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knitty kitty

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Latest Celiac Disease News & Research:

Everything posted by knitty kitty

  1. knitty kitty
    Thiamine deficiency can cause many of the symptoms you've described. Palpitations, headaches, POTS (Postural orthostatic tachycardia syndrome), lightheadedness, muscle aches (especially tender or sore calves), acid reflux, elevated liver enzymes. Have your doctor test your thiamine level. Doctors don't usually think of thiamine deficiency unless...
  2. knitty kitty
    Think of it as Celiac University. You'll be learning about the gluten free diet, how to function in social situations (so many are based on eating), and how to cope with the stress of it all (it's a big lifestyle change). This forum is a wonderful place to come for information and support! I've gotten so much out of it and I hope you will, too!
  3. knitty kitty
    Sam, I get DH on my hands, too. (Also on elbows and knees.) I learned DH is pressure sensitive. I would go grocery shopping and have DH blisters on my palms from pushing the shopping cart by the time I got home. Holding knitting needles ? or a pencil would cause blisters on my fingers. Same reaction of skin under elastic! If you get a positive...
  4. knitty kitty
    Your pancreas and spleen are in the ULQ. Some Celiacs have problems with their pancreas. And the descending colon starts over there, too. I have had diverticulitis and that's where my pain started, ULQ. Vitamin and mineral deficiencies can cause the intestinal tract to not work properly. Hope you feel better!
  5. knitty kitty
    I can't eat chicken either. Seems a part of the chicken meat molecules sort of resembles a segment of gluten molecules. "Sorta-resembles-gluten" molecules also occur in casein (dairy protein), corn (maize), yeast and some rice breeds. (Basmati rice is least likely to elicit a reaction.) Not everyone reacts to these. I can eat Duck and Cornish Game...
  6. knitty kitty
    Laura, 1. Research Mast Cell Activation Syndrome and Histamine Intolerance. 2. Try the Autoimmune Protocol Diet (just meat and veg, like Steak and salad). 3. Eat your leafy greens like kale. Open Original Shared Link 4. We're here for you on-line, like everybody else social isolating. 5. Research High Caloric Malnutrition...
  7. knitty kitty
    Celiac Disease causes malabsorption which results in malnutrition. Skin rashes can be caused by vitamin deficiencies...... https://www.livestrong.com/article/269105-skin-rashes-caused-by-vitamin-deficiency/ ....or by Dermatitis Herpetiformus, a blistering rash caused by Celiac Disease. People with DH often do not test positive on blood tests for...
  8. knitty kitty
    Have you been checked for vitamin and mineral deficiencies? Thiamine deficiency can cause fatigue.... https://www.liebertpub.com/doi/10.1089/acm.2011.0840 Thiamine deficiency can also affect the nerves going to the intestines and can cause nausea, bloating, gastroparesis (the delayed emptying of the intestinal tract) and gall bladder problems...
  9. knitty kitty
    Milesmills, Newly diagnosed Celiacs are often deficient in vitamins and minerals. Checking for nutritional deficiencies is part of follow up care for Celiacs. Here's an article that explains the importance of vitamins and minerals in our mental health. Thiamine deficiency can cause anxiety. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC30...
  10. knitty kitty
    Ali Rae, Sorry you're feeling poorly. Celiac Disease causes malabsorption of vitamins and minerals that our bodies need in order to function properly. Instead of searching for a pill to pop for instant relief, consider giving your body what it needs to help itself. Your body can improve its own health if given the right tools and supplies...
  11. knitty kitty
    What a great idea, Ennis! You may have found a new career! Care packages for Celiacs! I'll make a donation for a care package to AuntieE. Let's stimulate the economy! We need more "people helping people" stories on the news these days! Proud of you, Ennis! Well said!
  12. knitty kitty
    AuntieE, I suffer from DH. I have found that foods high in iodine will trigger my rash. Foods high in iodine such as eggs and fish and pork make my DH flare. My rash is also triggered by a sulfite hypersensitivity. Medications containing sulfites, as well as foods containing sulfites or sulfite preservatives will make the rash worsen. Sulfites...
  13. knitty kitty
    Cycling Lady, Thank you so much! These are very helpful guidelines and resources! I don't have a binder, but I do have a plastic bag full of instruction manuals, notes, and receipts. You've inspired me to get them in proper order. But I have to take a break first! I've been traumatized by a trip to the grocery store. Too few people are following...
  14. knitty kitty
    Thanks, CyclingLady! While waiting for a reply, I googled and found a site that said it was hard to replace just a section of metal roof because the metal sheets overlap. Pull up one and it disturbs the ones next to it. So that answered my question. I really like the metal roof. I like listening to the rain. It will be more pleasant to listen...
  15. knitty kitty
    New metal roof
  16. knitty kitty
    Keight, Do be careful of the Paleolithic Ketogenic Diet. Here's a video that explains it better than I ever could. Please watch it. What this doctor says is true. I learned the hard way.
  17. knitty kitty
    Yes, you could have. Cycling Lady often suggests buying a cheaper glucose meter. I'm Type Two Diabetic. Diabetics need at least 25% more thiamine than non-diabetics. Keeping track of your blood glucose levels when you feel weak all over like you described can help you discern if it is low blood sugar or not. You could write your glucose readings...
  18. knitty kitty
    How about a sweater for the teddy bears in the window? Can't have bare bears flashing the neighborhood. Hee hee! http://www.knittingonthenet.com/dollsteddy.htm Teach the kids to knit, too! I started knitting at eight!
  19. knitty kitty
    Iceland girl, It's like riding a bicycle. Your fingers will remember! I'll be around to answer questions if you need assistance. Also, there's patterns for Knitted Face Masks.... Instructions for sewing fabric face masks.... I'm trying my paws at sewing a face mask... Note: These are non-medical face...
  20. knitty kitty
    Hi! Of course, I'm going to suggest learning how to knit! Kick off the shoes you've worn outside at your doorway (so you don't track the virus into your home) and slip on nice warm slippers. Here's an easy pattern for beginners to make slippers. https://www.simple-knitting.com/knit-slippers.html There's tons more pattern sites...
  21. knitty kitty
    The World Health Organization has a field test to quickly tell if a person is deficient in thiamine. Can you rise from a squat? I squatted down in a grocery store to get an item on the bottom shelf. I could not stand up again. Going down into the squat was not a problem. But I could not straighten up into a stand. My muscles would not work. It...
  22. knitty kitty
    It could be Small Intestinal Bacterial Overgrowth (SIBO). Here's an article.... https://www.healthline.com/health/sibo-diet I bloated badly with SIBO before my Celiac diagnosis. I went on the Autoimmune Paleo Diet, which is more strict than the Fodmaps diet the article talks about. Basically, it's meat and veg only, no carbohydrates, to starve...
  23. knitty kitty
    Hi, MisterSeth and Cycling Lady, I googled this, too, and I found these.... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6741376/ And... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4699997/ The scientists have found a link between CHS and Thiamine deficiency! They don't know which comes first, like the chicken and the egg. But...
  24. knitty kitty
    Japan pioneered microbial transglutaminase production and use it in fish paste and imitation shark fin (ugh) and lots of other things. European countries banned microbial transglutaminase in 2010. Here's one article I found that mentions products and some restaurants... Open Original Shared Link "Be sure to refrain from the following...
  25. knitty kitty
    Microbial transglutaminase acts the same as the Tissue transglutaminase (Ttg) tested for in Celiac Disease. Microbial transglutaminase elicits the same reaction in the body, intestinal permeability and damage. Here are some articles that might be helpful. I'm fairly sure food manufacturers want to keep their recipes private, so a list might not...
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