Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

trents

Moderators
 View Profile  See their activity

  • Posts

    8,180

  • Joined

  • Last visited

  • Days Won

    474

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    So I'm curious about your statement that you were glutened once but you are not sure if it was from trace/cross contamination or a macro amount. Why would you not know that if you reflect on what you had eaten that led up to the illness that accrued? I think it is very important under the circumstances to get a better handle on how sensitive you are. Please...
  2. trents
    I would encourage you to consider moving out of your mother's house and into your own living quarters as soon as possible so that you can control what you eat. I have a feeling that even if you do get a celiac diagnosis your mother will not fully cooperate. Now is the time to take action to guard your own health. If you can arrest the celiac disease at a...
  3. trents
    Did you make it clear to the food service staff at the hospital that you must have gluten free food?
  4. trents
    Strictly speaking, you should continue to eat gluten until after the endoscopy but I doubt there could be enough healing in the small bowel in to invalidate the results. But if you can stick it out, eat the gluten until then.
  5. trents
    Thanks. I'm not as up on the proliferation of digital communication shortcuts in the last couple of decades as I should be.
  6. trents
    I was on a PPI for 18 yr. and weaned myself off of them over about 5 months. Wasn't easy but I finally won that battle. GERD is very common in those with celiac disease and many get put on PPIs before they are diagnosed with celiac disease and never taken off them after celiac disease diagnosis when they may not need them anymore.
  7. trents
    I would also consider possible peptic ulcer or GERD. If the pain is on the right upper side I would think about gallbladder issues.
  8. trents
    Inkapathic, thank you for such a thorough and articulate explanation to help us understand your situation. Unless you are eating a significant amount of gluten daily (say, two slices of bread) for four to six weeks before testing the test results may be inconclusive or invalid. What you don't want to happen is to finally get testing scheduled and then...
  9. trents
    The good news is that for me I think it takes a significant exposure to gluten to make me sick like that. My sense is that trace amounts don't make me acutely ill. Last year my wife made some wheat biscuits for herself and some gluten-free biscuits for me and it turned out they looked exactly the same. I accidently ate a couple three of hers one night and...
  10. trents
    No I haven't. And the gut spasms are so painful I almost want to die. I don't feel like I could keep anything down even if there was something that would indeed help. It would have to be an injectable. I just lay on the floor in a ball of pain and get up to hang over the toilet and puke some more. It is obvious my body is pulling out all the stops to purge...
  11. trents
    Who are "ITA" people? I'm not familiar with the acronym.
  12. trents
    Do you think it's time for extensive workups like complete bloodwork (CBC + CMP) and maybe some imaging? Do you feel comfortable with being assertive with your physician?
  13. trents
    Apparently, about 10% of Celiac Disease suffers react to oat gluten like they do wheat/barley/rye gluten and I'm talking about oats that are not cross contaminated.
  14. trents
    Not true. They are two different medical conditions. IBS affects the large bowel. Celiac Disease affects the small bowel.
  15. trents
    Just as an aside, many people who don't have Celiac Disease but have chosen to eat gluten-free in support of a spouse or significant other amazingly find that they actually are healthier and feel better for having done so. bobsredmill.com is a good resource for gluten-free fours and food products. Always read labels, even for food items you would never...
  16. trents

    Wheat and durum

    trents commented on johnyji123's blog entry in Johny

    Exactly my point. There often is a wide discrepancy between food allergen testing results and actual experience.
  17. trents

    Wheat and durum

    trents commented on johnyji123's blog entry in Johny

    Back to your original question, I believe that testing positive for wheat but not Durum reflects the unreliability of food allergy testing in general. Durum is simply a variety of wheat as is bulgur and kamut and others. I certainly would not use the results of a food allergy test to assume you can safely eat some particular variety of wheat if you have Celiac...
  18. trents

    Wheat and durum

    trents commented on johnyji123's blog entry in Johny

    For Celiac Disease the key antibody is IgA/TTG I believe. I would encourage you to ask for a true Celiac panel blood test but it would only be valid if you were eating significant amounts of gluten daily for 4-6 weeks.
  19. trents

    Wheat and durum

    trents commented on johnyji123's blog entry in Johny

    I'm not sure the FST is any better than the prick test for determining food allergies. If the FST included antibody testing specific for celiac disease then it would be helpful for that. I would suggest you start keeping a food diary in order to track down correlations between what you eat and symptoms.
  20. trents

    Wheat and durum

    trents commented on johnyji123's blog entry in Johny

    Celiac testing is invalid when people have already been eating gluten-free. Is it possible that you are getting cross contamination? Is it possible you have developed other food intolerances/allergies or another autoimmune disease. All this is very common with Celiac Disease.
  21. trents
    Hi Dawn. Yes, it seems overwhelming at first and you will make some mistakes in the process of learning where gluten is found in processed foods. There is a significant learning curve. We have all been there. Some questions: 1. Are there other family members living in your house besides you and your husband? If not, the best way to ensure his safety...
  22. trents

    Wheat and durum

    trents commented on johnyji123's blog entry in Johny

    First of all, Celiac Disease is not an allergy. A FST is pretty worthless for diagnosing Celiac Disease. Celiac Disease is an autoimmune condition in which the body is triggered to attack the lining of the small bowel in response to the ingestion of gluten. Second, the FST is often very unhelpful when it comes to identifying food allergies. There are...
  23. trents

    Wheat and durum

    trents commented on johnyji123's blog entry in Johny

    Johny, we need some clarification. What kind of testing did you have done? Was this for allergies or antibodies that would be associated with Celiac Disease?
  24. trents
    It would be nice if doctors could give definitive answers but that is not always the case. But with proper testing doctors should be able to give a definitive answer about whether or not you have celiac disease.
  25. trents
    Okay. Well, we would have given you a different answer had we known it was malt flavored. Malt is made from either barley or wheat. Unflavored seltzer would be gluten free.
×
×
  • Create New...