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Reintroduce Gluten


christtheking

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christtheking Contributor

This from York Labs:


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pixiegirl Enthusiast

I'm a total newbie here and new to gluten-free as well so I probably shouldn't be answering this, but if you have celiac its not an allergy so that information wouldn't apply, however if you only have a wheat allergy then perhaps it might apply to your situation.

susan

darlindeb25 Collaborator
<_< and on the other hand----some times an allergic reaction to something is mild the 1st time and keeps getting worse after each reaction--my son was allergic to pediamyacin--the 1st reaction was mild hives--the 2nd reaction months later was more pronounced hives and the 3rd time and last--he borke out in huge hives that covered his body and i refused to give him that medication ever again--as for us--we all know that we may go months without any gluten and when we do get some---we are sick and not just for a day--sometimes over a week or longer----i dont put any stock in that report--they would have to prove that to me on someone else--not me ;) deb
kabowman Explorer

I have seen this statement and have wondered the same thing. All my tests for celiac disease came back normal/negative. My allergy tests have shown these are not "true" allergies so I look at them as intolerances. My docs have all said that I will never be able to eat these foods again. Wow that I have figured this all out and feel better.

Right now, I am not hoping for the adding back in to the diet but do plan to try some of the foods after a full year. I still have occasional problems - all due to cross contamination while out or with other people that come into our house and are not as careful as we are.

Also, my reactions have gotten more severe, not less so that leads me to believe the docs just might be right.

-Kate

tarnalberry Community Regular

gluten intolerance is not an allergy - the same rules do not apply.

kvogt Rookie

I believe this is generally true for IgG mediated allergies, which is what York tests you for. Gluten sensitivity is predominately IgA mediated. There is also the genetics issue. If you try this, your anatomy may well tell you loud and clear how successful you are. If you are asymptomatic, you won't get the message and may cause yourself a lot of trouble.

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    • trents
    • cristiana
      Hi Colin I share your frustration. My coeliac disease was diagnosed in 2013 and it took some years for my  TTG levels to settle to normal levels in  blood tests.  I had to make a few significant changes at home to make sure our house was as gluten free as possible (I share a house with gluten eaters) but time and time again I found I was glutened (or nearly glutened whilst eating out  - like regular bread being served with a gluten-free meal ).  Even eating in chains that Coeliac UK were recommending as safe for coeliacs.  So I gave up eating in restaurants for a while.  My blood tests normalised.  But here's the thing:  the lowest my TTG readings ever got to were 4.5 (10  and under being my local lab's normal levels) and now that I am eating out again more regularly, they've gone up to 10 again.  I am quite convinced this gluten is coming from exposure whilst eating out.  Small levels, that don't make me violently sick, but might give me a mild stomach upset.  My next coeliac blood review is in September and I mean to give up eating out a few months before to see if that helps my blood results get back on track. It seems to me that there are few restaurants which really 'get it' - and a lot of restaurants that don't 'get it' at all.  I've found one restaurant in Somerset and a hotel in East Sussex where they really know what they are doing.    The restaurant in Somerset hardly uses flour in any of their dishes; the hotel in East Sussex takes in trainees from the local college, so they are teaching best standards.   But it has taken a lot of searching and trial and effort on my part to find these two places.  There are certainly others in the UK, but it seems to me the only real way to find them is trial and error, or perhaps from the personal recommendation of other strict coeliacs (Incidentally, my coeliac hairdresser tells me that if a Michelin star restaurant has to have a separate food preparation so she has never been glutened in one - I can't say I've ever eaten in one!) For the rest, I think we just have to accept that gluten may be in the air in kitchens, if not on the surfaces, and there will always be some level of risk wherever one dines, unless the restaurant cooks exclusively gluten free dishes. Cristiana  
    • RMJ
      Hopefully @Cristiana will see this question, as she also lives in the UK.
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    • trents
      Welcome to the the celiac.com community @colinukcoeliac! I am in the USA but I don't think it is any different here in my experience. In some large cities there are dedicated gluten free restaurants where only gluten free ingredients are found. However, there are a growing number of mainstream eatery chains that advertise gluten free menu items but they are likely cooked and prepared along with gluten containing foods. They are just not set up to offer a dedicated gluten free cooking, preparation and handling environment. There simply isn't space for it and it would not be cost effective. And I think you probably realize that restaurants operate on a thin margin of profit. As the food industry has become more aware of celiac disease and the issue of cross contamination I have noticed that some eateries that used to offer "gluten free" menu items not have changed their terminology to "low gluten" to reflect the possibility of cross contamination.  I would have to say that I appreciate the openness and honesty of the response you got from your email inquiry. It also needs to be said that the degree of cross contamination happening in that eatery may still allow the food they advertise as gluten free to meet the regulatory standards of gluten free advertising which, in the USA is not more than 20ppm of gluten. And that is acceptable for most celiacs and those who are gluten sensitive. Perhaps you might suggest to the eatery that they add a disclaimer about cross contamination to the menu itself.
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