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What Are The Effects Of A Soy Allergy?

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Posted 29 October 2006 - 05:49 AM

Hi, can someone here with a soy intolerancy please tell me if the effects are the same as being glutened...i'm trying to figure out if soy is causing all of this extra gas :unsure: .
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Posted 29 October 2006 - 06:18 AM

I don't have a specific soy intolerance that I know of, hopefully someone will be along shortly who does. But, I'm replying because I just started a modified elimination diet today on the advice from my doctor...one of the foods I will need to avoid is soy and the reason is because my doctor said that people with gluten intolerance sometimes also react to things like soy, so my guess is that the reaction could be similar. I know there are lots of people here who are definitely intolerant to it...I'm just trying to find out, so I know you'll get some replies soon.
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Posted 29 October 2006 - 09:10 AM

I'm going to copy some articles over that I had saved. Don't know if they will help or not. We went off soy before testing, so I can't help with effects. It is a bean though......

Soy Allergy
From Judy Tidwell,
Your Guide to Allergies.
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Soy Has at Least 15 Allergenic Proteins
Soy, also referred to as soya, soy bean, or glycine max, is among the main foods that produce reactions worldwide -- mostly, but not exclusively, in infants.
It is not completely certain which specific component of soy is responsible for reactions, but at least 15 allergenic proteins have been identified.
The way soy foods are processed can affect allergenicity. All soy products may not cause reactions. Some fermented soy foods may be less allergenic than raw soy beans. Soybean oil, which does not contain protein, may not produce symptoms. It just depends on the individual.
Symptoms of Soy Allergy
The reported symptoms of soy bean allergy include: acne, angioedema, rhinitis, anaphylaxis, asthma, atopic dermatitis, bronchospasm, cankers, colitis, conjunctivitis, diarrhea, diffuse small bowel disease, dyspnea, eczema, enterocolitis, fever, hypotension, itching, laryngeal edema, lethargy, pollinosis, urticaria, vomiting, and wheezing.
Cross Reactivity
Those allergic to soy beans may also cross react to certain foods, such as peanuts, green peas, chick peas, lima beans, string beans, wheat flour, rye flour, and barley flour.
Where Is Soy Found?
A great many foods already in your kitchen cupboard contain products that contain some type of soy food.

