Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Anybody Out There A Morbidly Obese Celiac?
0

46 posts in this topic

Hey I am a newly diagnosed Celiac and I am also morbidly obese. My doctor practically laughed in my face when I asked to be tested and the only reason I got tested was because my extremely skinny mother was diagnosed and her doctor said all family members should be tested. So there I was getting laughed at. Funny thing of course... I ended up having it. I thought that people with celiac disease usually were malnourished. Am I way off base? Anyway I weight a LOT and I am wondering if there are more out there like me.

I am a 23 year old female. I am not a heavy eater but have been huge since I was maybe 8 or 9 years old. I have also been diagnosed with PCOS, Sleep apnea, Chronic Migraines, Depression and anxiety, Graves disease, high blood pressure... Lots of things. I have a hard time losing weight on any diet even when working out. I train a lot with my dad and he ran an ironman last year...here i sit extremely big losing maybe 3-4 lbs when working out. I don't get it and frankly my doctors have been dumbfounded. I have yet to become completely gluten free because I make a lot of beginner mistakes. If there is anyone out there in the same boat or even on the same ocean, has the gluten-free diet helped you lose weight at all? Or at least helped you be able to lose weight.

Thanks for any input

2

Share this post


Link to post
Share on other sites


Ads by Google:

Oh, ((((hugs)))) girl! I'm not only in the same ocean.... I'm swimming right there beside you! 37 years old with PCOS, diabetes, sleep apnea, depression, etc. I'm 5' tall and am morbidly obese. :( I didn't figure out I was celiac until after my endo told me to go gluten free when she found out my 9yo son was celiac. I kind of blew her off since I certainly didn't fit the "typical" celiac description and I didn't have the classic symptoms when I would eat anything with gluten in it.

I've tried all kinds of diets, have done Weight Watchers so many times I lost count, South Beach, Slim-fast, etc and could never lose more than a couple of pounds. UNTIL... about a month ago I went totally gluten free. I'm now down at least 15 lbs!!!! Yes, I have slipped and eaten gluten - not only did I end up with the nasty tummy effects but I would gain 3 lbs overnight! :unsure: It seems that the longer I'm gluten free, the more sensitive I am to when I do have it.

You will feel *so* much better once you finally get the gluten out of your system. Yes, it's hard, but so worth it! I've had to remember that whenever we eat gluten, we are damaging our bodies, whether or not we feel sick.

I'm willing to do this with you. Feel free to send me a message either through the board or e-mail me (my e-mail should be available on my profile page).

~*JC

2

Share this post


Link to post
Share on other sites

I am obese too. I have been overweight since I was in Jr high. Sadly, I havn't lost any weight since going gluten-free. But everyones body is different. You may be lucky and lose weight, but you may not.

0

Share this post


Link to post
Share on other sites
I am obese too. I have been overweight since I was in Jr high. Sadly, I havn't lost any weight since going gluten-free. But everyones body is different. You may be lucky and lose weight, but you may not.

Ptkds's story is my experience in a nutshell. But I'm on prednisone for autoimmune hepatitis right now....I'm hoping that when I'm off it I will start to lose.

It's possible that I will have to cut out other foods too....I know that some on this board have had to eliminate most or even all grains and dairy in order to lose weight and feel better.

Good luck!

JoAnn

0

Share this post


Link to post
Share on other sites

I can't say I'm obese, but one of the effects of undiagnosed celiac disease in me was gaining weight - to my 105lb I added about 25lb fat while losing muscle and not able to reverse this process, which was very unusual. Now after less then 6 months on gluten-free diet I'm still overweight but it gets better as my body recovers and fights off other health problems triggered by celiac disease.

To quote the statistics, about 20% diagnosed celiacs (European and North American) are obese or overweight. My guess is the percentage is even higher among undiagnosed celiacs since, despite the evidence, most doctors still laugh at the idea of obese celiac.

