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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Agreed. I bought on old fashioned popup toaster for this purpose and I find I have to put it on the highest setting in order to get my Franz bread slices browned. gluten-free bread tends to be heavy and moist and take longer to toast than wheat bread.
  2. trents
    This could have changed but my understanding has been that Franz products only available on the West coast, Hawaii and a couple of Rocky Mountain states. But of all the commercial gluten-free loaf bread products I have tried, Franz is the best.
  3. trents
    Good luck on making your own. We haven't tried it in some years but could never get it to hold together like the commercial stuff does. Perhaps there are better recipes and better gluten-free flours available now. But you may find that the gluten-free flour prices have increased enough that the little amount you save is just not worth the hassle.
  4. trents
    The tTG-IGA is the most important test of the ones your physician ordered that needs your attention. The tTG-IGA is the most common antibody test ordered by physicians. The reason is that it is considered to do the best job of combining good sensitivity with good specificity for celiac disease. Your test value for this one is definitely positive. What...
  5. trents
    Welcome to the forum, JoJo71. You have several classic symptoms of celiac disease. Can you please post the reference ranges for the lab test values, that is to say, what is negative and what is positive. I'm sure you assumed there are standard values for these tests but there are not. Each lab uses it's own reference ranges for the celiac antibody tests...
  6. trents
    Candy can contain wheat, either as an intentional ingredient or through cross contamination (CC) of some of the ingredients that may have been processed on equipment used to process gluten containing grains. Don't take anything for granted.
  7. trents
    @rrmac, No, all these post email notifications are not being diverted from John111 to you. You are getting them because you have that option checked in your forum profile email settings.
  8. trents
    Yeah, you really have to learn how to graciously say "Thanks, but I just can't risk it because I have been made ill too many times by well-meaning friends and family who tried to accommodate my gluten free need but were not aware of the many ways gluten is hidden in food." Either that or insist on seeing the list of ingredients used. Over time, you will develop...
  9. trents
    Get a different doctor!
  10. trents
    Gonna try high dose of Riboflavin myself. There is clinical evidence it is effective for reducing migraine frequency: https://pubmed.ncbi.nlm.nih.gov/15257686/
  11. trents
    You may be going through gluten witdrawl. Gluten has an addicting effect similar to opiates. https://mkfa.info/blog/what-are-gluten-withdrawal-symptoms-and-what-causes-them
  12. trents
    You need to get a second opinion, musicalmumm. The first GI doc's conclusions are not in keeping with the actual biopsy results he reports. Not sure why he felt he could not conclusively say she has celiac disease. How old is your daughter?
  13. trents
    Sara, welcome to the forum! May we assume that you already have been diagnosed with either celiac disease or NCGS (Non Celiac Gluten Sensitivity) such that you already know gluten causes you problems?
  14. trents
    It seems obvious to me that indeed, inflammatory processes pick on the weak areas of our bodies as they are often the same areas that were initially damaged by these same inflammatory processes.
  15. trents
    Yes kk, but at some point testing would need to have been done for that connection made if they are truly silent. Otherwise, there would have been no motivation. The testing may have not be specifically for celiac disease but perhaps anemia showing up in a CBS or elevated liver enzymes in a CMP, as was the case personally.
  16. trents
    I think you would be okay there, Bobby. Some or our forum participants report celiac reactions even to the aroma of freshly baked bread but I do not think that is a problem except with the most sensitive celiacs.
  17. trents
    A reasonable approach that works for many but it would not work for "silent" celiacs who do not (yet) experience significant symptoms. By the time the damage to their small bowel villi becomes sever enough to produce significant symptoms, irreversible damage may have been done to body systems. People with first degree relatives having celiac disease should...
  18. trents
    Welcome to the forum, Bobby123! No. Don't overthink this. As a general rule, ingestion of gluten is all you have to worry about. There are some exceptions to that for those who are super sensitive to gluten who may also experience celiac reactions from inhaling the aroma of freshly baked bread in a bakery or from contact with skin from foods, shampoos...
  19. trents
    Welcome to the forum, Matt! Are you back to eating significant amounts of gluten? You say you "it comes up barely on the blood test". Which blood test do you refer to? Can you be more specific? I assume you are referring to a celiac antibody blood test but there is not just one. Do you have access to your medical record from recent testing and can...
  20. trents
    We have people on this forum who testify to getting glutened from simply walking down the bread isle in the supermarket and smelling the aroma of fresh bread. So, for those who are really sensitive to gluten, what's in the air seems to cause a reaction sometimes.
  21. trents
    What's scary is that we can add this to the growing list of frequently misdiagnosed medical problems. And this makes me aware of how important it is to both do your own research and to find a doctor who knows how to think outside the box.
  22. trents
    There is more than one IGA antibody test. Here is a primer: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ But if you have already begun a gluten-free diet it would be a waste of time. You would need to go back on gluten in the equivalent of 2 slices of wheat bread daily for 6-8 weeks before a valid antibody test is possible...
  23. trents
    Causes for hyponatremia: https://www.mayoclinic.org/diseases-conditions/hyponatremia/symptoms-causes/syc-20373711
  24. trents
    Multivites are not that important IMO because they aren't very potent. Early on, medical science was very conservative with D3 amounts but it is now recognized that the caution was overdone. D3 is very important to many processes in the body and most on this forum will tell you 5000IU is quite safe. Magnesium is necessary to support the assimilation of thiamine...
  25. trents
    Yes, iodine should be avoided with DH. Costco's Kirkland Signature and Nature Made brands are generally good choices. They will state gluten free on the bottle if they are and most of them will be. I get Doctor's Best High Absorption Magnesium (magnesium glycinate) from Amazon and zinc picolate from Amazon also. Titrate up in the magnesium as it an have a...
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