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marciab

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Everything posted by marciab

  1. I thought some of you might be interested in this. Open Original Shared Link marcia
  2. Have you tried taking any of the common food allergens (wheat, dairy, soy, corn and eggs) out of your diet to see if one of these is upsetting your stomach ? marcia
  3. I found this on the celiac.com board about unexpected sources of gluten ... https://www.celiac.com/st_prod.html?p_prodi...-23105623274.5f Hope this works, I'm not good at the technical stuff. Marcia
  4. marciab

    ARCHIVED Hidden Gluten

    Maybe this is why I have been feeling so crappy for the last month. I am still cleaning up from remodelling bathrooms. Even the walls were torn out. I bought a cheapo shop vac from Walmart and an extra filter and it is working great. The filter says it is for catching drywall dust, etc. Does grout have gluten in it ? The guy has to come back...
  5. It's been awhile (3 years ?) since anyone ran EBV titers on me, but mine were off the charts too. I was told that a normal person's immune system would indicate a 100 ? reaction to EBV, but mine was 7 X that at 700 ... Not sure what all this means, since I really can't understand medical jargon ... I was also tested for cytomeglia and the herpes...
  6. I asked people at my support group mtg on Sunday about Shand's and two of them said that they had had a good experience, but since I was already gluten free they could not do a biopsy. They also said that we do not have any doctors locally who deal with this. Bummer ... marcia
  7. Wow .. What lousy timing for cross contamination. Not that there is ever a good time.... At least your boyfriend will understand ... Marcia
  8. Sigrid, Since you are down to 12 foods anyway, why not take the plunge and see if it helps. Don't forget, you will be adding new foods too. Quinoa, buckwheat, amaranth, millet ... Add papaya, mango and pineapple .. I can't eat a lot of pineapple, but ... they have natural digestive enzymes. Marcia
  9. I got this in response to my question to Enfamil concerning common allergens in Poly Vi Sol : "Our Vi-SolTM and Vi-FlorTM drops contain four ingredients having corn derivatives: caramel (burnt sugar derived from corn), vitamin E (corn oil), and vitamin D (corn oil), and citric acid (derived from corn). There is no corn protein or other protein...
  10. I'd be po'd for sure, but I'd let it go. And just bring in my own food. Gluten free pizza if you can have it. Offer a bite to others if you have enough. Just not her .... tee hee This person doesn't sound like she is capable of empathy. It 's a stressful time of year and probably not a good idea to make waves over the food being served. Chances...
  11. I know exactly what you mean ... Our celiac support group had their annual pot luck dinner on Sunday. If it weren't for these people I would never have realized how good gluten free food could be. And their bread is actually normal looking. It's great hanging out with a bunch of people who are all into the same foods and not poopoo ing what...
  12. I asked my son who has lived in Cairo about this. He said that if you are staying at a nice hotel you should not have any trouble getting American food. But if not, stick to rice and beans. He's not gluten free, but he knows what it entails. Good luck .. Sounds like fun ... Marcia ...
  13. My doc put me on the elimination diet back in July 2005 because my stomach was killing me ... reflux, "D", "C", gas pains, stomach cramps ... and I was down to 105 pounds ... She told me to eliminate wheat, dairy, soy, corn and eggs. These are the common sensitivities and it is becuase they are found in so much of our foods today. Also I was told...
  14. Hey Sigrid, I pm'd you so we would not hijack Electra's thread. Sorry about that ... Marcia
  15. Actually, I'm not sure what is up with my blood sugar levels right now. I am currently in the process of figuring out when my blood sugar level is causing symptoms. And just what and how much to eat to correct it. I never realized this could be why my vision gets fuzzy after eating sweets until this week. ALSO, I am menopausal now and having...
  16. Except for the migraines, I could have written this My theory is that if you have a stomach virus, eating is going to continue to cause symptoms. But, if it is just our normal irritable digestive systems, then eating our regular foods will help get things moving like they should. So far this is working for me ... Just don't try caseine...
  17. I'm shocked at all of the symptoms I've had all these years too. I just hope all of my Chronic Fatigue Syndrome symptoms are related ... About the sinuses ... I have never been able to get a good breath through my nose. Anyone else ? Marcia
  18. When I first started the elimination diet, I could only eat a few things. So, I had to tolerate a little distress in order to get foods back into my diet. The cramps, rash and the "D" I get from soy, corn, eggs or dairy are just too much to handle though. It probably took me 10 tries to get tomatoes, onions and garlic back in. It's been...
  19. HAPPY BIRTHDAY TO YOU ... ENJOY ... Marcia
  20. I have gone through this sooo many times. My brother taught me how to do this so I would quit bothering him ... I use edmunds.com to research cars. There are other car review sites too though. The last time I bought a car, I called my insurance company to see what my insurance would be for each car that I was interested in. This way you get...
  21. Karen, Sounds all to similar to testing I had done back in 1990. Did she have you hold a vial of the offending substance in one hand ? And did it register somewhere whether or not you had a reaction to it ? I did this for about 9 months when I first got sick. And bought $1000 of my doctors herbal supplements. What a waste ... He convinced...
  22. I didn't know you could get nutritional drinks from your doctor. I asked and was told to try Ultra Meal, Ensure, etc. BTW, Ultra meal has oat bran in it ... found that out the hard way. Just in case your doctor won't prescribe something for you, I only found 1 nutritional powder that was gluten and allergen free. Living Harvest hemp protein...
  23. Erica, Thanks. I know what you mean about not having to deal with/pay for the endo. I may end up just having to accept that the diet is working for me too. My only concern is the complications from years of untreated celiac. I think this is why my GP wants me to go too .... My doc also asked about the Mayo in Jacksonville, FL. Has anyone...
  24. WOW ... Thank You ...That's exactly what I was wondering about. Only someone who has been there for celiac knows how up to date someplace is on the disease. Sorry to hear you had such a bad experience. Glad to hear you husband is doing better Not much point in going if they are not up on the disease or willing to take into consideration a...
  25. Thanks. My GP wants me to go there since we don't have anyone around here who deals with this. I'm going to ask people at my support group meeting on Sunday too ... I was excited about finally getting a diagnosis and some direction, but then I realized that they are going to poke me with needles and run some unpleasant medical tests on me....
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