Listed below are the terms associated with soy foods:
Hydrolyzed vegetable protein (HVP) is a protein obtained from any vegetable, including soy beans that is a flavor enhancer that can be used in soups, broths, sauces, gravies, flavoring and spice blends, canned and frozen vegetables, meats and poultry.
Lecithin is extracted from soybean oil and is used in foods that are high in fats and oils to promote stabilization, antioxidation, crystallization, and spattering control. It is used as an emulsifier in chocolate. Most infant formulas contain soy lechithin.
Miso, used to flavor soups, sauces, dressings, marinades and pâtés, is a rich, salty condiment made from soy beans and a grain such as rice.
Mono-diglyceride, another soy derivative, is used for emulsion in many foods.
Monosodium glutamate (MSG) may contain hydroylzed protein which is often made from soy.
Natto, more easily digested than whole soy beans, is made of fermented and cooked whole soy beans.
Natural flavors, listed on ingredient labels may be a soy derivative.
Soy cheese, a substitute for sour cream or cream cheese, is made from soy milk.
Soy fiber whether okara, soy bran, and soy isolate fiber are used as food ingredients.
Soy flour, whether natural, defatted, and lecithinated, is made from finely ground roasted soy beans. They are often used to give a protein boost to recipes.
Soy grits, made from toasted coarsely cracked soy beans, is used as a flour substitute.
Soy meal and soy oil are used in a number of industrial products, including inks, soaps, and cosmetics.
Soy milk is used alone or can be made into soy yogurt, soy cheese, or tofu.
Soy oil, the natural oil extracted from whole soy beans, is the most widely used oil in the United States. Soy oil is used to make most margarines, Crisco and other vegetable shortenings, prepared pasta sauces, worchestershire sauce, salad dressings, mayonnaise, canned tuna, dry lemonade mix, and hot chocolate mix. Most commercial baked goods like breads, rolls, cakes, cookies, and crackers contain soy oil. Some prepackaged cereals are also made with soy oil.
Soy protein can be labeled as soy protein concentrate, isolated soy protein, textured soy protein (TSP), and textured soy flour (TSF). Textured soy flour is widely used as a meat extender. Most soup bouillons contain some form of soy protein. Many meat alternatives contain soy protein or tofu.
Soy sauces, the most common being Tamari (a by-product of making miso), Shoyu (a blend of soy beans and wheat), and Teriyaki (with added sugar, vinegar and spices), are dark brown liquids made from soy beans that have undergone a fermenting process.
Soy yogurt, made from soy milk, is an easy substitute for sour cream or cream cheese. Non dairy frozen desserts are made from soy milk or soy yogurt.
Tempeh, a traditional Indonesian food, is a chunky, tender soybean cake.
Tofu, also known as soybean curd, is a soft cheese-like food made by curdling fresh hot soy milk with a coagulant. It is a bland product that easily absorbs the flavors of other ingredients with which it is cooked. When mixed with other ingredients it can simulate various kinds of meat.
Vegetable oil, a generic term, is usually 100 percent soy oil or a blend of soy oil and other oils.
Vegetable protein is often the term used for soy protein.
Vitamin E contains soy bean oil.
If you are allergic to soy, it is best to read all ingredient labels, and if in doubt, contact the manufacturer of the product before purchasing it.

Soy Protein Intolerance
Last Updated: March 23, 2005
Author: Stefano Guandalini, MD, Director, University of Chicago Celiac Disease Program, Section Chief of Gastroenterology, Hepatology and Nutrition; Professor, Department of Pediatrics, University of Chicago Comer Children's Hospital
Coauthor(s): Agostino Nocerino, MD, PhD, Chief of Pediatric Oncology, Department of Pediatrics, University of Udine, Italy
Stefano Guandalini, MD, is a member of the following medical societies: American Gastroenterological Association, European Society for Pediatric Gastroenterology, Hepatology and Nutrition, Italian Society for Pediatric Gastroenterology and Hepatology, Italian Society of Pediatrics, and United European Gastroenterology Federation
Editor(s): Jorge Vargas, MD, Professor, Department of Pediatrics, Division of Pediatric Gastroenterology, University of California at Los Angeles School of Medicine; Robert Konop, PharmD, Director, Clinical Account Management, Ancillary Care Management; David Piccoli, MD, Chief, Division of Gastroenterology and Nutrition, The Children's Hospital of Philadelphia; Professor, Department of Pediatrics, University of Pennsylvania School of Medicine; Steven M Schwarz, MD, FAAP, FACN, Chair, Department of Pediatrics, Long Island College Hospital; Professor of Pediatrics, State University of New York, Downstate Medical Center College of Medicine; and Steven M Altschuler, MD, President and CEO, Children's Hospital Foundation, Children's Hospital of Philadelphia

