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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    Your FT3 looks very good. FT4 is a bit lower than ideal but not by a lot; considering your FT3 is good (to almost high), it is probably fine. TSH could be high for some but your hormone levels look pretty good so I don't know... My guess is that your thyroid is okay, but that is just my guess. What do you think about it? Do you think it is fine...
  2. nvsmom
    It's osteoarthritis, still considered mild - no bone on bone yet, and not rheumatoid. Phew. I didn't realize how scared I was about rheumatoid arthritis until she told me. I mainly felt relief, and then some disappointment because at least with RA they can give you drugs to slow the progression of the joint destruction, with osteo... not so much. So...
  3. nvsmom
    Yep. Rosacea. In my twenties it was charming to be slightly flushed, now if I am out in the cold, or heat for that matter, my cheeks get very red. In my first year gluten-free, I was still having autoimmune arthritis flare-ups and I started wondering if the red was a lupus butterfly rash. It gets pretty red. The olive skin is handy. I can hold a...
  4. nvsmom
    My lashes are completely average. Fairly dark but not thick or long. My hair used to be thick but I don't think that is ever coming back either. Dang it... I'm or German/Ukranian/Russian decent. I'm white but have an olive complexion and brown hair. Except for the red patches on my cheeks. LOL
  5. nvsmom
    I don't know... you could always try the DGP tests, if you can get them. The DGP tests are similar to the AGA tests but they are more sensitive; the DGP less likely to have a false negative result than the AGA but those AGA tests do still catch many celiacs. If you do get additional blood tests, you might want to request that the genetic tests (DQ2 and...
  6. nvsmom
    I get frustrated by those who are supposedly gluten-free but don't worry about the crumbs, or soy sauce, or eat the turkey stuffing because it looks so good. Those are the ones who get to me because they make it harder for people to take my needs seriously, since they don't take it seriously themselves. If they want to eat gluten-lite, that's fine, but...
  7. nvsmom
    Thank you! You guys are great.
  8. nvsmom
    It really varies between people. Mine was always perfectly normal, even in the top half of the range, before I was diagnosed. I haven't had it checked for a few years, but I imagine it is similar. Anemia is now considered to be one of the most common, if not the most common, celiac symptom out there.
  9. nvsmom
    Interesting!
  10. nvsmom
    Done.
  11. nvsmom
    I see my doctor on Thursday about hip x-rays I had done a couple of weeks ago. I developed hip problems and pain about two years ago and I've had my head firmly stuck in the sand since then. I got the x-ray requisition over half a year ago but kept chickening out. Pain and range of motion got a bit worse again so I finally did it, and then the doctor's...
  12. nvsmom
    Awww, he loos like such a sweetie! I want one too.... And I'm sorry to here about your dog. 11 is so young; how sadly unfair. Best wishes.
  13. nvsmom
    LOL
  14. nvsmom
    I had a lot of left side abdominal pain before I was diagnosed. I also have Hashi's, and in combination with celiac disease, I was chronically constipated. The descending colon (the one going to the "exit" ) goes down the left side, and it used to give me a fair bit of discomfort and gas rumblings, especially when things wanted to get moving but wouldn...
  15. nvsmom
    HUGS Good luck with that test. It's nerve wracking to check for things like that even when you are pretty sure it won't be positive... Hang in there.
  16. nvsmom
    I don't think I have ever seen the tests written that way, so I'm not sure what they ordered for you. Hopefully they ordered both deaminated gliadian peptides tests (DGP IgA and DGP IgG) and both ant-gliadin antibodies tests (AGA IgA and AGA IgG). The names are very similar and have caused a good deal of confusion among celiacs. Many labs are slow...
  17. nvsmom
    I think (I'm not a doctor) that can be a sign of fat malabsorption. It could take many months of healing on the gluten-free diet before that changes. Best wishes
  18. nvsmom
    Eating away from home could have "got" you. It does seem suspicious since it is happening while away. Could it just be from going away? When I travel, even to family, my body finds it somewhat stressful and I usually end up with stomach issues, even now, 3 years gluten-free, and while preparing my own food. You are very early in your recovery too...
  19. nvsmom
    All I can find is that unlike breast milk, they have never found gliadin in cow milk, so it has been labelled gluten-free. I suppose that there could be parts of the gliadin in the milk (like in a gluten removed beer such as Daura) or it could be another "gluten" protein that hasn't been identified. It appears cow milk is thought to be gluten-free at this...
  20. nvsmom
    Good luck with that internship!
  21. nvsmom
    The tissue transglutaminase IgA (tTG IgA) is very positive - close to 4 times the upper limit of normal. The tTG IgA is the most widely used test for celiac disease, and it is 95% specific to celiac disease. The 5% of the time a positive is not caused by celiac disease it is usually caused by other autoimmune diseases, and is a weak positive. I doubt that...
  22. nvsmom
    Wow, good thing you caught it!
  23. nvsmom
    I'm so glad that she is doing better and all the pieces are falling into place! When I read your comments about milk, my initial response was to think, "No way, gluten isn't in milk," but you are right that gluten can get into breast milk, so why not into cow's milk too.... Interesting. I feel the need to research.
  24. nvsmom
    The DGP comes down faster than the tTG (as a very general rule) so I would guess a few weeks to a few months. If you can, delay getting retested for at least 3 months on the gluten-free diet, 6 months would be even better. Your labs will most likely be coming down by then.
  25. nvsmom
    LOL That is so true. I too visit my mother often and she goes out of her way to make me safe. She eats very gluten light, but she knows what it takes to keep me well. It can be done.
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