Nancym
Advanced Members-
Posts
1,836 -
Joined
-
Last visited
-
Days Won
1
Content Type
Profiles
Forums
Events
Blogs
Latest Celiac Disease News & Research:
Everything posted by Nancym
-
ARCHIVED I Ordered My Enterolab Test....
Nancym replied to JerryK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You had positive results on the gluten-free diet, right? Even Dr. Fine says some people that test negative will still have positive results from a gluten-free diet. Its kind of the "Doctor, it hurts when I do this!" old joke. The doctor always responds: "Well stop doing that!" We pay these guys that kind of money to tell us what should probably be... -
I used Jarrow L-Glutamine and that is what cured me of some chronic poopiness, it was either that or the fact I stopped taking turmeric, not sure which. Maybe both? At about the same time I also started making kefir, which is a probiotic on steroids. It has 40 different kinds of beasties in it, versus the 6 or so in a typical probiotic. I recently...
-
ARCHIVED Has Anyone Heard Of This Or Had It Done?
Nancym replied to Canadian Karen's topic in Related Issues & Disorders
Ok, Quackwatch can be a bit overzealous. But do a google search on Electrodermal testing and read up. There's a lot of states prosecuting people who do this. BMJ published a double-blind clinical trial result Open Original Shared Link. I'm not against alternative medicine either and use quite a few things, some effective, some not. But that's a sizeable... -
I forgot about this thread! I had a really GREAT experience at Harry's Bar and Grill in La Jolla, near UTC. They made an incredible sea food salad for me. Also at Peohe's in Coronado and we go to the Rancho Bernardo Inn for our Holiday party at work every year, and they take good care of my gluten free needs. It seems a lot easier to get good gluten...
-
ARCHIVED Cooking With Coconut Flour
Nancym replied to loraleena's topic in Gluten-Free Recipes & Cooking Tips
From my own experience, coconut flour is thirsty, thirsty stuff! It really absorbs liquids like crazy. -
ARCHIVED I Ordered My Enterolab Test....
Nancym replied to JerryK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I love these technical discussions that Enterolab seems to spawn. -
ARCHIVED Has Anyone Heard Of This Or Had It Done?
Nancym replied to Canadian Karen's topic in Related Issues & Disorders
This article might be Open Original Shared Link. But to summarize, they're not legal to use in the US and anyone using them to diagnose disease is breaking the law and would be subject to all kinds of stuff including loss of license and quite probably fraud charges. -
ARCHIVED How To Get Rid Of Gluten In My House
Nancym replied to kara7's topic in Coping with Celiac Disease
It is what I would do if I had people living with me. You never know, your husband might feel better too! -
ARCHIVED Are Enterolab Tests Ever False Positive?
Nancym replied to dennymel's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
There's one genetic combination that Dr. Fine says doesn't correspond to Gluten Sensitivity or Celiac, that's a double DQ4, which is very rare except in Asia. -
ARCHIVED celiac disease Increasing? Whats The Deal
Nancym replied to DVK's topic in Coping with Celiac Disease
Doctor's used to think it was very, very rare. Like 1 in 5000. Now the numbers for Celiac disease are around 1 in 100 but I suspect the numbers for gluten intolerance are much, much higher. 30% if Dr. Fine is correct. A lot of people are going to be going gluten-free if they just try the diet and feel better, like I did. -
ARCHIVED Has Anyone Heard Of This Or Had It Done?
Nancym replied to Canadian Karen's topic in Related Issues & Disorders
Sounds like a scam to me! -
ARCHIVED Stool Test For Celiac
Nancym replied to SanteeBay's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Celiac no, gluten sensitivity yes. Enterolab.com accurately diagnosed me and many other people here. The only way to tell if you've got villious atrophy is to look at the villi (which is the hallmark of Celiac). But they can tell if you're fat absorbtion is bad, which is a sign of celiac (and other diseases). IMHO, a dietary trial is the ultimate test... -
ARCHIVED Are Enterolab Tests Ever False Positive?
