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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    If the procedure was done in a hospital, you can go the records department and for a small fee, they will give you everything -- even the doctor notes. You do not even have to deal with the doctor's office. It is always good to have all your records on file. I have mine going back almost 20 years. But in any case, your doctor's office can and will...
  2. cyclinglady
    A wise decision! We avoid eating out as much as possible. It is not fun anyway with the worry of getting glutened. I always get up from the table and ask to talk to the manager or chef. I want them to know that I am not avoiding gluten for the fun of it. I often carry in my cute little cooler bag into the restaurant containing my own food when dining...
  3. cyclinglady
    Congrats on lowering your HA1c!
  4. cyclinglady
    Steroids will impact the result of a celiac test. Do not take them yet if you want an accurate diagnosis! I am not sure about using Dapone and how it impacts testing. I Do know that it can be helpful for those with DH. I do not have DH, but others do on this forum and I am sure they will stop by soon with advice. We have a DH section that I recommend...
  5. cyclinglady
    Oh no! I am so sorry. Unfortunately, there is no fast cure for a glutening! Is there no way to re-book your flight (the rebooking charge might be reasonable)? Is this your first glutening? Do you have a pattern? Or do your symptom vary? You just might recover fast!
  6. cyclinglady
    I am glad that you are finding your answers! Welcome to the forum!
  7. cyclinglady
    Raven is right. Get copies of your test results. Then go back to your GP or PCP and ask for the celiac blood panel to be run. Keep eating gluten until all testing is complete. I am so sorry that this is happening to you!
  8. cyclinglady
    Hope you feel better soon!
  9. cyclinglady
    Could that be part of your continuing stomach issues? Taking muscle-building supplements? Are you sure it is gluten free? Your health is already compromised. Why risk it with something that has not been studied or tested well. Trying eating more meat and fish to get the same results, along with weight lifting. Do not forget to eat your veggies...
  10. cyclinglady
    Besides being lactose intolerant (common among Celiacs who are still healing AND a huge chunk of the world's population who do not have celiac disease), you may have an allergy/intolerance to casein (milk proteins) and whey. Corn fed, grass fed, raw or whatever, if you are allergic to casein, you have to steer clear of milk period. From the symptoms...
  11. cyclinglady
    Jane Anderson has some nice articles about it. Here is just one, but there are many! Open Original Shared Link We had a shared kitchen when it was my husband who was gluten free and my daughter was little. I prepared all the food though. I knew the ropes since I have a food food allergies. Once I was diagnosed and my daughter was old enough to prepare...
  12. cyclinglady
    "Not as accurate....can be...." That is not very definitive is it? So, it is not the best test, but like you, it was the only one on the complete celiac panel that I was positve on. So, I needed the endoscopy to rule out celiac disease. Turns out I had a Marsh Stage IIIB (moderate to severe damage). Yep, celiac disease! My only symptom at the time...
  13. cyclinglady
    I do not understand. Did you just do an update on your MAC?
  14. cyclinglady
    Exactly which celiac tests were taken? Did you get copies of all her lab test and their results? Often doctors run a cheaper screening panel. In my case, if my doc had not run the full panel, my diagnosis would have been missed. If she goes forward with the endoscopy, be sure to get up to six biopies. The intestinal tract is vast and it is easy...
  15. cyclinglady
    I know that being post menopausal and not being diagnosed with celiac disease for decades does cause bone damage. I did not mean to sound flippant (and if I did, I apologize). It just that I have been anemic all my life and docs just blamed it on my just beIng a woman! I just think there must be something else that prevented you from building or at...
  16. cyclinglady
    So, have you had another endoscopy to prove that you have had intestinal healing? There must be a reason why you are not building bone. Something other than blaming celiac disease or post menopause.
  17. cyclinglady
    So sorry! Each time I go out to eat (rarely), I am worried! Does not make for a pleasant and relaxed dining experience. I hope you feel better soon!
  18. cyclinglady
    I understand. Good luck with your challenge!
  19. cyclinglady
    Are we related or what? I have Hashi's, celiac disease and my only symptom at the time of my diagnosis was anemia -- no tummy issues. My husband has been gluten free for 13 years but no formal diagnosis (he went gluten free per the poor advice of my allergist and his GP). Autoimmune disorders run rampant in both our families. I had the intestinal biopsy...
  20. cyclinglady
    Ah, perhaps it is time for the meds. Let's see if others respond with positive reviews of a specific drug.
  21. cyclinglady
    What tests were actually run? Be sure to get copies. Often, just the initial screening test is run -- not the complete panel. If I had had just the initial screening, I would not have been diagnosed with celiac disease. U the doc should take up to six biopsies. The small intestine is vast and damaged areas can be missed!
  22. cyclinglady
    What? Your PED GI needs to attend a current celiac conference. i never had the genetic test. My doc just ran the complete panel right from the start and luckily one of the tests was positive and it was not the TTG! If you do not have the gene (exceptions do apply but are rare), then a celiac disease diagnosis is out. While we are talking about...
  23. cyclinglady
    Is your doctor capable of taking a skin biopsy of your DH? It is very tricky and requires great skill. Many of those with celiac disease will not get a positive blood test if most of their antibodies are in their skin. This is beyond my area of expertise, (see our DH section) but from what I read, there is no way I would encourage a DH rash. I hear...
  24. cyclinglady
    Are you taking all the necessary supplements? Are you actually lifting weights? If not, I would give that another go before trying the drugs. My fractures were way worse than my both my celiac disease and diabetes diagnosis. Besides being painful, I was frightened at the loss of mobility. I am very active and love riding my bike. The only time I stayed...
  25. cyclinglady
    I was 51 when I was diagnosed with celiac disease. Two months later, I suffered two vertabrae fractures (T7 and T9) doing nothing! Bone scan revealed osteopenia (just one point shy of osteoporosis) but per my GP, a fracture bumps up my diagnosis to Osteoporosis. Since I was within months of passing through menopause, I went back on HRT with the intent...
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