Background: Soy-based formulas were introduced in infant nutrition 80 years ago, when their use was recommended for the treatment of summer diarrhea. Seventy years ago, the use of soy-based formulas was extended to the treatment of cow milk intolerance. In the 1970s, use of soy-based formulas became common, and in the 1970s and 1980s, US consumption was around 25% of that of cow milk–based formulas.
In the last few years, interest in soybeans and soybean components has markedly increased, mainly because of the potential influence of soy on the development of heart disease, cancer, kidney disease, osteoporosis, and menopause symptoms. Unfortunately, soy protein formulas (SPFs) can cause allergies and other intolerance reactions. For many years after the first description by Duke in 1934, soy was considered, on the basis of animal studies, a weak sensitizing protein. In the 1960s, several other authors confirmed the potential allergenicity of SPFs.
A higher prevalence of soy intolerance has generally been reported in non–immunoglobulin E (IgE)-associated enterocolitis and enteropathy syndromes. Authorities have failed to reach consensus on the risk of feeding allergic or nonallergic infants with soy protein milks. This divisive clash of opinion is also reflected in the mutually antagonistic stances adopted by 2 important scientific societies, the European Society for Pediatric Gastroenterology, Hepatology, and Nutrition (ESPGHAN) and the European Society of Pediatric Allergy and Clinical Immunology (ESPACI). However, the general agreement is that a significant number of children with cow milk protein intolerance develop soy protein intolerance when soy milk is used in dietary management.
Pathophysiology: Two heat-stable globulins (beta-conglycinin, molecular weight (MW) 180,000 and glycinin, MW 320,000) constitute 90% of the pulp-derived proteins. Immunoblotting and competitive enzyme-linked immunosorbent assays have identified a 30 kD glycinin from soybeans that cross-reacts with cow milk caseins and that is constituted by 2 polypeptides (A5 and B3) linked by a disulphide bond. The protein's capacity to bind to the different antibodies relies on the B3 polypeptide. However, other soy proteins can act as allergens in humans. At least 9 proteins with MW ranging from 14,875-54,500 were found to react with human IgE in patients with asthma. Moreover, after enteric digestion, a number of potential antigens are generated at the mucosal surface.
According to some studies in animal models, soy proteins appear to be less sensitizing than cow milk proteins; however, infants with a previous history of cow milk protein intolerance have a greater risk of developing soy protein intolerance. The intestinal mucosa damaged by cow milk proteins may allow increased uptake of the potentially allergenic soy proteins.
In the US: In a national survey of pediatric allergists, the prevalence rate of soy protein allergy was reported to be 1.1%, compared to the 3.4% prevalence rate of cow milk protein allergy.
Internationally: In a prospective study of healthy infants fed soy-based formula, allergic responses to soy were documented in 0.5% of infants.
In a group of 243 children who were born of atopic parents and who received SPF for the first 6 months of life to prevent cow milk allergy, 14 (6%) of the children had positive skin test prick reactions to soy. Only 1 of these 14 children reacted to the double-blind placebo-controlled oral food challenge to soy.
The prevalence of food allergy in patients with atopic dermatitis varies with age and the severity of atopic dermatitis. Different prevalence rates have been reported; however, in most series, 30-40% of the patients received a diagnosis of food allergy. In a study from Italy, a positive radioallergosorbent assay test (RAST) result to soy was found in 25% of children with atopic dermatitis, but a positive challenge test result to soy was elicited in only 3% of the patients. Two other studies documented soy positivity in 5% of 204 patients and 4% of 143 children.
In a group of 93 children with documented IgE-associated cow milk allergy who received soy formula, 14% developed soy allergy.
In 1990, one of the authors reviewed the evidence obtained from 2108 Italian children with proven cow milk protein intolerance and non–IgE-associated enterocolitis and enteropathy syndrome. Forty-seven percent of the patients had to discontinue soy formulas because of intolerance. A higher prevalence was noted in infants younger than 3 months (53%). Thirty-five percent of children older than 1 year developed soy intolerance.
A soy-based formula is often substituted for cow milk in infants recovering from acute gastroenteritis; however, in a previous study that recruited 18 infants with acute gastroenteritis, 3 (16%) of the children developed a clinical reaction to soy challenge and 7 (38%) of the children developed histologic and enzymologic changes after soy challenge.
Mortality/Morbidity: Anaphylactic reactions to soy proteins are extremely rare; however, a population study in Sweden from 1993-1996 reported 4 deaths caused by soy.
Age: The risk of developing soy protein intolerance decreases with age. Among children with cow milk protein intolerance, infants younger than 3 months are at higher risk of developing soy protein intolerance (53%) compared to children older than 1 year (35%).

