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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by trents
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Not a good long term solution. If you continue to skip meals like that to the tune of 90 lbs. per year your husband may be cooking for himself before much longer. Have you had a conversation with him about your need to eliminate wheat (and barley and rye) from your diet? Is he in denial about the reality of celiac disease as a medical condition? I realize...
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Do we know how many of the total screened population were female and how many male? Unless we know that number we cannot say whether female first degree relatives of celiacs are more likely to also have celiac disease.
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Yes. Many celiacs are what we call "silent" celiacs. That is, they have few or no classic digestive distress. That's not to say, however, they will never develop it. Floating stools suggest you are not digesting fat properly and that is a classic symptom of celiac disease. It's related to the damage done to the small bowel villi by persistent inflammation...
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Gluten free 3 years, still fatigued
trents replied to lhu7's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
What about histamine intolerance? https://www.healthline.com/health/histamine-intolerance#symptoms -
Gluten free 3 years, still fatigued
trents replied to lhu7's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
So are you saying you have been checked for SIBO or for ARFID? -
Gluten free 3 years, still fatigued
trents replied to lhu7's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
"arfid"? Have you been checked for SIBO? -
I realize this is anecdotal, but one of the frequently reported vitamin deficiencies by those who are newly diagnosed celiacs on this forum is D3. I also found this, a little dated however: "There is increasing awareness of celiac disease among non-European populations, including those in the Middle East. The disease was considered uncommon in the developing...
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I think you meant "silicon" instead of "silicone." Silicon is a mineral (most of what sand is made of) whereas silicone is a synthetic rubbery material.
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Plant sterols
trents replied to Barb15's topic in Gluten-Free Foods, Products, Shopping & Medications
You would need to contact the company to get that information and even then, the source of the sterols may be various plants from time to time. -
laynuh, welcome to the forum! How long ago were you diagnosed with celiac disease? It can take two years or longer for complete healing of the small bowel villi after going gluten free. What do you mean by "scalloping"? That term is not familiar to me? I wonder if you wouldn't benefit from steroids, at least short term, to quiet your immune...
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https://www.beyondceliac.org/research-news/can-you-trust-negative-blood-test/?utm_campaign=Research Opt-In&utm_medium=email&_hsmi=132215467&_hsenc=p2ANqtz-8fACYIDMKClWlskmmwrskRau68CS70ye3lEsf5WIzBO1inMYDXE2rfjqzrVG5cHRgP84ZiubnJmv0EVKkl2INW0EriwQ&utm_content=132215467&utm_source=hs_email This study concluded that the TTG-IGA antibody...
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Many celiacs react to casein the same way that they do gluten and studies indicate casein can cause villi blunting in some people. What happens if you consume a teaspoon of pure cane sugar? Do you get sores on your tongue? That question might help you separate out whether it's the sugar or some other ingredient or ingredients that are causing your issue...
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Shaa, are you sure it's the lactose in milk and not the protein "casein" which is the primary protein in dairy? People can be lactose intolerant but many who blame lactose intolerance on their health issues are actually reacting to casein. It would be interesting for you to switch to lactose free milk for a time and see if your issues with milk don't resolve...
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Eating Gluten Does Not Seem to Impair Cognitive Function Among Non-Celiac Women
trents commented on Scott Adams's article in Spring 2021 Issue
Laura, you seem to be a frequent guest participant with substantive comments. Any reason you do not join the forum as a member?- 4 comments
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Adderall XR - gluten-free?
trents replied to Celiac77's topic in Gluten-Free Foods, Products, Shopping & Medications
Doesn't look to me that those ingredients would contain gluten and unless you are a very sensitive celiac I wouldn't worry about warning that they are manufactured in a facility that produces gluten containing products. There's probably not enough, if any, cross contamination happening to elicit a celiac reaction. You will find this same situation with almost... -
Bread Storage Advice
trents replied to ENRiX's topic in Gluten-Free Foods, Products, Shopping & Medications
Fridge would be better because lower temps slow the growth of microorganisms. But if you consume them quickly enough it may not be necessary to refrigerate them. Like, I said. You'll just have to experiment. It depends on many things including the ambient temperature of your house. -
Help with test results
trents replied to mk123's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes, it is overwhelming at first. All of us on the forum have "been there done that" so we know what it feels like. It is just so hard to believe that wheat, which is viewed the world over as the "staff of life" can be harmful to our bodies. There is the learning curve with regard to achieving gluten-free eating and then there is hardest part of all, the... -
Help with test results
trents replied to mk123's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You're welcome. Glad you have joined the forum community. We have amassed a lot of collective knowledge here over time concerning celiac disease and gluten sensitivity that, to be honest, exceeds the awareness of most physicians. Please keep us posted concerning what you find out after the endoscopy/biopsy. We will be here for the two of you if she is diagnosed... -
Bread Storage Advice
trents replied to ENRiX's topic in Gluten-Free Foods, Products, Shopping & Medications
Just watch for mold. After a while you will get a sense of how long things will keep in various kinds of packaging and storage environments. I would eat the non vacuum sealed products quickly. -
Help with test results
trents replied to mk123's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The TTG IGA is the best all around test for celiac disease. There are other antibody tests that are more sensitive and others that are more specific but the TTG IGA is the best combination of both and therefore, the most popular test run by physicians. If that value is high, it's a pretty certain indicator of celiac disease. Along with her classic symptoms... -
Bread Storage Advice
trents replied to ENRiX's topic in Gluten-Free Foods, Products, Shopping & Medications
May we assume you are talking about gluten free bagels? In my experience, once you break the seal on gluten-free bread products you had better plan on eating them within about a week or a little more before they start to mold and that's if keeping them in the frig. I do often freeze them beforehand and don't notice any particular freezer burn as long as they...