2

Share this post


Link to post
Share on other sites




Sometimes, when you go on a gluten free diet, and you still do not lose, it may mean you have another intolerance. If you are eating a lot of processed gluten free foods, they are much heavier than regular old wheat flour products. Try eating natural foods, nothing processed, stay away from high fructose corn syrup, and sugars.

When I was my sickest, I was my heaviest. For some of us, malnourishment adds pounds. Our bodies go into starvation mode, and takes what it can to build up our fat stores. It's not true that most celiac's are thin, some are, some aren't. One of my sons is very heavy, and his doctors haven't checked him for celiac, "You don't look celiac!" There is no "celiac" look.

I have many intolerance's, and have a constant battle with weight. I have been working very hard at losing weight, and at this time, have lost about 35#. I exercise for about 30 mins every morning, and take a walk in the evenings as often as I can. I do not eat any processed foods, except for my peanut butter, which is Skippy Natural, only 3 ingredients. I have recently had to go lactose free, so I have given up cheese. I also was recently informed that many of the gluten free products still contain sometimes 20ppm of gluten, some 10ppm...though some of us cannot tolerate that amount...I stay away from all grains now.

One day, you will figure this all out. Good luck.

0

Share this post


Link to post
Share on other sites

First off, your doctor was a jerk for laughing at you. I am not the super sensitive type, but nonetheless, that was uncalled for. I know most people with celiac have diarrhea, I had extreme constipation. Also, you have graves, typically people lose weight AND/or have diarrhea mixed with bouts of constipation. Typically, that is, but we are people, not merely symptoms. I was hyper before turned hypo and I never lost a pound, but had every other symptom.How are you being treated for PCOS/Graves?? I am not overweight, but I was always very bloated and retained a lot of fluid before going gluten free. Also, I have many hormonal issues, that is another story. You could possibly have other food intolerances, making it difficult to lose weight. Many people with PCOS do quite well on low-carb diets, you may want to look into it.

2

Share this post


Link to post
Share on other sites

I was very overweight, a little less so these days. I was diagnosed in December of 08 and began eating EVERYTHING that said gluten free. And no I didn't lose weight and even gained some from all the crazy food I ate while remaining gluten free. In February I started cutting out processed foods, basically no flour or sugar, that worked. I'm losing weight and I can eat dairy for the first time in years. I thought I couldn't have Celiac because I was fat but thank goodness I had a great doctor who just kept investigating why I had constant diarrhea for 30 years. I feel better now than I have in many years. Good luck with your journey, it is so worth it.

1

Share this post


Link to post
Share on other sites

The skinny celiac is more and more a thing of the past. Doctors get their knowledge from school they attended 20-30 years ago and don't seem to get updated. You're not an anomaly!

1

Share this post


Link to post
Share on other sites

I think the most recent statistics are that 40% (including me) were overweight at the time of diagnosis. I am (too) close to being obese...scary. I think my body still thinks it's starving. My nutritionist told me at diagnosis that my body thought it was starving so it held on to every last calorie and it lowered my metabolism so I wouldn't burn more calories. I had low vitamin D levels and osteopenia. The conventional wisdom is that skinny women get osteopenia because they don't eat enough to get the right nutrients. I carry around a lot of extra weight and still didn't get the nutrients.

I think that I will have to eliminate all sugar, flours and go on a paleo-type diet to lose weight... just can't seem to do it though.

Hang in there ts1986!

~Laura

1

Share this post


Link to post
Share on other sites

It's always been obvious to me that the women who are morbidly obese and have very thin hair and open sores are malnourished. I'm just a Mom, a dr should know better than to assume that a overweight person can not be malnourished.

According to my WII I'm overweight. I lose weight quickly when I go low carb (under 10 carbs a day) but it's incredibly hard to sustain. So I tell myself I'll have more time for that when schools out for the summer, then when the kids go back to school I'll have more time. It's bull, I just don't enjoy cooking! My latest deal with myself is .....July 16th I'll go low carb until my WII smiles.

