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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    In your case, because of low IGA, I would recommend pursing an upper GI endoscopy with biopsy of the small bowel lining to check for damaged villi that is the hallmark of Celaic disease. The antibody blood tests for celiac disease are not accurate in people with low IGA. But whether we are talking about the blood antibody test or the endoscopy, you must be...
  2. trents
    Welcome to the forum, BillH! Are you sharing the kitchen with others who are not trying to eat gluten free? I see no need to ditch existing pots and pans and utensils, as long as you scrub them thoroughly after they were last used for cooking gluten containing foods. Concerning vitamins, I would advise an adult Centrum or equivalent plus a...
  3. trents
    Okay. But keep in mind that if you have celiac disease or even gluten sensitivity, you may not get the answer from our experiment unless you are totally gluten free. It is often an "all in" or not at all in if you know what I mean. You may or may not see much difference in symptoms just by cutting back on gluten.
  4. trents
    Welcome to the forum, Krags! A "relatively free gluten-free diet"? Do you have an official diagnosis of a gluten-related disorder or are you just experimenting with eating gluten free?
  5. trents
    Not that's true dedication to the gluten free diet!
  6. trents
    I wish the article would have gone into more detail about the "functional specialized laboratory tests" that can be used in alternative medicine settings to diagnose adrenal dysfunction.
  7. trents
    Upper GI is also commonly called an endoscopy. But technically speaking, "endoscopy" can mean a scoping from either end. With an upper GI, the esophagus, stomach and small intestine are scoped when the tube is inserted via the mouth. This is what is used to diagnose for celiac disease. Celiac disease damages the villi that line the small bowel and the upper...
  8. trents
    I was meaning a scope at the end of year one after going gluten free and then another two years later. Talk to the GI doc about doing the upper GI at the same time you go in for a routine colonoscopy. You may get a two for one discount. But make sure he cleans the scope well if he does the lower end first. If you want to pursue the serum antibody test...
  9. trents
    Welcome to the forum, LoisT! Are you now eating gluten free? You don't say but I would assume so since you are "playing along." Unfortunately, if you are even approximating eating gluten free then serum antibody testing will likely not be helpful and at best equivocal. That is the only other testing for celiac disease besides the endoscopy biopsy...
  10. trents
    I use gluten free buckwheat groats on a regular basis for a hot breakfast cereal. They are delicious and highly nutritious. An excellent source of fiber as well. Add a pad of butter and a little sugar and you're good to go. Takes about 10 minutes to cook. I get them off Amazon. There are several brands available there that are gluten free. Buckwheat is not...
  11. trents
    Not sure about the apnea, lungs and hernias being linked to long term exposure to gluten but the other problems you mention are statistically linked to undiagnosed celiac disease. You and I were diagnosed at about the same age and looking back over my life there were some symptoms I experienced even as a child. But when I was about 37 yr. old there was laboratory...
  12. trents
    The guideline for consuming gluten before antibody testing is daily consumption of the amount of gluten equivalent to two slices of wheat bread for 6-8 weeks. One glutenous meal ain't going to do it.
  13. trents
    Thanks for the good information. The problem I see with "celiac-safe" is that it mainly would apply to that group of celiacs who are on the more sensitive side. For the majority of celiacs, the chips and cereals you reference are safe. According to FDA rules, "Gluent Free" cannot be used unless the product meets the <20ppm standard. So even if these chips...
  14. trents
    Thanks for the information, Scott. I was confused about this. Everything I read said that a negative biopsy would essentially rule out celiac disease and leave you with the NCGS option but did not specifically say that NCGS did not produce produce positive antibody tests on a celiac panel.
  15. trents
    The guideline is the equivalent of two slices of wheat bread per day.
  16. trents
    Scott, when you say there is no test yet for gluten sensitivity, do you mean no test to differentiate GS from celiac disease? I'm thinking someone on the forum a few months ago posted a research link that indicated both would produce antibodies.
  17. trents
    Yes, your mom having Hahsimoto may be a genetic clue.
  18. trents
    I was asking because unless you are eating a significant amount of gluten daily, or most days, then the testing may be invalid. And that applies both to the blood antibody test and the upper GI scope with biopsy.
  19. trents
    Welcome to the forum, adil2250. Yes, it is common for people with celiac disease or gluten sensitivity to struggle with mental health issues such as you describe. There are two test modalities used to check for celiac disease. The first diagnostic step is to have a celiac blood antibody panel done: https://celiac.org/about-celiac-disease/screening...
  20. trents
    "Many are gluten free but have no markings" Todd, how do you know if they are gluten free if they have no markings? By "no markings" do you mean there is not an ingredient list on the package or do you mean they aren't marked "gluten free" or "certified gluten free"? And who do you mean when you ask for help but then add, "Very few people are willing...
  21. trents
    By some chance were you already eating gluten free before the testing?
  22. trents
    The ability to see damage during the scoping may depend on the resolution of the camera on the end of the scope being used.
  23. trents
    Have you been checked for pernicious anemia, caused by lacking something called "intrinsic factor" which prevents the assimilation of B12? B12 is necessary for iron uptake.
  24. trents
    So then, you must have NCGI (non celiac gluten intolerance). Many of the same symptoms and many of the same long term health risks but without damage to the villi. The antidote is the same, however. Total avoidance of gluten for life. But please clarify. Were you consuming a significant amount of gluten daily for at least two weeks prior to the biopsy...
  25. trents
    Yes, but given that there would also be the issue of whether the vinegar made from grain product is produced by fermentation or distillation. Theoretically, vinegar distilled from gluten containing grains should not have gluten.
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