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Ursa Major

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Everything posted by Ursa Major

  1. Ursa Major
    Electra, I self-diagnosed myself a year ago, at the age of 52. I was sick from the age of three, and was getting worse and worse. I am still healing and getting better. Yes, I do believe I've suffered a lot of permanent damage. But even if I get only 50 to 75% better, that would still be a huge improvement. And who knows, I might improve even more than...
  2. Ursa Major
    Actually, both the blood test and the biopsy are very unreliable in young children. But you don't get false positives, only false negatives. It is highly unlikely for a baby to have Crohn's or ulcerative colitis already. Besides the fact that they are often caused by celiac disease, and usually respond well to a gluten-free diet. Really, the diet is...
  3. Ursa Major
    Testing in young children is highly unreliable, and false negatives are frequent. The diet is the best and most reliable test in young children. And really, it is the most reliable test for older kids and adults, too. Because the blood test will NOT pick up on gluten sensitivity, and will only be positive once the celiac disease is very advanced and there...
  4. Ursa Major
    Yes, we all get days like that. I get mad that my family will leave crumbs everywhere and don't care, and I know I can't help but get glutened frequently. Be glad your wife changed her diet for you! She is a treasure. Don't look at it as not being fair to her, she probably looks at it from the opposite standpoint. That she will be perfectly healthy on...
  5. Ursa Major
    Well, it could still be celiac disease damage, it also could be other intolerances, such as dairy, soy, or lectins in general (check the links in my signature). Since you've been in denial for a long time, you may have developed other intolerances as a result, or you may have had them all along.
  6. Ursa Major
    You're probably malnourished, due to malabsorption from celiac disease. Now that you're starting to feel better, and your villi are starting to heal, your body craves nourishment. Give it what it needs, which is NOT what you're eating. Instead of eating gluten-free junk food and starchy foods, why not munch on healthy choices, like vegetables, meat, nuts...
  7. Ursa Major
    I get all of those symptoms when glutened. And I sometimes don't get obvious symptoms for up to a week after being glutened. My symptoms don't usually start showing up until the next day, and can last up to two weeks.
  8. Ursa Major
    Rez, I did a search on Behcet's disease, and this jumped out at me: It's a quote from this site: Open Original Shared Link (this is the Behcet's disease page). Canker sores are a common symptom of celiac disease, I used to get them all the time. On the other hand, stomach aches are a very rare symptom of Behcet's disease. Crohn's is known to benefit...
  9. Ursa Major
    Especially with infants, I see no need for a biopsy (my own opinion, of course). If the bloodwork is positive, and she has a positive dietary response, that would be enough for most (reasonable) doctors to at least diagnose her with gluten intolerance. The most valid test is trying the diet, no matter what doctors say. Doctors still claim that the biopsy...
  10. Ursa Major
    Yep, very possible. When I get glutened I'll have other symptoms (stomach ache, grumpiness etc.), but the D might not hit until up to seven days later! But sooner or later it will come, usually when expected the least, and when it's the most inconvenient, of course.
  11. Ursa Major
    Sorry, don't have a list, either. Canola is out for me anyway, because of high salicylate content. The only oil I can use is cold pressed sunflower oil.
  12. Ursa Major
    Hi Tony, and welcome to this board. Of course your blood test was negative. Eating gluten for two days after being gluten-free for four weeks would not cause your villi to be damaged enough again to produce a positive test. You would have to go back to eating gluten for about six months to a year to maybe get a positive. On the other hand, your awful...
  13. Ursa Major
    I am sorry you had a lousy, rotten day. I hope tomorrow will be better.
  14. Ursa Major
    I am laughing, you're so much like me. I just hate cooking! But probably for different reasons than you. My mother forced me to cook for ten people regularly (I am the second-oldest of eight, but the first girl) by the time I was ten. Then she had the audacity to complain when there were lumps in the gravy (or whatever - she was always looking for reasons...
  15. Ursa Major
    Wow, you'll be married in six days! I hope everything will be perfect, and no cc will creep in to make you feel bad.
  16. Ursa Major
    Bronwen, check Nini's newbie kit, it has a whole lot of useful information. Open Original Shared Link Scroll down to the bottom to find the links.
  17. Ursa Major

    ARCHIVED Wonders Never Cease

    Ursa Major replied to ianm's topic in Doctors

    That's great, Ian. My doctor was the same. She has no clue about celiac disease, and I self-diagnosed. But when I told her about what I found out, and that the diet is working, she was very supportive.
  18. Ursa Major
    You know that celiac disease can be the cause of allergies, right? Ask Carla, she and her daughter had terrible environmental allergies, which completely cleared up with the gluten-free diet. And who knows, the other problem (too long a word for me to bother with) could also be caused by celiac disease. So, no matter what the biopsy says, if he was my...
  19. Ursa Major
    I agree with Carla. It looks like it may be something else. Eat that bread you crave, to see what will happen. If you react, try the Enterolab test. If you don't, you may have to try an elimination diet, to see what else could be the problem. You also should then see a doctor. You could have other problems, that need looking after.
  20. Ursa Major
    This is the 'master' recipe for everything you choose to cook. Which isn't really a recipe, just a guideline. You put the vegetable that cooks the longest (potatoes, or in my case, rutabaga) on the bottom, I usually put a layer of onion underneath the rutabaga (it's all about layers), and layer the other ones on top (carrots usually next). Add salt,...
  21. Ursa Major
    I am sorry that happened to you, I hope you feel better soon.
  22. Ursa Major
    There are companies that will absolutely list ALL their ingredients. I know that Kraft is one. If you don't find anything containing gluten in their ingredient list, then there isn't any. There are others, but since I am intolerant to so many things that I can't eat any prepared foods anyway, I'll leave listing other products to others. You may want to...
  23. Ursa Major
    Hi Sonja, and welcome to this board. Your story sounds a lot like it could be celiac disease. As Deb said, since you weren't really gluten-free yet, your test might come out positive. But even if it is negative, you should really try going completely gluten-free. I hope you figure it out! Alles Gute!
  24. Ursa Major
    Victoria, you could do the test from Open Original Shared Link, you won't have to go back to eating gluten for that. If you can afford it, that would be the way to go. I wished I'd have the money, I'd do it right away.
  25. Ursa Major
    Oh boy, not another ignorant doctor. You're right in continuing the gluten-free diet, if it helps you feel better. And no matter what, it has been found that most other bowel problems will at least be improved by going gluten-free. So, you certainly can't go wrong with being on the gluten-free diet. From what I've read, colitis can be caused by celiac...
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