GV brand lists gluten-free status, their Sam's Club brands have not yet followed suit. -
ARCHIVED Diet Sprite
LKelly8 replied to LKelly8's topic in Gluten-Free Foods, Products, Shopping & Medications
Thanks everybody! I've always had headaches with Splenda but not Equal strangely enough. Maybe I'll buy some nice bottled water and some fruit juice, lay off the fizzy stuff for awhile. See what happens when I reintroduce Equal. -
ARCHIVED Buying In Bulk Question
LKelly8 replied to Sweetfudge's topic in Gluten-Free Foods, Products, Shopping & Medications
I wouldn't buy anything from a bin - flour, nuts, beans, candies - way too suspicious. If your health food store can sell some/all of it to you before they put it into the bins - find out what day their shipment comes in - that seems ok. Who are the suppliers? Are they reliable? -
ARCHIVED Help With Labs
LKelly8 replied to laluka's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Your tests were normal. Zero does not mean zero gluten. TTG is more specific for celiac but considering the major improvements in your IGA and IGG, I wouldn't think further testing is nessesary. I'd wait till the next bloodwork to get the TTG/IGA/IGG. -
I agree with the other posters. The careful use of steroids can help in the short term but long term treatment is reserved for serious illness because of the many, many side effects - weight gain, brittle bones (osteoporosis), reduced growth in children, cataracts and elevated blood sugar, just to name a few. It is used in refractory celiac, celiac...
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I can't explain it. I know Coca Cola says all their sodas are gluten free which should mean no risk of x-contamination either (unless somebody drops their ham sandwich on the way to lunch ) but I keep getting sick - burning, bloating - everytime I try to drink diet Sprite. My mother won't drink it at all. She's certain it's cc. My question is has anyone...
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ARCHIVED Amy's - Possible Contamination In Production Lines...
LKelly8 replied to FaithInScienceToo's topic in Gluten-Free Foods, Products, Shopping & Medications
I've gotten sick after eating Amy's Enchilada, (maybe too spicy for me?) their Mac & Cheese, (maybe too much cheese, lactose reaction, even tho I've been able to eat dairy for months?) and one of their frozen meals (maybe too many beans! ). In any case they don't make anything I can't make better at home. I'm in no rush, so convenience food isn... -
ARCHIVED Levbid
LKelly8 replied to SammieMtz's topic in Gluten-Free Foods, Products, Shopping & Medications
It reduces acid in the stomach and slows the movement of the gut. I haven't heard of it directly being used for celiac but it sounds like it could be helpful! Open Original Shared Link -
ARCHIVED Think I Might Have Been Glutened....
LKelly8 replied to Lollie's topic in Gluten-Free Foods, Products, Shopping & Medications
Toffee may or may not contain gluten depending on the ingredients, manufacturing process and - in the case of bins - how it's stored. You can damage your small intestine and irritate your immune system without noticeable symptoms, that is until they catch up to you. Subtle signs of vitamin deficiencies and latent autoimmune disorders can crop up weeks...