
Nikki2777
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Everything posted by Nikki2777
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ARCHIVED Barley Amylase?
Nikki2777 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Can this be safe? I was in the grocery yesterday and saw a product labeled Gluten Free. It looked delicious, and I checked the label only to find "Barley Amylase" listed. This was a small manufacturer, so I wondered whether they truly understand what Gluten Free is, or maybe Barley Amylase is safe? -
ARCHIVED Diagnosed 5 Years Ago, No Symptoms. I Don't Care Anymore.
Nikki2777 replied to elliott34's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I know we're all piling on - but really, I'm sort of grateful that while my diagnosis came before things got really serious, they came late enough that I was just starting to see the problems emerge. Enough so that I realize the potential impact if I cheat. Even a little. My body was JUST starting to fall apart, and it was enough for me to know I couldn... -
ARCHIVED Carry-On Dinner While Flying?
Nikki2777 replied to christianmom247's topic in Traveling with Celiac Disease
I second Go Picnics. I also make my own home-made Go Picnics for traveling sometimes, just to cut down on the cost. Just be careful, at the airport I went to, they had Go Picnics that were NOT Gluten Free and I almost picked one up. -
I believe the vanilla syrup is not gluten free. I had to give up my vanilla lattes.
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ARCHIVED Share Your Fav Late Night Snacks!
Nikki2777 replied to Christina.V's topic in Gluten-Free Foods, Products, Shopping & Medications
Roasted chickpeas with a little olive oil and salt or curry powder on them. Make sure they're as dry as you can get them before roasting. -
ARCHIVED Wraps
Nikki2777 replied to BlessedMommy's topic in Gluten-Free Foods, Products, Shopping & Medications
Rudi's are the best I've found so far. -
ARCHIVED Diagnosed 5 Years Ago, No Symptoms. I Don't Care Anymore.
Nikki2777 replied to elliott34's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Also, remember that you may have children one day, and a list of things you want to do with them. Time becomes a lot more important later on. -
When I told my mother, and talked about cross-contamination, she was kind of dismissive at first and I started crying - telling her that this is really hard to do, but it's important and I really needed her support. She called me a day or two later and said that she'd been reading up on it and she was sorry, that she now understood that it was serious. ...
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ARCHIVED Pasta And Buns!
Nikki2777 replied to pooh2you's topic in Gluten-Free Foods, Products, Shopping & Medications
My favorite dried pasta is La Venezian spirals or penne, followed by Schar spirals. I have recently found some fresh-ish gluten-free pasta (GR or some other brand with two initials, maybe R.P.) I get it from Fresh Direct in NYC) and it's quite good.- 12 replies
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ARCHIVED Diagnosed 5 Years Ago, No Symptoms. I Don't Care Anymore.
Nikki2777 replied to elliott34's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
One thing I've learned from my Celiac is how to make my bones stronger: As in, I grew a backbone. You can still go to beerfests, but say no to the beer and bring along some wine in a flask or one of those skin things. While I admit I'm not in college anymore, and subject to all that that means, a large part of my social and work worlds revolve around dinner... -
ARCHIVED What Is Your Restaurant Spiel?
Nikki2777 replied to JodyM75's topic in Gluten-Free Restaurants
Went to a Mexican restaurant and they showed me an ingredient list. The chicken was cooked in soy sauce! At a Mexican restaurant! Couldn't believe it. Soy sauce is my nemesis. -
I should add, though, that I don't think I'm a highly sensitive Celiac. Nonetheless, I haven't noticed any reaction.
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I went yesterday and it was great! The host/server really seemed to understand cross-contamination, the fries are made in a dedicated fryer, the tapioca rice bun wasn't awful (often I just forego the bun, but this was decent) and they even have a special gluten-free button on their little hand-held order machines. Such a nice addition to our choices...
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ARCHIVED Soy - Cross Contamination
Nikki2777 replied to killernj13's topic in Gluten-Free Foods, Products, Shopping & Medications
So many of the gluten-free substitute foods are made with soy, I would think there would be a lot more reaction if that were true. -
Funny - it just popped up on a search, and I was thinking of trying it today for lunch. I'm hoping someone who knows replies.
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ARCHIVED Is There Anything Safe To Eat At Ice Cream Or Frozen Yogurt Shops?
Nikki2777 replied to HavaneseMom's topic in Gluten-Free Restaurants
I believe Mr. Softee in a cup is Gluten Free, but you may want to check. -
ARCHIVED Preschool Mother's Day Craft Made Me Cry...
Nikki2777 replied to motheroftwins2010's topic in Coping with Celiac Disease
Can you ask them to dip it in clear nail polish and set it out to dry before sending it home? Maybe that will make it less vulnerable? -
ARCHIVED Kirkland Semi-Sweet Chocolate Chips
Nikki2777 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Does anyone know if these are safe? The ingredient list seems fine, but they have a 'may be processed in a facility....' warning, that looks pretty boilerplate to me. We have a TON left over from an event, and I'd like to be able to use them. Thanks -- -
ARCHIVED Safe Dry Legumes?
Nikki2777 replied to exseitanist's topic in Gluten-Free Foods, Products, Shopping & Medications
The only reaction I get to Sabra hummus is fat! It's soooo good. That said, i use Goya canned chick peas all the time and have never had a problem. I do rinse all canned beans before I use them, so I don't know if that helps. -
ARCHIVED It Was Supposed To Be Over At Gluten Free! Help :(
Nikki2777 replied to AnnaChristine18's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I would try cutting out the nuts to see if that helps. When I was first going gluten-free, I had a terrible time digesting nuts. Sorry you are going through this -- I believe they and you will eventually find out what the problem is. I'm assuming you've checked all marinades, are using gluten-free Soy Sauce, etc. if at all (I don't know much about Paleo...- 88 replies
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I can't imagine a Celiac tossing the bun off a burger and eating it. You've seen someone actually diagnosed doing that? For me, I'd probably trust it if I knew these people were true Celiacs and not just gluten-free for the diet. But it's always safer to bring your own. If you are nervous and don't want to say anything, just bring your own dish, serve...
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When I get really busy, I try to keep a few go picnics on hand. I empty out the boxes into a ziploc bag to make it easier to carry around. I don't much like bars, though I'm glad Kind bars are easy to find in an emergency. I also sometimes bring 100 cal packs of peanuts or almonds along to get a little protein. Crunchmaster crackers in a ziploc. Tapaz...
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I noticed that the Pret A Manger near my office, which labels many salads as Gluten Free and where I don't think I've ever been steered wrong, has started offering a gluten-free labeled quinoa chili. Has anyone tried it? Would you trust it? It would be a nice alternative to have.
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ARCHIVED What Is Your Restaurant Spiel?
Nikki2777 replied to JodyM75's topic in Gluten-Free Restaurants
In addition to all these, I may ask about a dedicated fryer, ask them to keep bread products away from my food, etc. For steaks and asian-style food, I always mention soy sauce/soy sauce marinade (most don't realize it has wheat in it - I had a delicious steak out that the restaurant swore was gluten free and got very sick after. Called the next day and... -
ARCHIVED Best/safest Gluten Free Restaurants In Nyc?
Nikki2777 replied to Waitingindreams's topic in Gluten-Free Restaurants
I've also heard Bare Burger has option, though I haven't tried it.