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Irene Joanne

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Irene Joanne

  1. Oh I'm so sorry to hear that! In the short time I've been on this site- I've been so grateful for your help! I've learned a lot from reading some of your old posts too! Thankyou for the time and effort you've given here? God bless!
  2. I've read anywhere from six weeks to 3 months
  3. I react to honey- not because of gluten, but because of the high salicylates in honey
  4. If I was in your shoes and knew gluten made me so sick- there's no way I'd eat gluten for a few months for an accurate diagnose.
  5. I have within range thyroid blood work- yet my thyroid antibodies were really high.... And I definitely have lots of symptoms. I'm scheduled to see a thyroid specialist next week to talk about the high TPO levels. Exciting thing they're starting to go down since going gluten free.
  6. All the people I've talked to personally with celiac were told to avoid oats for the first six months after being diagnosed for sure. 3 months in- gluten free oats still make me really sick
  7. Could this be a Salicylate sensitivity or allergy? That's something I'm dealing with now and most fruits are high in this.
  8. I can relate. I've had quite a bit of anxiety the last years. Since going gluten free it got a lot better in some ways. I did, and still do sometimes have quite a bit anxiety when it comes to food. Every time I ate something and felt a little off, I right away assumed it was gluten and felt even worse because of the anxiety. Plus my anxiety about eating out...
  9. Get the biopsy- it's so much easier to stick to the diet when you know for sure.
  10. How about trying to eat some protein? I was sick for four- five days after eating oatmeal and noticed a dramatic improvement after eating steak the fourth day.
  11. How long before the testing is complete? My family has noticed how much more stable my moods have been since going gluten free- huge difference. I had so many anger issues the last year and that's completely gone. Maybe if your husband realizes celiac can do this- he will be less likely to take that anger out on you and your daughter. What about anxiety medication...
  12. Good? I'm looking forward to better days!
  13. I have been doing that for about three weeks- it is hugely helpful!
  14. THANK YOU so much! That was just what I needed to hear!
  15. Lots of people with celiac have a delayed reaction.
  16. 3 months ago I was diagnosed with celiac. It's been an up and down few months- I've had a couple accidental glutenings that made me really sick. On top of this all, I'm starting to have other allergic reactions. I've always been sensitive to perfumes and chemical smells- this is definitely getting worse. I'm even starting to have allergic reactions...
  17. So sorry you're struggling. Did you ever have the blood work done to check for celiac? I have celiac and Hashimoto's too and since going gluten free my thyroid antibodies are going down. Honestly I'd go gluten free just because of the thyroid problem. I'm finding out that more than celiac is going on with me. I'm reacting to foods high in salicylates...
  18. True- I have quinoa and rice, but never tried the other two
  19. I had this when I was eating gluten and still now sometimes when I eat something that triggers a reaction- like oatmeal for example. It's just inflammation I think that makes it feel like there's a lump in my stomach
  20. I feel like this two months into the diet- dietician told me I need more grains in my diet. It's hard when I don't like gluten free bread much and I can't eat oatmeal
  21. Get tested for sure! After for so many years having doctors treat me like everything was just in my head- it's such a relief to have an official diagnose. If I hadn't gotten tested- and went gluten free anyways, I would always wonder if it was just in my head and I'd be a lot more likely to cheat. You'd have to be eating gluten again though?
  22. I used to take the true hope vitamins too- are they gluten free? They did work well for me- but b vitamins in any form seem to give me really bad anxiety.
  23. It's not impossible to swing back and forth from hypo to hyper when it comes to auntoimmune thyroid disease
  24. I know you said you had thyroid blood work done, but did you get your thyroid antibodies checked? I've spent the last year feeling like you- so sore everywhere. I just found out in November I have celiac, but I also had high TPO (thyroid antibodies) levels, although my other thyroid blood work was still within range. I wonder if high thyroid antibodies can...
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