History: The typical presentation is that of an infant who develops atopic dermatitis or cow milk protein intolerance, which resolves with substitution of a soy formula but recurs 1 or 2 weeks later. Parents may report a recrudescence of dermatitis or GI symptoms. Usually, the infant presents with watery diarrhea and vomiting.
Soy protein intolerance may cause different clinical syndromes, both IgE- and non–IgE-mediated. These reactions include the following:
Urticaria or angioedema
Anaphylaxis (rare)
Atopic dermatitis
Enterocolitis syndrome
Intestinal atrophy (malabsorption syndrome)
Eosinophilic gastroenteritis
Allergic proctocolitis
In susceptible individuals, the ingestion of soy proteins may cause the following:
Protracted diarrhea
Carbohydrate intolerance
Failure to thrive
Some children present with atopic dermatitis as a major symptom; however, most patients present with profuse vomiting and watery diarrhea.
The symptoms usually begin within 2 weeks of the infant's first feeding with soy-derived milk.
Sometimes mucus can be present in the stools, but blood is rarely noted.
Even if frank manifestations of colitis are absent, inflammatory changes in the colonic mucosa are frequently encountered.
The infant is usually dehydrated, and sometimes signs of malabsorption appear.
Small-bowel atrophy has been documented in different studies.
The degree of villous atrophy may be similar to that of celiac disease.
The mucosal damage causes malabsorption, hypoalbuminemia, and failure to thrive.
Some infants can present because of red blood mixed in stools. These infants usually appear healthy, and hematochezia is the only symptom.
Physical: The physical examination findings depend on the clinical picture and the duration of symptoms.
The most frequent presentation is enterocolitis syndrome; therefore, the infant appears dehydrated, with weight loss and sunken eyes.
In case of proctocolitis, the infant usually appears healthy and has normal weight gain.
In the less frequent case of soy-induced enteropathy, the infant has a low weight-to-length ratio and usually presents with dystrophia.
The signs and symptoms are related to the degree of the malnutrition. For example, edema is related to hypoalbuminemia; dermatitis enteropathica, to low zinc level; and rickets, to vitamin D deficiency.
Causes: All soybean proteins and foods currently available for human consumption contain significant amounts of the isoflavones daidzein and genistein, either as the unconjugate form or as different types of glycoside conjugates.
The isoflavones have structural homology to steroidal estrogens; therefore, they are considered to be phytoestrogens, but little is known about their biological activity.
Unquestionably, isoflavone ingestion can elicit biological effects; however, isoflavones and their metabolites have biological properties that are quite separate from classic estrogen action.
Genistein is a potent inhibitor of tyrosine kinases and can interfere with signal transduction pathways.
The threshold intake of dietary estrogens necessary to achieve a biological effect in healthy adults appears to be 30-50 mg/d.
In soy flours and concentrates, isoflavone concentrations are relatively high (0.5-3 mg/g). In soy milk and soy infant formulas, the concentration of isoflavones is lower (0.3-0.5 mg/g), but it is 10,000-fold higher than the concentration found in breast milk. Moreover, the volume intake of these products is sufficient to account for a significantly high dietary intake of isoflavones.
Infants fed soy-based formulas have plasma concentrations of isoflavones that are 3000- to 22,000-fold higher than plasma concentrations of estradiol.
Even if these substances have a weak estrogenic activity compared with estradiol, they could have adverse effects; however, the concerns about the adverse role of phytoestrogens in the first months of life are exclusively theoretical. At this time, the very limited available evidence from adult and infant populations indicates that dietary isoflavones in soy infant formulas do not adversely affect human growth, development, or reproduction.
The results of a study that enrolled 48 children (mean age, 37 mo; range, 7-96 mo) suggest that long-term feeding with SPFs in early life does not produce estrogenlike hormonal effects.

