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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Bob's Red Mill out of Portland, OR area has been and continues to be out of all types of hot breakfast cereals and prepackaged baking mix products. Anything you could sink your teeth into is gone. Sometime ago my wife bought a 2 lb. can of powered whole eggs for like $20. It's now selling on Amazon for like $97.
  2. trents
    Unfortunately, "gluten-free" doesn't cover all the bases for those with celiac disease and other gluten-related reactions but who suffer insensitivity to other ingredients which are common to processed foods. But still, I'm very grateful that the food industry has now given us so many gluten free offerings with flavor and texture qualities that approximate...
  3. trents
    I realize all that but I'm just trying to understand why you, "sent them a copy of FDA regs on allowances for gluten!" when they already know what the regs are and claim to be in compliance. Do new FDA regs require less than 20 ppm of gluten to be able to use the gluten-free label? What am I missing here? Otherwise, in order to file a meaningful FDA complaint...
  4. trents
    The link says the product is tested to make sure there are less than 20 ppm of gluten. That meets the standard. Are you sure you aren't in the 10% of Celiacs who react to oats like you would to wheat, barely or rye?
  5. trents
    Video on separating wheat, barley, rye? What? Didn't follow that. Do you have a link to that video? Did the honey nut cheerios claim to be gluten-free? Historically, breakfast cereal manufacturers have often used "malt flavoring" in many of their corn and rice-based products and was so stated in the ingredient labels. This they would not be gluten free...
  6. trents
    Yes, but if gluten-free products are all that is left on the shelf . . .
  7. trents
    You said that last year you became very sick and was tested for Celiac Disease (I would assume) that prompted you to go gluten-free in your eating. Did the testing confirm you are a celiac? Did you have only the blood test done or did you get an upper GI to confirm villous atrophy? Did your illness improve after going gluten-free? I don't mean to be nosy...
  8. trents
    That is a good plan.
  9. trents
    Eating gluten-free would not cause the shape of your stools to change. I'm not a doctor but I would think that could only be caused by a deformation in the rectum/anus such as might be caused by hemorrhoids, scar tissue or a growth of some kind in or around the area. Have you had a colonoscopy recently?
  10. trents
    I hope the general population doesn't all of a sudden decide to go gluten-free!
  11. trents
    Went to Safeway yesterday as I was getting low in gluten-free bread. The bread isle had obviously picked over and the gluten-free bread section was somewhat depleted but I was able to get a couple of loaves of Franz gluten-free bread, my favorite. I could have taken more but decided not to hoard. If worse comes to worse we have enough gluten-free flour products...
  12. trents
    All stores need to limit the amount of an item one person can buy per trip. Some are already doing that, like Walmart. This would give opportunity for the supply chain, already likely impaired by employee absenteeism, to catch up. Buying a lot per trip may be in keeping with social distancing but it would backfire when people start to suffer from malnutrition...
  13. trents
    What are you finding when shopping for gluten-free food products since the Corona virus outbreak? My wife and I went to online order some things from Bob's Red Mill this morning and found that most of the gluten-free products we normally purchase from them were out of stock. Is this due to hoarding or production issues created by work force absenteeism...
  14. trents
    It's me, where does that graph come from? Does it represent a personal profile of reactions/sensitivities or is it a generic tool you found somewhere? I note that instant coffee is a mild offender. Is that in comparison to non instant coffee? If so, that strikes me as interesting.
  15. trents
    I guess one idea I have is to consider going on an anti inflammatory diet. There are certain foods that tend to increase inflammation that should be avoided and there are probably others that tend to quell inflammation. This may be one of those things you will have to live with but learn to manage better. Your idea of avoiding strenuous physical activity...
  16. trents
    If you are sensitive to sunlight that can be a sign of Lupus, a disease which has a wide range of symptoms such that it manifests itself differently for different people. It has long fingers. But sensitivity to sunlight is a classic Lupus symptom. And it is another autoimmune-based disease. I'm not certain how a minor amount of gluten ingestion affects...
  17. trents
    Many celiacs are also dairy intolerant and soy intolerant. Very common.
  18. trents
    There is suspicion from within the Celiac/gluten intolerant/gluten sensitive community and it's researchers that 20ppm might not be an adequate limit for some. That's why it's under review. As far as your shaking, neurological dysfunction of various kinds is a well-known gluten-related problem within the celiac/gluten sensitive community. In retrospect...
  19. trents
    I have to leave for an appointment now but you raise some questions that I think I can help with. I'll get back to you.
  20. trents
    It's not an easy question to answer because individual celiacs vary in their sensitivity to trace amounts of gluten and even how they react to gluten. It is a well known fact that many or most people who eventually get diagnosed with celiac disease never experienced dramatic gastro intestinal distress. The investigation that finally led to their celiac disease...
  21. trents
    Unfortunately, the offending ingredient can be almost anything for different people. And I think it is also true that the gluten-free food industry probably uses a lot of ingredients that are not commonly found in mainline food manufacturing in order to come up with products that approximate that taste and texture of their mainline equivalents. So we can...
  22. trents
    I would check with your local government social services department to see if there are any public resources available to address your home's mold problem. That presents some potentially serious short and long term health risks. When you explained that your breathing was fine all day until you returned home that was tell tale IMO, especially if that is a...
  23. trents
    Thyriodist? Is that a typo? When I google that I get nothing. Did you mean to type "thyroiditis" which is inflammation of the thyroid gland? May we assume since you are a celiac that you are following a strict gluten free diet?
  24. trents
    It's good to hear things are more or less under control now. Sounds like quite a medical ordeal you have been through and a long winding rode. Thanks for sharing. So many more medical problems are autoimmune based than most people realize.
  25. trents
    They may have chosen to just be polite. I do computer repair and technology support and realize I can't always correct my customer's misconceptions and misnomers. I generally know what they are trying to say even if they don't say it correctly and it's often easier just to fix the issue rather than to educate. Most likely, they won't remember it anyway and...
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