Nancym replied to dennymel's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
He's done a lot of work correlating symptoms to results, and then following up to see if the gluten-free diet worked. His results are quite good. I think he's got a slide on how many fail to respond to the diet and it ain't much. Even more surprisingly he's had a few people test negative that felt better on the diet. I'm sure if you sent an email... -
ARCHIVED How Can You Say That You Have To Be Off Gluten For Months........
Nancym replied to Electra's topic in Coping with Celiac Disease
My IBS cleared up the first week. Later on other things started to resolve, like the brain fog and neuropathy. In all, it took about a year to feel really good again. But I was pretty convinced just from the IBS going away that I had nailed it. -
ARCHIVED Can You Eat At Thai Or Chinese Reataurants At All?
Nancym replied to imagine22's topic in Gluten-Free Restaurants
Fish sauce can have wheat in it, or so I've heard. But good brands don't have it. I'm not a person who gets REAL sick if I eat wheat so I can't say what might have gone wrong. The coconut soup should be ok, but it does have fish sauce in it. I make Thai food at home and I LOVE that coconut soup. I like to go to asian stores and buy stuff but a lot of... -
This doctor has some info on lympocytes in his blog: Open Original Shared Link
-
ARCHIVED Relatives With Intestinal/colon Cancer Or Lymphoma?
Nancym replied to PeaceAngel22's topic in Coping with Celiac Disease
With smoking and other bad habits though, you might not have a swift, death but might just go through a lot of debilitating illness for 20 years before you finally die. To me, having good habits now is so I can enjoy good health when I'm elderly! -
ARCHIVED Another "why Don't They Get It" Thread
Nancym replied to lonewolf's topic in Coping with Celiac Disease
Do you actually say that? I think if you stressed the part I highlighted there it might make someone think twice about opening their yap. -
ARCHIVED Gaining Weight Since Diagnosis
Nancym replied to mammprincess's topic in Coping with Celiac Disease
Also, the gluten-free carby snacks are worse than wheat based ones usually. They're much higher Glycemic index and higher calorie to boot. You gotta go easy on that stuff. I find sticking to a diet of meat, fish, veggies, nuts, fruits is the best one for me to keep my weight in control. I've struggled with my weight pretty much my entire life. And eating... -
ARCHIVED What If We Have Porphyria Disease?
Nancym replied to Electra's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
A Gluten free diet is not low carb diet unless you make it so. In fact, people who replace all the stuff they were eating before (bread, crackers, etc) are eating a higher carb diet because the stuff they make gluten-free products from are higher in carbohydrates. All that tapicoa, potato, and corn starch. Rice is higher in carbs than wheat, corn too.... -
ARCHIVED My Daughter Tested Negative!
Nancym replied to Electra's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
There is no creature on earth that REQUIRES gluten (except maybe the dreaded Gluten Weevil). You can eat a high carb diet without eating gluten. -
ARCHIVED One Of My Favorite Foods
Nancym replied to Sweetfudge's topic in Gluten-Free Recipes & Cooking Tips
When I looked up nut crusted fish they suggested using coconut milk to dip the fish in. -
ARCHIVED One Of My Favorite Foods
Nancym replied to Sweetfudge's topic in Gluten-Free Recipes & Cooking Tips
You'll probably need something to glue the nuts to the fish. I'd look for nut crusted fish recipes on Google and see how it is done. Improvise! I'm sure whatever you get will be delicious. I had a macadamia, banana chillean sea bass that was sensational. -
ARCHIVED My Adult Children Are Sick And In Denial
Nancym replied to CatandCanary's topic in Parents, Friends and Loved Ones of Celiacs
Are they living with you? If so, you could simply take your household gluten-free if you're the one doing the cooking and shopping. Put your foot down and say that as long as they're living with you, they're going to be gluten-free. It's what I'd do. Not a whole lot you can do outside the house, but at least in your space you can control it. That's... -
ARCHIVED The Challenge
Nancym replied to Sinenox's topic in Parents, Friends and Loved Ones of Celiacs
We'd all love to rescue our families from gluten induced diseases but most of us have come to realize we can't. The desire to fit in, eat like everyone else and not be inconvienced out-weighs possible health risks. Look at how many people continue to smoke in the day and age where we understand and absolutely know what the risks are, then consider that...