Gastroesophageal Reflux
Ulcerative Colitis

Other Problems to be Considered:
Gastrointestinal bleeding
Celiac disease
Malabsorption syndrome
Infectious colitis


Cow milk protein intolerance
Autoimmune enteropathy
Intractable diarrhea of infancy
Intestinal infections


Intestinal infections
Cow milk protein intolerance
Inflammatory Bowel Disease


Anal Fistulas and Fissures
Meckel Diverticulum
Intestinal duplication
Intestinal hemangiomas
Intestinal infections
Cow milk protein intolerance
Inflammatory Bowel Disease

Other Tests:
Soy-induced GI symptoms are usually not IgE-mediated; therefore, both skin tests and determination of specific IgE in serum have a low diagnostic value.
RAST appears to be of poor predictive value. Many children with positive results do not react to challenge tests.
Prick tests have little predictive value. The acidic subunits of glycinin and beta-conglycinin appear to be present in reduced amounts or absent in some commercial soybean skin test extracts tested by sodium dodecyl sulfate-polyacrylamide gel electrophoresis (SDS-PAGE) and immunoblotting. As a consequence, these commercial extracts are less sensitive than extracts of soy flour.
The challenge test with soy proteins, after an elimination diet, is the only reliable method of evaluating soy protein intolerance.
Endoscopy: During the workup for differential diagnoses, upper or lower GI endoscopies are often performed in patients with soy protein intolerance. Findings, however, are nonspecific, most commonly minimal, and, at times, even completely unremarkable. Accordingly, and because of the transient nature of the disorder, endoscopies are not considered essential.
Macroscopically, only minimal erythematous changes may be observed.
Microscopically, any area (eg, lower esophagus, gastric body, antrum, duodenum) may or may not show signs of acute inflammation.
In a minority of patients, an infiltrate of eosinophils is observed.
When the clinical presentation is that of a malabsorption syndrome, the duodenal mucosa may have changes (eg, partial villous atrophy, crypt hyperplasia) indistinguishable from those of celiac disease.
Macroscopically, changes may vary from minimal erythematous segments, most commonly diffusely involving the distal colon, to severe inflammation with bleeding ulcers and loss of vascular markings.
Microscopically, nonspecific acute inflammatory changes are observed, typically indistinguishable from infectious colitis. Rarely, eosinophils predominate in the lamina propria.

Medical Care: Children affected by soy protein intolerance respond quickly to elimination of soy formula and introduction of a hydrolyzed protein formula.

Drug therapy is not currently a component of the standard of care for soy protein intolerance.

Soy protein intolerance is similar to other food protein intolerances. Its risk peaks during infancy, and it usually regresses completely during the first 2-3 years of life. Most children, therefore, can resume consumption of soy proteins by age 5 years.
Patient Education:
Use of SPF during the first 3 months of life does not reduce the frequency of cow milk intolerance after the introduction of cow milk formula.
Routine use of SPF has no proven value in the prevention of atopic disease.
Routine use of SPF has no proven value in the prevention or management of infantile colic.

