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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    I use gluten free buckwheat groats on a regular basis for a hot breakfast cereal. They are delicious and highly nutritious. An excellent source of fiber as well. Add a pad of butter and a little sugar and you're good to go. Takes about 10 minutes to cook. I get them off Amazon. There are several brands available there that are gluten free. Buckwheat is not...
  2. trents
    Not sure about the apnea, lungs and hernias being linked to long term exposure to gluten but the other problems you mention are statistically linked to undiagnosed celiac disease. You and I were diagnosed at about the same age and looking back over my life there were some symptoms I experienced even as a child. But when I was about 37 yr. old there was laboratory...
  3. trents
    The guideline for consuming gluten before antibody testing is daily consumption of the amount of gluten equivalent to two slices of wheat bread for 6-8 weeks. One glutenous meal ain't going to do it.
  4. trents
    Thanks for the good information. The problem I see with "celiac-safe" is that it mainly would apply to that group of celiacs who are on the more sensitive side. For the majority of celiacs, the chips and cereals you reference are safe. According to FDA rules, "Gluent Free" cannot be used unless the product meets the <20ppm standard. So even if these chips...
  5. trents
    Thanks for the information, Scott. I was confused about this. Everything I read said that a negative biopsy would essentially rule out celiac disease and leave you with the NCGS option but did not specifically say that NCGS did not produce produce positive antibody tests on a celiac panel.
  6. trents
    The guideline is the equivalent of two slices of wheat bread per day.
  7. trents
    Scott, when you say there is no test yet for gluten sensitivity, do you mean no test to differentiate GS from celiac disease? I'm thinking someone on the forum a few months ago posted a research link that indicated both would produce antibodies.
  8. trents
    Yes, your mom having Hahsimoto may be a genetic clue.
  9. trents
    I was asking because unless you are eating a significant amount of gluten daily, or most days, then the testing may be invalid. And that applies both to the blood antibody test and the upper GI scope with biopsy.
  10. trents
    Welcome to the forum, adil2250. Yes, it is common for people with celiac disease or gluten sensitivity to struggle with mental health issues such as you describe. There are two test modalities used to check for celiac disease. The first diagnostic step is to have a celiac blood antibody panel done: https://celiac.org/about-celiac-disease/screening...
  11. trents
    "Many are gluten free but have no markings" Todd, how do you know if they are gluten free if they have no markings? By "no markings" do you mean there is not an ingredient list on the package or do you mean they aren't marked "gluten free" or "certified gluten free"? And who do you mean when you ask for help but then add, "Very few people are willing...
  12. trents
    By some chance were you already eating gluten free before the testing?
  13. trents
    The ability to see damage during the scoping may depend on the resolution of the camera on the end of the scope being used.
  14. trents
    Have you been checked for pernicious anemia, caused by lacking something called "intrinsic factor" which prevents the assimilation of B12? B12 is necessary for iron uptake.
  15. trents
    So then, you must have NCGI (non celiac gluten intolerance). Many of the same symptoms and many of the same long term health risks but without damage to the villi. The antidote is the same, however. Total avoidance of gluten for life. But please clarify. Were you consuming a significant amount of gluten daily for at least two weeks prior to the biopsy...
  16. trents
    Yes, but given that there would also be the issue of whether the vinegar made from grain product is produced by fermentation or distillation. Theoretically, vinegar distilled from gluten containing grains should not have gluten.
  17. trents
    Was the oil perhaps rancid?
  18. trents
    I would be surprised if tapioca was the issue. I can't think of anything nutritionally more worthless than tapioca but it's certainly bland and not known for producing allergies/intolerances. Oat protein has some intolerance potential for celiacs, however. Avenin is biochemically similar to gluten I understand.
  19. trents
    Did she use soy sauce in the recipe? Most soy sauces contain wheat.
  20. trents
    As far as I know, the villi cannot be completely destroyed such that it is not possible for restoration via a consistently gluten free diet. But it can take two years or more. At some point you should get a follow-up endoscopy/biopsy done to check for progress. I would think if the villi are "completely gone" it would not be possible to absorb nutrients at...
  21. trents
    Everything you list as symptoms in your two posts screams celiac disease. Ask your primary care doc to order a celiac antibody panel. The most important test is the tTG-IGA so if he/she is not willing to order the full battery then insist on that one. It is the most specific for celiac disease but the least sensitive of the IGA tests so the full panel is...
  22. trents
    Welcome to the forum, pipercub! Unfortunately, you are in the no man's land of wanting to get tested but having already approximated eating gluten free which would likely compromise the testing, even though you are not 100% gluten free. If you really want to go through with the testing you need to have been consuming the amount of gluten equivalent to...
  23. trents
    If the endoscopy/biopsy shows no villi damage then you could still very well have non celiac gluten sensitivity. That's the value of the antibody blood test. Both celiac disease and non-celiac gluten sensitivity will give positive test results. And the antidote is the same for both conditions. Total avoidance of gluten for life.
  24. trents
    Welcome to the forum, Sarahf538. First, by "food sensitivity test" do you mean you had food allergy testing done? Celiac disease is not an allergy but an autoimmune disorder and so it is connected to an entirely different immune system pathway than are food allergies. All the symptoms you describe are common to either celiac disease and/or gluten...
  25. trents
    There are big question marks about the reliability of vitamin and mineral level testing since it measures serum levels rather than what is actually being taken up into the tissues. I think it's better to look for the symptoms of vitamin and mineral deficiency. Supplement when in question. Taking large doses of B vitamins cannot hurt you since they are water...
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