I don't have to weight in to play golf! :D

1

Share this post


Link to post
Share on other sites

I was very obese before going gluten free. I lost some because my digestion was so bad I could hardly eat anything, but although I hoped that dropping the gluten was the key to weight loss, it didn't happen.

The thing is, I was told years ago that I should eat low-carb, and whilst I did, I would lose weight and feel great, but as others have said, it was hard to keep up and inevitably the weight would pile back on as the carb intake increased.

I eventually developed IBS then Diabetes about 12 years ago. I was plagued with Candida infestations.

Since my digestive collapse and the realisation I was gluten intolerant I have done a lot of research. Recently I think I have picked up the missing link - for me, but I feel that it may well be true for a lot of people.

Carbs drive blood sugar. As a diabetic that is an issue for me, but you don't have to have Diabetes to be affected by blood sugar issues. Blood sugar drives insulin. If the blood sugar is constantly raised due to carb intake then the pancreas has to keep pumping out insulin.

Insulin is the fat laying hormone. If farmers want to fatten animals, they don't feed them fat or protein, they feed them grain - carbohydrate. Fat does not make you fat. Carbohydrates are turned into fat in the body - insulin sees to that. So every time you eat more carbohydrate than your body needs, it gets turned into fat. If you eat fat with carbohydrates the body will use the fat as fuel and store the carbs.

On lower carbs I still could not lose weight very easily, but 10 days ago I really reigned in my carb intake and gradually upped my fat intake and now the weight is dropping off. 7lbs in 10 days.

Not only that, but the higher fat is dealing with the 'fungus factory'. That was better on the low-carb diet, but it has really improved over the past 10 days. And if the external signs are improving then I can only have faith that the internal ones are too.

I am no longer craving chocolate - I now think that what I was actually craving was not the chocolate itself but the fat in it. I no longer need to snack all evening, and I actually eat less overall. It really looks as if my body is now getting what it needs. We are only driven to eat when our body needs nutrition. If it doesn't get it from the right food, then we are compelled to overeat.

I make sure that my diet is very good and nutritious - wholesome natural foods, fruit, veg, meat, fish, nuts and yogurt, and that the fats are good ones - some animal fats (they do not raise cholesterol!), butter, coconut oil, ghee, olive oil, and I also take cod liver oil and flaxseed oil supplements for their vitamin D and A, trace elements, minerals and essential fatty acids. I avoid trans-fats and hydrogenated and most vegetable oils, especially for cooking (ever tried to scrape the cemented oil off a fryer? Yuk. Just imagine what that is doing to your cells!).

More and more health professionals are coming round to realise all this, but quite how long it would take to become mainstream is anybody's guess.

I have effectively turned the food pyramid upside down. I now eat low-carb, medium protein and higher fat with plenty of veggies and some fruit. You don't have to go like Atkins and stuff yourself with protein either as that will push up the blood sugar albeit more slowly.

If you look at indigenous lean, healthy cultures, they all eat a goodly supply of fats and not too much in the way of carbs, and certainly nothing processed or refined or sugar-laden. Some healthy cultures like the Inuit eat virtually no carbs at all, which knocks those who state categorically that we need carbs, right out of the water.

http://www.telegraph.co.uk/health/dietandf...ig-fat-lie.html

2

Share this post


Link to post
Share on other sites

I gained weight before being diagnosed, alot of it! I tried and tried to lose these past few months and didn't budge. Since going off gluten June 2 I've lost 18 pounds...this past week I'm off dairy, soy, and just recently realised that cottonseed oil might be making me bloat again, so thats out too. I record my food intake on sparkpeople (well this week I haven't recorded due to sickness, but if you go to my sparkpage you can see past food journals) The things that help me are to eat a decent breakfast, try to keep small meals throughout the day with a early supper around 3-4... and then light foods the rest of the day. Apples and peaches are great for me when I don't know what to eat. Also sleep is paramount to losing weight, so make sure you aren't skimping on sleep. I drink lots of water too.