Aggett PJ, Haschke F, Heine W: Comment on antigen-reduced infant formulae. ESPGAN Committee on Nutrition. Acta Paediatr 1993 Mar; 82(3): 314-9[Medline].
American Academy of Pediatrics: Committee on Nutrition. Soy protein- based formulas: recommendations for use in infant feeding. Pediatrics 1998 Jan; 101(1 Pt 1): 148-53[Medline].
Bruno G, Giampietro PG, Del Guercio MJ: Soy allergy is not common in atopic children: a multicenter study. Pediatr Allergy Immunol 1997 Nov; 8(4): 190-3[Medline].
Businco L, Dreborg S, Einarsson R: Hydrolyzed cow's milk formulae. Allergenicity and use in treatment and prevention. An ESPACI position paper. European Society of Pediatric Allergy and Clinical Immunology. Pediatr Allergy Immunol 1993 Aug; 4(3): 101-11[Medline].
Businco L, Bruno G, Giampietro PG: Soy protein for the prevention and treatment of children with cow-milk allergy. Am J Clin Nutr 1998 Dec; 68(6 Suppl): 1447S-1452S[Medline].
Eastham EJ, Lichauco T, Pang K: Antigenicity of infant formulas and the induction of systemic immunological tolerance by oral feeding: cow's milk versus soymilk. J Pediatr Gastroenterol Nutr 1982; 1(1): 23-8[Medline].
Foucard T, Malmheden Yman I: A study on severe food reactions in Sweden--is soy protein an underestimated cause of food anaphylaxis? Allergy 1999 Mar; 54(3): 261-5[Medline].
Giampietro PG, Ragno V, Daniele S: Soy hypersensitivity in children with food allergy. Ann Allergy 1992 Aug; 69(2): 143-6[Medline].
Halpin TC, Byrne WJ, Ament ME: Colitis, persistent diarrhea, and soy protein intolerance. J Pediatr 1977 Sep; 91(3): 404-7[Medline].
Herian AM, Bush RK, Taylor SL: Protein and allergen content of commercial skin test extracts for soybeans. Clin Exp Allergy 1992 Apr; 22(4): 461-8[Medline].
Iyngkaran N, Yadav M, Looi LM: Effect of soy protein on the small bowel mucosa of young infants recovering from acute gastroenteritis. J Pediatr Gastroenterol Nutr 1988 Jan-Feb; 7(1): 68-75[Medline].
Poley JR, Klein AW: Scanning electron microscopy of soy protein-induced damage of small bowel mucosa in infants. J Pediatr Gastroenterol Nutr 1983 May; 2(2): 271-87[Medline].
Setchell KD, Zimmer-Nechemias L, Cai J: Exposure of infants to phyto-oestrogens from soy-based infant formula. Lancet 1997 Jul 5; 350(9070): 23-7[Medline].
Setchell KD: Phytoestrogens: the biochemistry, physiology, and implications for human health of soy isoflavones. Am J Clin Nutr 1998 Dec; 68(6 Suppl): 1333S-1346S[Medline].
Zeiger RS, Sampson HA, Bock SA: Soy allergy in infants and children with IgE-associated cow's milk allergy. J Pediatr 1999 May; 134(5): 614-22[Medline].
Zoppi G, Guandalini S: The story of soy formula feeding in infants: a road paved with good intentions. J Pediatr Gastroenterol Nutr 1999 May; 28(5): 541-3[Medline].

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Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)

The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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Posted 29 October 2006 - 09:27 AM

I am soy intolerant and my reaction to soy is the opposite of gluten. Gluten gives me diarrhea, soy constipates me--both cramping--tomatoes give me diarrhea, squash constipates. Of course, many of us react differently to our intolerances--what is normal for me may not be for you. Corn also constipates me.
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Posted 29 October 2006 - 09:51 AM

While I don't consider myself soy intolerant, I do have a much-lower-than-average tolerance limit to soy (a handful of servings a week). My symptoms involve loose stools (not to the point of D, but still not pleasant), and intestinal pain/cramping and more urgency for a bowel movement than normal. This is very similar to my dairy-ed symptoms (I'm casein intolerant), and slightly different from my glutening symptoms.
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Posted 25 November 2006 - 04:19 PM

I'm now convinced that soy's a problem for me now as well...just finished a soy-challenge, and I found that I am reacting almost the same as I did when I was consuming diary; the watery eyes, sneezing my head off, fogginess and extreme exhaustion (spent most of today in bed, actually!). I just feel WRONG!
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Dairy/Casein Intolerant
Soy, Cabbage, Sugar, Peanut, Shellfish, Caffeine, Egg, Potato and Tomato allergies / intolerances

