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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    NSAID Patches can have the same problem with stomach irritation as pills if used often for extended periods since they will also suppress the inflammatory process needed to rebuild the stomach lining. The COX inhibitors will still get into the blood stream to some extent. But they are great for short term, intermittent use. NSAID inflammatory creams and gels...
  2. trents
    You can also have NCGA (Non Celiac Gluten Sensitivity) as opposed to celiac disease. Being actually tested for celiac disease would be the only sure way to differentiate between the two. But either way, life long avoidance of gluten is the only antidote.
  3. trents
    Yes, thanks for catching that, Scott. That one is positive. The formatting sometimes makes it difficult to spot those.
  4. trents
    I don't see that you have any positives at all in the data you listed. The key one is the tTG-IGA and your value is 2 whereas the reference range goes all the way up to 19.
  5. trents
    I'm not aware that genetic testing can establish that you have an allergy. Celiac disease is not an allergy but an autoimmune disorder and the potential for it can be established by genetic testing. But having the genes doesn't necessarily mean you have celiac disease. Many or most who have the genes do not develop celiac disease. There must be a stress triger...
  6. trents
    Genetic testing cannot establish that you have celiac disease. It can only establish that you have the potential for celiac disease, which you do, having the FDQ8 gene. There is one other gene that has been associated with celiac disease so far and there may be others. Many or most people that have the genetic potential for celiac disease don't actually develop...
  7. trents
    You should be feeling better within a few weeks but double down on your efforts to eat gluten free. Read all labels carefully, not just food but supplements and meds as well. Wheat starch is sometimes used as a filler in pills. As Cristiana also mentioned, it is very common for celiacs to have developed other food intolerances because of "leaky gut" syndrome...
  8. trents
    Seven or eight mile walk? That's way beyond what is needed to remain mobile. You must be like me. If a little bit is good a whole lot must be much better! Seriously, I would see if the pain starts to subside on it's own and then begin some limited, gentle exercise. A physical therapy consult could be helpful in giving you some targeted exercises for the sacrum...
  9. trents
    Are the hip and leg not getting any better over time? How long has this been going on? One option might be just to give it some time without taking the meds. What about cortizone injections to the affected parts?
  10. trents
    Rita, have you actually been tested for celiac disease? I mean there are blood antibody tests specifically designed for celiac disease. But you would need to have been eating regular amounts of gluten (equivalent of two slices of wheat bread daily) for 6-8 weeks before getting tested for the tests to be valid. https://celiac.org/about-celiac-disease/screening...
  11. trents
    Welcome to the forum, joyce! I think your question is one that most new celiacs ask as they are trying to gauge the impact that celiac disease will have on their lives. It certainly is an inconvenient disease to have, isn't it! First of all, celiacs do vary somewhat in their sensitivity to gluten. Some can ingest very small amounts of gluten seemingly...
  12. trents
    Good catch, frieze. Mica29, can you clarify for us if a gastroscopy (scoping of the stomach) or an endoscopy (scoping of the small bowel which is the part of the digestive track affected by celiac disease)? Both procedures are done from the mouth end but the gastroscopy stops at the stomach.
  13. trents
    I hope you get cooperation from the physician. Unfortunately, there is an appalling lack of knowledge in the medical community as a whole about celiac disease and many physicians are pretty dismissive when patients inquire about testing. There are also home celiac disease test kits available from companies like Imaware for around $100 USD. Don't have your...
  14. trents
    You could be suffering from NCGS (Non Celiac Gluten Sensitivity) which produces many of the same symptoms as celiac disease but does not damage the villi of the small bowel, which is the defining characteristic of celiac disease. The antidote is the same for both, however, and that the complete elimination of wheat, barely and rye from the diet. There currently...
  15. trents
    This happens sometimes. Other forum participants have reported this testing anomaly. Sometimes the damage to the villi in the duodenum is patchy and the biopsies miss the affected areas. This can happen with an inexperienced scoper. Other times the damage is not detectable yet because the disease is caught in very early stages. Can you share what the...
  16. trents
    You need to get IGA testing done. IGG as secondary testing can be helpful but I'm not sure what LGG is. Celiac disease is an autoimmune condition not an allergy so it involves a different immune system pathway that IGA tests are especially suited for. Maybe this will help: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ The...
  17. trents
    Normal? Well, it's not uncommon. First, check the ingredient labels on all the processed food items you use to make sure there haven't been formulation changes. What was once gluten free may not be anymore. Food companies can and do change their product formulations. Second, check meds and supplements as well. Wheat starch can be used as a filler...
  18. trents
    I try to buy certified gluten free products when that is an option. I tend to trust Costco products that are labeled gluten free. The company seems to have pretty high standards. And they are reasonably priced. Most of the time "gluten free" is good enough but for some very sensitive individuals it may not be.
  19. trents
    Costco's Kirkland and Nature Made lines are excellent for those needing to avoid gluten. If they are gluten free it will say so on the bottle.
  20. trents
    https://www.foxnews.com/health/stress-may-be-the-culprit-behind-crohns-disease-study-finds This article summarizes recent research connecting Crohn's Disease with psychological stress. Stress leads to changes in the glut bacteria mix, leading to reprogramming of the immune system's response to harmless bacteria leading to inflammation, erosion of the...
  21. trents
    In the context to the article you quote, the "cleaning" effect the author ascribes to white blood cells is referring to removing acids. Acids are not foreign invaders. Foreign invaders would be life forms like viruses and bacteria - things that have proteins.
  22. trents
    Tintern21, you said, "I even stated my concerns as have other allergies to the doctor before the vaccine and my concerns were completely dismissed." Celiac disease is not an allergy. It is an autoimmune disease.
  23. trents
    Celiac disease often creates a broad spectrum of vitamin and mineral deficiencies but the hardest hit seem to be the B vitamins. Since they are water soluble you really can't overdose on them. I would suggest you invest in a gluten free high potency B complex such as Costco's Nature Made line. I would also suggest adding to that at least 2000iU of D3, some...
  24. trents
    I wonder if your problem might be tied to a vitamin or mineral deficiency? What supplements are you taking? Celiac disease typically generates multiple vitamin and/or mineral deficiencies because the damaged villi of the small bowel cannot absorb nutrients properly.
  25. trents
    From Jackie Garret's post immediately above: "The main purpose of white blood cells is to maintain cleanliness of the blood and tissues as the primary janitors of the body fluids in the support of the body’s alkaline design." I believe this is misinformation. The main purpose of white blood cells is to defend against intruders and fight infection. ...
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