Sparkpeople is phenominal, they have a great Celiac sparkteam too. so good I can't believe its still free. www.sparkpeople.com

http://www.sparkpeople.com/mypage.asp?id=NAHUM1%5F7 - my page

Keeping you in my prayers, don't give up...even just losing 5 pounds made a little difference to me. I keep track of it 10 pounds at a time by moving little numbers across my fridge. It makes it much less overwhelming than looking at needing to lose a huge amount of weight. Those 10 pounds brackets will add up over time, the most important thing is that I get healthier.

more (((((hugs)))))) my docs ignored me for a long time until I switched to a different one. I was deficient and so sick, each day I'm so thankful that I'm one more day closer to healing.

1

Share this post


Link to post
Share on other sites

Congratulations AliB! We, my family and I, recently went low(er) carb also and my husband lost 15 pounds in about 6 weeks. None of us are overweight, we mainly did it for health reasons. My husband had his cholesterol checked and the doctor told him to cut out sugar and carbs to bring down his triglycerides and boost his HDL. It really worked! and the weight loss was a bonus. With heart disease and diabetes in our genes I figured sugar wasn't good for any of the rest of us either so we're all doing his diet. His triglycerides were cut in half, his LDL also went down and his HDL went up with the inclusion of more and better fats (see AliB's post for a list) in our diet. I'm just finishing the book "Good Calories, Bad Calories" by Gary Taubes. It is SO fascinating !! He discusses how carbohydrates contribute to a host of health problems (obesity, heart disease, diabetes, high blood pressure, etc...) and how the research has shown this but they continue to push the idea (without any real proof) that fat is bad for you, makes you fat, clogs your arteries - NOT TRUE. I recommend the book to anyone who has an interest in their health. Just know that low carb is a lifestyle change if you really want to have benefits from it, not a temporary fix. And you have to do as AliB says, and turn the old pyramid and "conventional wisdom" upside down. Anyway, when we went gluten-free we just replaced all the other wheat stuff (crackers, breads, cereals) with equally bad or worse substitutes that had so much corn, white rice, potato/tapioca/corn starch, sugar etc... Not even thinking about how bad and nutritionally devoid it all is. Yes it's gluten-free, but that doesn't mean it's good for us. Now we eat pretty much the same way AliB described her diet: a lot of veggies, meats, good fats, nuts, cheese, yogurt (homemade without sugar), and a fair amount of fruit (though always with the meal that contains fat and protein to help regulate the blood sugar). We have brown rice or potatoes VERY rarely and in small amounts, but for the most part we don't eat any grains, starches or sugar. I use almond flour and flax meal exclusively now for baking (no more rice flour, starches and xanthan to mess with) and it is SO much better! I would say it was about as hard to go low carb as it was to go gluten-free, but boy is it worth it and actually easier/healthier. And if you go low carb while going gluten-free, it's only one transition instead of the two transitions that we did.

I wish you all the best in your quest for good health.

1

Share this post


Link to post
Share on other sites

I was morbidly obese for many years.

As a child, I remember thinking, "Why can other kids eat a sandwiche, chips, milk for lunch . . . maybe even a Twinkie . . . and not gain weight?" It never made sense to me.

AND, I was as active as them, but I was always the nerd-fat-little-girl, even though I ran and played with the best of 'em. The only time anyone wanted me on their team was when we were playing red-rover, because I was always the chubby one who could break through the line.

Then, as an adult, I gave up and ate too much. I figured, what the heck . . . if nothing I do makes any difference, I might as well gorge and enjoy it. Sad, but true.

Later, I lost over 100 pounds and managed to get back to the top end of my BMI, but it was hard to do it sometimes. Looking back, I think gluten made it difficult. I struggled horribly when I would eat any refined foods. Once I went whole-foods only, I did okay. Pasta was a no-no, even if whole wheat. I did eat whole grain bread, but I did better on the weeks when I didn't have it.

Other whole grains were fine, however. Those that did not contain gluten. I didn't know it at the time, though, and just kind of hunt-and-pecked my way through things.

