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aikiducky

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Latest Celiac Disease News & Research:

Everything posted by aikiducky

  1. aikiducky
    Patti, she seems to have turned out not to have anemia. It was in the later post. I do think it sounds like a good case for a second opinion. No test is 100% certain, even if the margin of error is just a couple percent there still are going to be people who get a false positive. No symptoms + no change on the diet + no intestinal damage detected - pretty...
  2. aikiducky
    Well, vitamin deficiencies would point to an absorption problem so that could be a clue, but not proof positive. Early celiac is just really really hard to "prove" with a test, because the current tests rely on there already being some damage. A biopsy might still show some damage, but it could be you never even developed enough in the first place...
  3. aikiducky
    I guess it's must be an individual thing - I seem too have maybe even more symptoms from barley then wheat, though it's hard to say because i haven't had any glutenings for a while that i know of. Pauliina
  4. aikiducky
    When was the last time the blood test for celiac was done? I'm thinking that if it was more than a half year ago you could ask to repeat it. Pauliina
  5. aikiducky
    Glutenfreechick, don't go gluten free yet!!! You need to keep eating it until your biopsy! In the meantime, just keep eating what you always have, and use the time before your biopsy to slowly research the gluten free diet, so that after your biopsy you can go on the diet immediately. Take the opportunity to eat all your gluteny favourites one more time...
  6. aikiducky
    I'm in Europe too, in Holland that is. Welcome on the forum. I do think it would be a good idea to at least call your doctor first. Would it be difficult for you to get an appointment quickly? If the home test was positive even with your current diet then I would think there's a good chance a blood test might be positive too. Frankly I wouldn't start...
  7. aikiducky
    Caraline, yes you can be sensitive to some groups of lectins and not so sensitive to others, I can't have gluten, milk, eggs, legumes and nightshades but I can still have rice and corn. If you get a feeling that a food isn't sitting right you can cut it out for a while and try it again later, after a few repetitions of this you'll notice if there is a pattern...
  8. aikiducky
    Welcome to the board both of you! The beginning is really hard! It's normal for symptoms to come and go in the beginning. For one, you should realize that even after you have cut gluten out of your diet, the immune response takes time to die down, so you can still be having a reaction to gluten three weeks or so after eating it. Shopping is hard at...
  9. aikiducky
    Congrats! I don't usually hang out in this section of the forum but I just happened to read this thread. The "weird bacteria" in deli meats and soft cheeses is listeria, here's a link: Open Original Shared Link Pauliina
  10. aikiducky
    You know, if you have been glutened and feel like you should have something good to eat, do have something good to eat. Just make it something gluten free! I'm sure there are some things that you enjoy that are gluten free naturally. Whenever I've been glutened I give myself permission to eat anything I like, as long as it's safe, I don't count calories...
  11. aikiducky
    If all your other symptoms have cleared up I'd say it could also just be something that will take a bit of time to heal. I wasn't completely symptom free until something like 8 months into the diet, before that I had ups and downs that were not always glutenings. Btw, blunted villi is a much stronger indication of celiac than a positive gene test. ...
  12. aikiducky
    Well you already ate some. What's your typical gluten reaction like? Honestly, to me it sounds more like it was just hot and gave you a stomach ache, if you were fine the next day. In the beginning it's normal to obsess about this stuff...you get more used to it with time. Also with time you learn what your typical reaction is like and then it's easier...
  13. aikiducky
    It's not necessarily that one auto-immune disease causes another - but they get inherited in groups, so a person who has inherited one is more likely to have the genes for others as well. Pauliina
  14. aikiducky
    As to how long a reaction lasts - if it happens that you are indeed having a reaction to some cross contamination with gluten in the oats, that could last a couple weeks. The reaction gets triggered by the gluten, but it leads a life of it's own after that and only dies down slowly when your immune system calms down again. so the time it takes doesn't depend...
  15. aikiducky
    In the end, all you can do is avoid gluten as well as you can. As I said, I get the occasional mystery glutening as well, but in general I seem to have gotten to a place where my life style is safe enough. My husband eats gluten still but we've figured out ways to minimize risk at home. I'm sure you will, too. Pauliina
  16. aikiducky
    Celiac is an auto-immune disease and as far as I know, it's a common trait of auto-immune diseases that they can flare up at times and then lay low at times again. Stress would be a typical trigger for a flare up... Pauliina
  17. aikiducky
    Changing your diet to gluten free is a major change to your intestines, it could be that you just have "normal" D because your body is adjusting to the new diet maybe? Anyway be prepared to have ups and downs in the first months, your body is healing and adjusting and you can have symptoms come and go even without glutening yourself. Pauliina
  18. aikiducky
    Hey, I saw no one replied to this post yet... I guess because there's really nothing we can do except for sympathize... I hope you feel a little bit better! Pauliina
  19. aikiducky
    That does sound like a glutening to me. Are those typical glutening symptoms for you? It could be a delayed reaction from Tuesday, or you might have gotten cc'd by something completely random. It happens to me about once a year, a glutening where I just can't pinpoint the reason. I hope you feel better soon! Pauliina
  20. aikiducky
    Elye, refractory sprue is where a person with celiac for some reason or other doesn't heal while they are gluten free. With some people the villi just never grow back even though they are gluten free. Lisa, I'm glad there weren't signs of refractory sprue! Also, it's good to hear that finally there's a doctor who takes it all seriously. I've been around...
  21. aikiducky
    I'm not entirely sure of this, but the impression I've gotten from what I've read is that antibody levels have more to do with just how our different individual immune systems produce antibodies - some people produce more than others and they could still have the same level of damage. After all, some people have a completely flattened intestine and NO antibodies...
  22. aikiducky
    Yes, just to second mftnchn, it's possible to have the gene but not have the active disease. Pauliina
  23. aikiducky
    It takes time for the damage in your intestine to develop. It's possible that you were scoped before that had happened. It's also possible that you carry the gene but don't have active celiac, and that your symptoms were something else. You have two choices: go gluten free without an official diagnosis, or continue to eat gluten but get tested periodically...
  24. aikiducky
    Yeah what everybody else has said! We've been married for 12 years and it's just like Carla said, love is an action as well as a feeling, sometimes everything is nice and romantic and it's easy to feel in love with each other, sometimes life is just an ordinary everyday rut and at those times it's important to keep giving those hugs and kisses and saying...
  25. aikiducky
    As far as I know, it's a Kraft Foods brand, so the label should be trustworthy...or you can call the manufacturer. Pauliina
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