Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

trents

Moderators
 View Profile  See their activity

  • Posts

    8,274

  • Joined

  • Last visited

  • Days Won

    487

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Yes, tapioca and cassava are used heavily in gluten-free processed foods these days. Seems like manufactures have been switching from using rice flour over to tapioca and cassava in the last few years.
  2. trents
    Scott, Do you have any info on the availability of the Nima gluten sensors? They've been unavailable for months as have the capsules. I did some research back this summer and the original developer of the sensor sold the rights to some medical supply company who seems to have production on hold for now. Not sure if that is because they have switched...
  3. trents
    This is not true for all celiacs. Some are much more sensitive to gluten exposure than others. Those who are not sensitive may not realize when they have been glutened.
  4. trents
    Contact your pharmaceutical provider and ask them to research it. I have done this on several occasions with meds I take. Typically, they can tell you what goes into the pill but they can't guarantee no cross contamination with other ingredients during manufacture.
  5. trents
    I can no longer tolerate hemp whereas formerly I could use it without issue. Same with avocados and chia seeds. This change happened over the course of a summer two years ago. These seeds now give me violent emesis within 2-3 hours of consumption.
  6. trents
    Hard boiled eggs would be the safest, but not necessarily the most tasty. Nikkie2777, funny you should mention that hotel eggs make you sick. I've noticed lately that eggs often give me a belly ache these days, even when I cook them myself at home. If I eat a small serving of eggs I'm okay but not so with a large serving. Same with some tree nuts and...
  7. trents
    Nikki2777: good words.
  8. trents
    Well then, do you have an official celiac disease diagnosis?
  9. trents
    Your testing would not be valid if you have been gluten free for that long. If you are feeling better after eliminating gluten from your diet, however, that may tell you all you need to know. When all is said and done, even if your testing was positive, it all winds up in the same place. That is, eating gluten free. However, if you are one of those people...
  10. trents
    Phil, welcome to the forum. You have a range of symptoms that may all fit under the common heading of neurological distress. Though no one person with Celiac disease will share all your symptoms, some of your symptoms have probably been experienced by various members in the forum community who suffer with celiac disease. It is well-known that gluten...
  11. trents
    This is a great article that is pretty comprehensive and up to date with the current state of knowledge of celiac disease. Thanks GFinDC. It occurs to me that this article would be a great tool to give to physicians he need to get up to speed quickly on celiac disease.
  12. trents
    This combined with taking GliadinX or some similar product might be the answer.
  13. trents
    How high are the liver enzymes? Elevated liver enzymes was what led to my celiac disease diagnosis about 18 years ago. They were never real high but it still worried me as they were that way for 12-13 years before I got celiac disease diagnosis. Like you my GP had no clue about what was causing it and tested me for all the heps and other stuff but not celiac...
  14. trents
    Was losing the weight a good thing for you? We've had several posters lately who were worried because they were losing weight but didn't want to.
  15. trents
    I I think what would be allowed as far as alternatives go will vary from priest to priest and parish to parish. The Catholic Church is not as monolithic as many imagine. I would suggest that any Catholics in this situation discuss the options with their priest.
  16. trents
    Don't forget the green veggies. Pour some of that cheese over broccoli. That will automatically make it a healthy meal, hee , hee!
  17. trents
    In this situation, would it be possible to take GliadinX or something similar in order to mitigate the small amount of gluten in the communion wafer?
  18. trents
    Be patient with the thyroid problem. It can take a while to get the med dosage dialed in.
  19. trents
    Sorry, you did say colostomy. My bad. I was thinking right but keyboarded it wrong.
  20. trents
    What symptoms were you having before the colonoscopy when you got glutened? How did distinguish glutening from the fructose issue back then? Is it possible all the symptoms you were having pre colonoscopy were caused by the fructose intolerance rather than gluten? Many Celiacs are asymptomatic. We call it "silent" Celiac Disease.
  21. trents
    I would contact the companies directly and ask that question. Many times you can't get a definitive answer because they aren't necessarily taking precautions against cross contamination even though they may not put gluten in the product intentionally.
  22. trents
    Thanks for the correction, Scott. I had the wrong impression from some other things you had said about your daughter's use of it. I have never used it personally. I just want the OP to understand using GliadinX is not a silver bullet for celiac disease and should not tempt her to throw caution to the wind when eating out.
  23. trents
    This is pretty much my experience, Scott, except the celiac disease dx came much later in life.
  24. trents
    I would caution against seeing gliadinX as anything more than a stopgap measure when you are in a situation where you have no choice but to eat out and you are simply doing what you can to mitigate cross contamination even though you have been appropriately selective in your menu choices as a celiac. I would not encourage you to see it as something giving...
  25. trents
    Burgher, you raise a good point. My observation is that our European forum participants, who live under universal health care, consistently testify of the difficulty and the wait times of getting appointments with specialists for endoscopies. And your experience with the polyp reminds us that an endoscopy may have more value than just a means of confirming...
×
×
  • Create New...