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Ursa Major

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Everything posted by Ursa Major

  1. Ursa Major
    Lenore, I know that to see a specialist in Canada can take months (when I needed to see an orthopedic surgeon last time, I got an appointment EIGHTEEN MONTHS down the road, fortunately my chiropractor figured out the problem before that). It seems that it is a much shorter wait to see a dermatologist. Too bad the one I saw first of all triple-booked people...
  2. Ursa Major
    As Carla said, some people with celiac disease can't tolerate any oats, gluten-free or not. Whenever I want a cereal that is somewhat like porridge, I eat creamed buckwheat (Bob's Red Mill), I really like it.
  3. Ursa Major
    Excellent article, Emily. I e-mailed it to my oldest daughter in Kanata, she may find it interesting.
  4. Ursa Major
    It will take AT LEAST four months of eating gluten again for the tests to even have a remote chance of coming back positive for celiac disease. For babies the biopsies are not more reliable than the blood tests. Obviously both your babies react violently to gluten. Slowed growth is a very common celiac disease symptom, as are rashes and diarrhea. What more...
  5. Ursa Major
    Shelby, with him not eating any significant amount of gluten for a while now, it is most likely that all tests will come back negative for celiac disease, even if he has it. Personally, I think getting the gene test done makes more sense than the celiac disease panel right now. If he has the celiac disease genes and obviously reacts to gluten, that would...
  6. Ursa Major
    You doctor does not have microscopic vision, and can therefore NOT tell without the lab report if you have celiac disease or not. If there is obvious inflammation, there is possible celiac disease.
  7. Ursa Major
    Eating gluten for only two weeks prior to the biopsy will more likely than not result in a false negative. It takes at least four months of eating lots of gluten for your intestine to be damaged enough again for a positive biopsy. You have to realize that if you have celiac disease, and your bowel has healed on the gluten-free diet, that you will purposely...
  8. Ursa Major
    Sounds like what I do when I buy cookies for when guests come to our house. At our store they provide plastic gloves for handling the cookies, I use it, only touch it at the wrist and turn it inside out when taking it off and put the used glove into the container they provide. I doubt that you will get glutened with your method, and therefore I don't...
  9. Ursa Major

    ARCHIVED Sushi?

    Ursa Major replied to dublin1's topic in Coping with Celiac Disease

    It should be fine, if it doesn't have soy sauce.
  10. Ursa Major
    Your ped neurologist is very uninformed, if he states that a gluten-free diet only helps kids with autism. Seizures can absolutely be caused by gluten, and those seizures could possibly stop completely on a gluten-free diet, no meds needed. The celiac disease tests are VERY unreliable in children under six, so the negative test result doesn't necessarily...
  11. Ursa Major
    Hi Lenore, and welcome to these boards. It sure sounds like you may have celiac disease. That you feel better off gluten confirms that. How long have you been eating gluten-light? If it has been no more than two weeks, you should be okay for the tests. But if you truly want an official diagnosis, you need to start eating more gluteny stuff again. On...
  12. Ursa Major
    Whey is a protein derived from cow's milk. Here is the Wikipedia definition of it: Open Original Shared Link So, it should only be a problem if you're casein intolerant as well.
  13. Ursa Major
    Jenny, please ask for a copy of the blood work results and post them here, so we can see what they were. If you have been gluten-free for over a month now, the biopsy will likely be negative, even if you have celiac disease. Did you eliminate dairy as well when starting the gluten-free diet? If you have celiac disease, you wouldn't be able to digest...
  14. Ursa Major
    Wow, you've got an excellent doctor! Those are extremely rare, hold onto this one if you can! I am glad you can get the food on prescription without getting all the testing done. You must be relieved that you won't have to put Frankie back on gluten. I know, it is all very overwhelming at first. But many parents here have found it is well worth the...
  15. Ursa Major
    People don't eat it, because it generally isn't a safe substance to use, and most people are intolerant to it. But it is gluten-free.
  16. Ursa Major
    Annie, if the two-year-old has the genes, and is somewhat symptomatic, it is likely that he has celiac disease. Why wait until his villi are destroyed before you put him on the gluten-free diet? The blood work will only be positive if there is extensive damage already, and even then is VERY unreliable in a child that young. It would make sense to try him...
  17. Ursa Major

    ARCHIVED Ibs

    Ursa Major replied to Nic's topic in Related Issues & Disorders

    Intolerances will not show up on allergy testing. I suspect that your son is intolerant to dairy, which would NOT show up on the RAST test. You may have to do an elimination diet on your own, as your doctor is clueless. If it was my son, I'd eliminate dairy and soy for starters, to see if it makes a difference. His symptoms are VERY consistent with a casein...
  18. Ursa Major
    It looks like your doctor is one of the many doctors who are completely ignorant about celiac disease. I agree with the others. If even just one of the biopsies came back positive for celiac disease, that should give her a firm diagnosis, and she should NEVER have gluten again. All her symptoms (including not growing) are common celiac disease symptoms...
  19. Ursa Major

    ARCHIVED Ibs

    Ursa Major replied to Nic's topic in Related Issues & Disorders

    Nicole, is Jacob still consuming dairy? It is well known that dairy can cause constipation, as can other foods that somebody is intolerant to. It is quite possible that another intolerance is causing these continuing problems, despite the gluten-free diet. Mind you, it is NOT acceptable to book a six-year-old in such a way that he'll have to fast all...
  20. Ursa Major
    You're right, the sudden change is hardly a coincidence. Unfortunately, if you want the blood work and the biopsy done, you'll have to put your son back on gluten, otherwise you'll get false negatives. On the other hand, blood work (and even the biopsies) are notoriously unreliable in young children under six (and not that reliable with anybody older than...
  21. Ursa Major
    Georgie, I know how frustrating it is when your family eats the last of your food, when there is so much they can eat. At least I can usually find food to buy day and night, as we have one grocery store near by that is open 24 hours a day. Is it possible for you to order some of your non-perishable gluten-free food online, so at least you don't have to...
  22. Ursa Major
    Happy Birthday, Carrie!
  23. Ursa Major
    I think a gluten-free cake for everybody would make much more sense. The kids won't even notice the difference, it will be less work for you, and you won't have to worry about cross-contamination.
  24. Ursa Major
    If your son's blood work was positive for celiac disease, his villi will be quite damaged at this point. The tips of the villi are supposed to produce lactase, the enzyme that helps us digest dairy. If there are no villi tips, you will have a lactose intolerance as a result. That is why all people diagnosed with celiac disease should eliminate dairy for...
  25. Ursa Major
    It looks like the soy intolerance may have caused your son to react to gluten (I believe that is what Enterolab is saying). So, for now he needs to completely avoid both (definitely 100%) for several months. He should never eat soy again, but after about six months you may want to challenge the gluten, to see if he is okay with it. If he has a reaction...
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