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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @CatCann, Yes, it is like poison. Whatever happened to the Hippocratic oath "first do no harm"? It's frustrating for sure. Studies are being done to find other markers for Celiac. IL-2 has been identified as a potential marker, as it says in this article... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7878429/?report=reader Has your daughter...
  2. knitty kitty
    Hello @Eldene, Lactase, the enzyme that digests dairy is made in the tips of the villi. When the villi are damaged in CeD, they can no longer produce lactase and the undigested dairy gets digested by intestinal bacteria which can result in bloating and diarrhea. Segments of the dairy protein casein resembles segments of gluten and antibodies can confuse...
  3. knitty kitty
    Here's the updated gluten challenge guidelines... According to recent research, updates to the gluten challenge are being implemented. Recommended intake of gluten should be increased to 10 grams of gluten per day for at least two weeks. Or longer. While three grams of gluten will begin the immune response, ten grams of gluten is needed to...
  4. knitty kitty
    @AnnaNZ, Here's the updated guidelines for a gluten challenge. According to recent research, updates to the gluten challenge are being implemented. Recommended intake of gluten should be increased to 10 grams of gluten per day for at least two weeks. Or longer. While three grams of gluten will begin the immune response, ten grams of...
  5. knitty kitty
    Nope. Iodine makes the DH antibodies tTg 3 more active. Blood tests for Celiac Disease tests for tTg 2. TTg 3 is found in DH eruptions. TTg 6 is found in Celiac people with ataxia because it attacks the brain. TTg 6 is also found in Alzheimer's and Parkinson's dementia. Dermatitis herpetiformis resistant to dapsone due to dietary...
  6. knitty kitty
    Welcome to the forum! Gallbladder problems can occur in Celiac Disease. Frequently gallbladder problems can be caused by low Thiamine Vitamin B 1. There are eight essential B vitamins, thiamine is the one that we use the most of and run out of the quickest. They all need each other to work properly together. Constipation (and/or diarrhea) can...
  7. knitty kitty
    Welcome to the forum! Have you had a genetic test to see if you carry any known genes for Celiac Disease? Have you been checked for vitamin and mineral deficiencies?
  8. knitty kitty
    What kind do this? Can you share the ingredient labels?
  9. knitty kitty
    @CatCann, welcome to the forum! The test your daughter had in the past and more recently might not have given accurate results if your daughter was not eating sufficient gluten prior to the antibody test. Here's the updated guidelines for a gluten challenge.... According to recent research, updates to the gluten challenge are being implemented...
  10. knitty kitty
    Hello, @AnnaNZ! In Celiac Disease, part of the autoimmune response is the release of histamine in response to gluten. The Mast Cells that release histamine can become hypersensitive and release histamine in response to the slightest provocation by some foods. High Histamine levels can cause continuing inflammation and digestive problems. By cutting...
  11. knitty kitty
    The GP can't blame you if she doesn't know, and pass on, the proper protocol for gluten challenges before testing. Getting a proper Celiac Disease diagnosis can be delayed by ten years because doctors are not knowledgeable about testing prerequisites. Write a letter on paper to your doctor requesting another test due to the reasons above and...
  12. knitty kitty
    Yes, Peggy, Anemia is common in Celiac Disease. Anemia can be caused by not absorbing sufficient iron, Cobalamine B12, and other essential nutrients. We need iron to make blood cells but we also need Cobalamine B12. An intrinsic factor is needed to absorb B12, but gastritis can affect the production of the intrinsic factor in the stomach. ...
  13. knitty kitty
    We're you consuming sufficient amounts of gluten prior to your blood antibody tests? You may want to continue on gluten at these levels below and be retested in two weeks. Check with your doctor. According to recent research, updates to the gluten challenge are being implemented. Recommended intake of gluten should be increased to...
  14. knitty kitty
    Yes, it's possible. If you can smell the food in the air, it means airborne particles are being sensed by your nose. The nose empties down the esophagus (throat) and ends up in your digestive system where antibodies recognize it and start the autoimmune reaction. I avoid the bread and bakery aisles at the grocery store. I also avoid perfume aisles...
  15. knitty kitty
    According to recent research, updates to the gluten challenge are being implemented. Recommended intake of gluten should be increased to 10 grams of gluten per day for at least two weeks. Or longer. While three grams of gluten will begin the immune response, ten grams of gluten is needed to get antibody levels up to where they can be measured in...
  16. knitty kitty
    You should definitely ask your doctor to be retested because you were not told to eat sufficient gluten beforehand. According to recent research, updates to the gluten challenge are being implemented. Recommended intake of gluten should be increased to 10 grams of gluten per day for at least two weeks. Or longer. While three grams of gluten...
  17. knitty kitty
    Yes, I do have trouble with insomnia sometimes. When I do, I take the amino acid L-Tryptophan, a form of Niacin B 3, that helps make serotonin and melatonin. I take a magnesium glycinate or magnesium threonate, and a Pyridoxine B 6 supplement (low dose). Pyridoxine helps with dreaming, an important part of restorative sleep. https://pubmed.ncbi...
  18. knitty kitty
    @Raquel2021, More than happy to. I like Life Extension brand. B Complex... https://www.lifeextension.com/vitamins-supplements/item01945/bioactive-complete-b-complex Benfotiamine 100 mg https://www.lifeextension.com/vitamins-supplements/item00920/benfotiamine-with-thiamine Benfotiamine 250 mg (you may want to start with the...
  19. knitty kitty
    @MominWA, I'm sad to hear about your son having more health problems. I'm worried your son isn't going to get better until the nutritional deficiencies are addressed. Are you still supplementing vitamins and minerals? How much thiamine is he getting? I'm not a doctor, I'm not diagnosing. I've read articles stating SMAS is caused by...
  20. knitty kitty
    @Ruby89, So good to hear from you! I'm so glad the thiamine helped improve your neuropathy! Are you taking a magnesium supplement? Low Magnesium is associated with joint pain and increased levels of anxiety and depression. Thiamine needs Magnesium to make important enzymes. Magnesium threonate is exceptionally beneficial with the anxiety....
  21. knitty kitty
    @ALee, Don't hurt yourself trying to squat! Have you had your Vitamin D level checked? B12? Have you been supplementing with any vitamins since you've been on a gluten free diet? The gluten free diet and low carb diets can be low in vitamins and minerals, especially over a long period of time. Gluten free facsimile foods are not required...
  22. knitty kitty
    There are different blood tests for Thiamine, but they are not accurate. An Erythrocyte Transketolase test checks for activity in a Thiamine containing enzyme. But there's disagreement on how accurate that test is, too. The World Health Organization has a field test for Thiamine insufficiency. Can you rise from a squat unaided? I squatted...
  23. knitty kitty
    These explain well... https://www.webmd.com/a-to-z-guides/magnesium-test And... https://www.webmd.com/a-to-z-guides/do-i-need-a-calcium-blood-test
  24. knitty kitty
    Do be aware that a small percentage of us are seronegative. We don't have antibodies in our blood due to anemia, or diabetes, or we've been sick so long our bodies have just quit cranking out antibodies due to a Thiamine Vitamin B 1 deficiency. (Yes, we need Thiamine and magnesium to make antibodies.) I'm seronegative, but I have two genes like yours...
  25. knitty kitty
    Welcome to the Celiac Club, @ShelbyE720! Deficiencies in certain vitamins can cause skin changes. I had a similar rash in the same places. It went away when I supplemented Riboflavin B2. Deficiencies in vitamins like B12, Vitamin C and Niacin can cause skin changes, too. Here's an article with which to compare yours. Cutaneous signs of...
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