Sporadic reactions to: Poultry

Avoiding all preservatives and additives

Also Multiple Chemical/Environmental Sensitivities

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Posted 25 November 2006 - 05:37 PM

I first noticed soy reactions which were similar to but milder than my gluten reactions (intestinal cramps, bloating and gas) when I tried to substitute soy products for dairy products. So I eliminated soy for over 2 years, before reintroducing it in order to 'soy load' for testing. I finally did the Enterolab soy, yeast and egg test this year and tested positive (IgA antibodies) for soy. Of my 5 problem categories, gluten reactions cause the most excruciating pain and last the longest (10 days to 2 weeks). Dairy produces a different kind of cramping pain and lasts 7-10 days. Soy reactions seem to include cramps similar to both gluten and dairy and last 5-7 days. However, I suspect everyone will have different kinds and severity of reactions to soy.
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Gluten, dairy, soy, egg, cane sugar, vanilla and nutmeg free. Enterolab diagnosed gluten/casein intolerant 7/04; soy intolerant 8/07. ELISA test diagnosed egg/cane sugar IgG allergies 8/06; vanilla/nutmeg 8/06. 2006-10 diagnosed by DNA Microbial stool tests and successfully treated: Klebsiella, Enterobacter Cloaecae, Cryptosporidia, Candida, C-diff, Achromobacter, H. Pylori and Dientamoeba Fragilis. 6/10 Heidelberg capsule test diagnosed hypochloridia. Vitamin D deficiency, hypothyroiditis, hypochloridia and low white blood cells caused vulnerability to infections. I now take Betaine HCl, probiotics, Vitamin D and T3 thyroid supplement to maintain immunity.



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Posted 26 November 2006 - 12:32 PM

we stop givin to our son soy milk in the mornings and he is doing much better since then. They were only 2 days but we thing we ll keep it like that.
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Abigail, mom of Brian (36 months and Celiac since oct 2006), and Alan (9 month and Didnt try any gluten yet...)



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Posted 26 November 2006 - 04:36 PM

I think my daughter reacts the same to soy as to gluten. She complains that her tummy hurts and she gets hyper and anxious.
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gluten free 4/06
casein free 7/06
DQ1, DQ8

Daughter (11) gluten free 5/06, casein free 6/06

Daughter (9) gluten free 3/06, casein free 7/06, soy free, trying peanut free
gluten lite on and off since 1999

All dx'ed by Enterolab




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Posted 27 November 2006 - 03:50 PM

My soy issues were discovered when I tried to substitute soy milk for dairy. It is much like gluten....excessive gas, cramping, pain, constipation and sometimes D. I can't eat anything with soybean oil or lecithen either. I just generally feel better avoiding soy all together. Sometimes I will happen upon soy without knowing (eating out) and will not feel great, but I recover quicker than gluten.
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"Life isn't about how to survive the storm
but how to dance in the rain."

Positive bloodwork 1/9/06
gluten-free since 1/12/06
Very positive dietary response

DS (12 years old)
Biopsy 7/7/06 ~ Diagnosed Celiac 7/12/2006
gluten-free since 7/15/2006

DD (almost 6)
HLA-DQ2 positive
Celiac Bloodwork negative 2 different times
Still eating gluten for now.



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Posted 01 May 2007 - 06:19 PM

I am having the same problem with soy, sulphites, etc, getting hives and my rash gets very red and itchy and I am on low dose Prednisone, never had a food allergy in my life, until now.

Hi, can someone here with a soy intolerancy please tell me if the effects are the same as being glutened...i'm trying to figure out if soy is causing all of this extra gas :unsure: .

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Posted 02 May 2007 - 02:04 AM

My soy issues were discovered when I tried to substitute soy milk for dairy. It is much like gluten....excessive gas, cramping, pain, constipation and sometimes D. I can't eat anything with soybean oil or lecithen either. I just generally feel better avoiding soy all together. Sometimes I will happen upon soy without knowing (eating out) and will not feel great, but I recover quicker than gluten.

