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Fiddle-Faddle

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Latest Celiac Disease News & Research:

Everything posted by Fiddle-Faddle

  1. Fiddle-Faddle
    When I had infants, I did not yet know anything about celiac, but I NEVER gave my babies anything with wheat (like cheerios or Goldfish crackers), simply because it didn't make sense, nutritionally. First finger foods for our babies were soft avocado cubes, tofu cubes, tiny cubes of canned peach, and flakes of plain, broiled salmon. We always waited...
  2. Fiddle-Faddle
    Annnaliese Roberts' Gluten-Free Baking Classics calls for millet flour for the bread recipes, and says it's gluten-free. That doesn't solve the controversy any, though, does it? I wouldn't be a good one to ask, as my reactions are relatively mild. Has anybody sensitive here reacted to millet? Perhaps it would be a good idea to post a separate thread...
  3. Fiddle-Faddle
    I read that the mini's are produced on a line that that uses flour to help separate small things, or else that line uses smaller ingredients (like nuts, perhaps?) that have been separated somewhere else with flour. Unfortunately, I can't remember where I read that.
  4. Fiddle-Faddle
    Glad to hear of the improvement. If anything starts up again, get your video camera out--EVIDENCE!
  5. Fiddle-Faddle
    Perhaps we should start a new thread urging members to barrage Rice Dream with phone calls and letters saying we have reacted to it and ask (innocently) is it possible that there is gluten in it? And if so, then they NEED to have a warning, no matter what the FDA says, or they will end up being liable for lawsuits because of all the reactions. Either...
  6. Fiddle-Faddle
    I disagree. My vocal chords were permanently damaged by the scope. The sedation, while not as big a deal as, say, being completely knocked out, is still a big enough deal that a tiny percentage of children have died from it. Death IS a risk--and you will be asked to sign papers saying that you are aware of this immediately before the procedure, but...
  7. Fiddle-Faddle
    I believe wheat allergy, like other allergies, involves a histamine reaction. Celiac disease and gluten intolerance, by contrast, are autoimmune responses: your immune system reacts to the gluten by attacking YOU (thyroid, pancreas, gut, brain, skin, etc.). THere is much argument over the dividing line between celiac disease and gluten intolerance...
  8. Fiddle-Faddle
    I have run into 2 dishonest dentists in the last few years, and my husband has had one, too. One told us that our not-quite-2-year-old needed several thousands of dollars of restorative work done as he supposedly had severe decay (it turned out to be not decay but staining from my having had iron supplements and antibiotics while pregnant with him),...
  9. Fiddle-Faddle
    Great job, Ken! Hawaiian celiacs are so lucky to have you in their state! I would add: NEVER remove croutons from a salad and call it "gluten-free"--it ISN'T, because tiny crumbs from those croutons will remain and cause a serious reaction in a person with celiac. You will have to make a fresh salad with no croutons. I totally understand what you...
  10. Fiddle-Faddle
    Just noticed your post--thanks for the suggestion about the backpack. That does look fantastic! I will probably order one when I get back (no time before I leave) for the next trip! I don't think mailing stuff will work--we are only staying in each hotel for one night, and there are too many possibilities for things to get screwed u. Plus it would...
  11. Fiddle-Faddle
    I'm guessing that in Italy, since they routinely screen toddlers for celiac, it's caught before there is much damage done (UNLIKE the US! ). So perhaps in Italy, it is more of a possibility to have an occasional low-gluten host without the kind of reactions and subsequent damage that we see here in the US??? Not trying to give them an excuse or anything...
  12. Fiddle-Faddle
    Many of us here found that we could not tolerate gluten-free breads, cakes, cookies, etc., until AFTER our guts had healed. THat meant not having ANY gluten-free breads, etc. for at least a few months! Sounds cruel, but my own experience was that, even though my celiac symptoms were relatively mild, when I ate a piece of gluten-free bread, I felt like...
  13. Fiddle-Faddle
    Actually, University of Chicago's 2006 study states that celiac has been diagnosed in roughly 1/133 people--and that it takes an average of eleven years to GET diagnosed in this country. You can see that this is just the tip of the iceberg. It is quite likely that gluten sensitivity is, in many cases, just early-stage celiac. But there are many other...
  14. Fiddle-Faddle
    drawing: www.pigur.co.il/imgceliac/celiac.webp this one works, sorry about the other one! (Cut and paste in your browser.) related discussion with link to same drawing (link actually works in this one): www.glutenfreeforum.com/index.phpshowtopic=18505
  15. Fiddle-Faddle
    This isn't a photo, but a drawing: www.pigur.co.il/imgceliac.webp (hope it works) Apparently, the distended belly combined with the saggy tush is the key (the tush sags because there is no fat on it).
  16. Fiddle-Faddle
    I think a picture might be very helpful. Some people understand things more easily if there's something visual for them to understand. And yes, doctors tell us all the time that our kids are normal, it's all in our heads, etc., when there might be a very clear visual clue that something is wrong wrong WRONG--but they just don't see it. I had a pediatrician...
  17. Fiddle-Faddle
    I felt like this (migraines and all) whenever my babies were going through growth spurts--they would be nursing a ton, I would eat and eat and drink and drink, and still feel like I was starving. Something about the increase in feedings changed hormone balances for me, too, and triggered migraines. And I wasn't even doing an elimination diets. Sorry...
  18. Fiddle-Faddle
    {{{HUGS}}}
  19. Fiddle-Faddle
    You might want to check out this thread: Open Original Shared Link as well as the "OMG--I think I'm on to something" thread (just check out the last 100 pages or so, skip the first thousand!) and especially the Lyme thread on this board. It sounds like you have more than one thing going on in your body. The people on these threads are the experts...
  20. Fiddle-Faddle
    {{{HUGS}}}
  21. Fiddle-Faddle
    Ummm--what kind of food were you thinking I could mail from the US to Europe??? Like most celiacs, I tend to eat fresh fruits, veggies, eggs, fish, chicken, meat, rice, potatoes, etc.
  22. Fiddle-Faddle
    Thanks so much for posting this!!
  23. Fiddle-Faddle
    One other possible factor may be how often and how much at one time you are eating. Sounds like you may be eating the traditional "3 squares." If you do have a blood sugar issue, then eating several tiny meals will be much better for you than the 3 squares. Even without a blood sugar issue, that would be easier on your poor tummy.
  24. Fiddle-Faddle
    We just do mixed nuts and throw in chocolate chips, or peanut butter chips, Reese's Pieces, etc.
  25. Fiddle-Faddle
    My middle child (the one who had the rash) also had HORRIBLE cradle cap. I found that the best thing to do for it was--NOTHING. It didn't seem to bother him any. It didn't go away for at least a year, but I'm pretty sure it didn't do him any harm. I was afraid that all those chemicals that they suggest for cradle cap WOULD end up doing harm, so I didn...
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