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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    frankenstein, have you actually had a total IGA test done at any time? This thread has become protracted so maybe I missed that early on. In post #22 you indicate you had a total IGA done in 2018. Am I understanding this correctly?
  2. trents
    Given your symptoms, what about gastro paresis?
  3. trents
    frankenstein, I do not see where knitty kitty attributed that proverb to anyone. But do you realize that there is such a thing as subclinical nutritional deficiency? This would be where the deficiency is not serious enough to cause classic and blatant diseases such as beriberi or rickets but is still less than optimum. And serum levels do not always...
  4. trents
    Normal range of serum vitamin D is between 30 and 100 ng/mL
  5. trents
    Welcome to the forum, PeanutButterFriend! I would be surprised if you told the recruiter you have celiac disease if he/she would even know what it is. I certainly would not hide it and make sure it get's recorded. If you aren't turned down you might need to rely on that record in order to get safe chow. I would also get a copy of your medical record...
  6. trents
    I would say it is becoming a standard. Formerly, it was thought that low total IGA was found only in the pediatric population but it has become apparent that plenty of adults have low total IGA. We get many reports of this on our forum.
  7. trents
    The Mayo Clinic guidelines for a pretest "gluten challenge" is as follows: 1. For the blood antibody testing, two slices of wheat bread (or the gluten equivalent) daily for 6-8 weeks leading up to the day of the blood draw 2. For the endoscopy/biopsy, the same amount of gluten for two weeks We in the celiac community would consider this to...
  8. trents
    Okay, I'll mention one more thing. No, IMO you have not had a complete battery of tests. IIR, you have not even had a total IGA test done. If total IGA is low, it can drive down scores in individual IGA tests. Here is a summary of all antibody tests that can be done for detecting celiac disease and would comprise a complete celiac panel: knitty kitty...
  9. trents
    Well, there is nothing much more to say so I'm dropping out of this thread. Sorry that we couldn't help you but we tried.
  10. trents
    Sorry to say but the amount of gluten it takes to produce emesis varies a lot from person to person as does how much gluten it takes to elicit any kind of discernable celiac reaction. In addition to that, how can you actually know how much gluten is in anything you consume that is not gluten free without sophisticated lab equipment? Does your daughter seem...
  11. trents
    I don't disagree with you. But in a way you contradict yourself by allowing the input from the dietician to cause you angst if it is a outlier. But maybe it bothers you because you also realize that truth isn't necessarily established by majority opinion. Perhaps the dietician's own experience or her experience with clients from her different perspective...
  12. trents
    You are entitled to your opinion in this matter but the actual experience of the celiac community, not the internet, supports what I am advocating. For many of us, it took over 10 years to get a correct diagnosis and by then, there was serious damage to other body systems such as bones and neurons as well as the development of other food intolerances and...
  13. trents
    Total IGA is not a standard test ordered when doctors are checking for celiac disease. It should be but many physicians are operating under the dated assumption that IGA deficiency only happens with pediatric patients. It would be a test I would suggest anyone request if they suspect celiac disease and that one hasn't been run yet. At the bare minimum, total...
  14. trents
    Could your gastric issues be caused by the methotrexate? When I research that med I come up with gastric issues as one of the listed side effects.
  15. trents
    The Mayo Clinic guidelines for the "gluten challenge" before testing is the daily consumption of two slices of wheat bread (or the gluten equivalent) for 6-8 weeks before the blood draw for antibody testing. I would strongly discourage you from withdrawing gluten from your life now if your doctor's appointment is only two weeks away. We have so many people...
  16. trents
    Welcome to the forum, Kojacs mum! We have a number of people struggling with mental health issues on the forum who aren't taken seriously by their medical professionals when it comes to other medical problems. So, you are not alone. Your gas/bloating/burping symptoms align with a gluten disorder, either celiac disease or NCGS (Non Celiac Gluten...
  17. trents
    Yes, I understand where you must be coming from. You're looking for more clarity.
  18. trents
    All things considered, it doesn't sound like you have celiac disease. But I am puzzled by your comments on MCAS and SIBO. I am also not clear on why you posted since you seem to have come to your own conclusions and have convinced yourself that you don't have celiac disease. And, not without reason, I might add. I'm not sure what you wanted help...
  19. trents
    Believe it or not, we do have people on this forum who have reported having positive antibody testing but negative biopsy. Caught very early perhaps? We also know that a small percentage of celiacs with dermatitis herpetiformis (for which there in no other cause but celiac disease) have no villi damage. With gluten disorders, things are turning out to be...
  20. trents
    The weak positive for the Deamidated Giladin Abs, Iga prevents a conclusive rule out of celiac disease. I would suggest you have some genetic testing done. If you don't have any of the genes that have been connected to celiac disease then you can comfortably rule it out. It is also possible that you have NCGS (Non Celiac Gluten Sensitivity) for...
  21. trents
    From the article linked: If the initial Immunoglobulin A (IgA) test is lower than normal, then these two tests should be done: 1. Tissue transglutaminase antibodies, IgA and IgG profle. 2. Gliadin (deamidated) antibodies evaluation, IgG and IgA. From your post: "Based on the low IGA, her PCP ordered a TTG-IGG which came back extremely elevated...
  22. trents
    Wingo, you may be straining at the gnat and swallowing the camel. Have you had any follow-up antibody testing done to check compliance with gluten-free eating? Maybe you are cross-reacting to some other protein in your diet.
  23. trents
    Don't take that PPI or any other PPI long term if at all possible. Changing the pH like that in the gut creates its own nutrient absorption problems.
  24. trents
    Well, if you have the DQ-2 gene, you have the potential for celiac disease. I'm not sure how your physician can justify ruling celiac disease out on that basis. The DQ-2 and the DQ-8 genes are the ones that have definitely been associated with celiac disease. If you only have one of them your chances of having celiac disease are less but not zero.
  25. trents
    Sounds like you and your doctor are on the right track. At the end of the day, the antidote for both celiac disease and NCGS is the same: a strictly gluten free diet. If it turns out that the genetic testing shows you have MTHFR you might look into purchasing some gluten free methylated vitamins. You might also look into histamine intolerance/MCAS (Mast...
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