My husband reports this same reaction to soy....
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Husband has Celiac Disease and
Husband misdiagnosed for 27 yrs -
The misdiagnosis was: IBS or colitis
Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,
most prestigious medical groups in northern NJ which constantly advertises themselves as
being the "best." This GI told him it was "all in his head."
Serious Depressive state ensued
Finally Diagnosed with celiac disease in 2003
Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.
Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle
Developed neuropathy in 2005
Now has lymphadema 2006
It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003



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Posted 02 May 2007 - 12:30 PM

My daughter doesn't always seem to react to soybean oil or soy lecithin. But soy flour leaves her doubled over in pain and soon running for the toilet. If the soybean oil is not used for frying but merely added to the food, she'll get nosebleeds.
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Posted 03 May 2007 - 06:15 AM

Hi, can someone here with a soy intolerancy please tell me if the effects are the same as being glutened...i'm trying to figure out if soy is causing all of this extra gas :unsure: .

I definitely have a problem with soy but very different from being glutened. Gluten makes me violently ill for about 5 days. Soy just makes me uncomfortable for a couple of days. When I have soy my insides feel puffy and swollen and I have a knot (er, feels like a softball) around my navel. My sinuses close up and sometimes I get mouth ulcers. I get mild cramping and diarrhea. All of this goes away within 3 days. Since cutting out soy, my allergies have gotten much better. I used to be contstantly stuffed up and had itchy eyes and now I only get that way when I've had soy. Soy was the last piece of the puzzle for me and it was nice to finally get to the bottom of all of my symptoms.

The downside...I am hypersensative to soy and dairy so I don't eat or drink anything with even trace amounts. This makes it a little hard since most salad dressings and mayonnaises contain soy. Soy is a really hard one to elimiate but certainly doable. Best of luck!
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MP - celiac for 10 years




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Posted 03 May 2007 - 06:56 AM

I definitely have a problem with soy but very different from being glutened. Gluten makes me violently ill for about 5 days. Soy just makes me uncomfortable for a couple of days. When I have soy my insides feel puffy and swollen and I have a knot (er, feels like a softball) around my navel. My sinuses close up and sometimes I get mouth ulcers. I get mild cramping and diarrhea. All of this goes away within 3 days. Since cutting out soy, my allergies have gotten much better. I used to be contstantly stuffed up and had itchy eyes and now I only get that way when I've had soy. Soy was the last piece of the puzzle for me and it was nice to finally get to the bottom of all of my symptoms.

The downside...I am hypersensative to soy and dairy so I don't eat or drink anything with even trace amounts. This makes it a little hard since most salad dressings and mayonnaises contain soy. Soy is a really hard one to elimiate but certainly doable. Best of luck!

hi, my reaction to soy is very different then the people here, i get full out hives, and swelling in my throat as well as around my joint areas, particularily in my wrists, i get very itchy and unconfortable. i have found the soy is harder to avoid then gluten. and what is really funny is that even if all my tests for celiac come out negative i would stay on the diet as well becuase most of the wheat products in the market add soy to them as well. watch out for sandwhich meats and sauces (spegetti sauce is bad) helmans olive oil mayo is soy and gluten free. good luck!!
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mom of 4 great kids - 2 diagnosed with autism and 2 typical kids (thank goodness)
all this started after my hysterectomy in March of 2006
G.F. since Feb 2007
Soy free since April 2007
Blood work was negatvie (after 2 weeks of being on the gluten-free diet)

entrolab results:
Antigliadin 9 (normal <10)
HLA-DQB1 Allele 1 - 0302
HLA-DQB2 Allele 2 - 0502
HLA-DQ 3,1 (subtype 8,5)
carrying one celiac gene and one gluten intolerant gene
nurse at entrolab figures i caught this early and dont eat gluten anymore

life is like a box of chocolates;sometimes you get stuck with the yukky coconut fillet one

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