I am currently having to eat gluten every day for many weeks so I can be tested for Celiac. All I can say is that when I am gluten-free or near gluten-free, I can lose weight. When I eat gluten, I struggle so much it brings me to tears.

Case in point: I have gained 15 POUNDS in the last few weeks since having to eat gluten every day, and it is REALLY, REALLY HARD to keep going . . . but I know I must. I can get through this. Yes I can.

I have read that some people hold on to calories in an effort to survive. That is, your body and brain understand that your upper intestine isn't absorbing nutrients . . . so when the food reaches the lower intestine, it does everything it can to hold on to every gram of fat, every calorie, in an effort to keep you as healthy as possible.

I don't know if that is true, but it sure feels as though it may be true for me. Time will tell as I get my test results. In the meantime, please know that you have a friend here who cares most deeply and understands.

I am sending you hugs and best wishes!

Love,

Lyn

1

Share this post


Link to post
Share on other sites

Don't give up! I'm so tickled and thankful I don't know what to do. Woke up this mornig and weighed, I'm within 8 tenths of a pound of being UNDER 200!!!!! Whoooo HOOOOO!! I started at 242, then went on strict low carb diet, no bread, pasta etc (before being diagnosed and clueless as to why I felt so much better) and lost 70+ pounds. I then went back off the diet due to so much going on in my life...taking care of my mom, issues with x etc..needing fast food that I didn't have to think about (or that was my excuse, but still clueless as to why I started feeling so horrible again). I gained back to 221, so this makes over 20 pounds lost since June 2nd when I went gluten-free/soy free..dairy free a week later.

I thank the Lord that I finally have a diagnosis and praying to see these pounds go for good.

I have to really watch what I eat, the "no dairy" is hard, I truly believe that I am some kind of dairy addict. I went off that wagon last week and had a gluten free pizza and coldstone icecream....bloated 7 pound in less than a day. Its taken a few days for my body to get over that mistake, but its given me more drive to really be careful and stay on my diet. I also ran for a mile straight last night, 3 1/2 miles of jogging and walking total. I feel so much better and can't wait to see how good I feel after 10 more pounds...then another 10... I'm doing this 10 at a time with a little skrinky dink motivational piece I made, every pound I lose I move a number over till all 10 are gone. Its on the fridge and helps me when I think of going for the icecream in the freezer.

again, don't give up!

1

Share this post


Link to post
Share on other sites
Hey I am a newly diagnosed Celiac and I am also morbidly obese. My doctor practically laughed in my face when I asked to be tested and the only reason I got tested was because my extremely skinny mother was diagnosed and her doctor said all family members should be tested. So there I was getting laughed at. Funny thing of course... I ended up having it. I thought that people with celiac disease usually were malnourished. Am I way off base? Anyway I weight a LOT and I am wondering if there are more out there like me.

I am a 23 year old female. I am not a heavy eater but have been huge since I was maybe 8 or 9 years old. I have also been diagnosed with PCOS, Sleep apnea, Chronic Migraines, Depression and anxiety, Graves disease, high blood pressure... Lots of things. I have a hard time losing weight on any diet even when working out. I train a lot with my dad and he ran an ironman last year...here i sit extremely big losing maybe 3-4 lbs when working out. I don't get it and frankly my doctors have been dumbfounded. I have yet to become completely gluten free because I make a lot of beginner mistakes. If there is anyone out there in the same boat or even on the same ocean, has the gluten-free diet helped you lose weight at all? Or at least helped you be able to lose weight.

Thanks for any input

While not morbidly obese, I have been obese since Jr. High. No matter what I did, I could not lose weight. Even 2 hours at the gym, every day, made no impact. In the three months between my first appointment with a new OB and my first appointment with my new GI, I lost 13lbs. They were also the hardest three months on my body in terms of being sick. I'm currently awaiting biopsy results, but I understand exactly where you are coming from. I know that some of my weight issues come from stress and being sick is stressful. But, as everyone else here has said, it will get better.

It has to.

1

Share this post


Link to post
Share on other sites

im sorry about your weight issuses but i must say im glad to hear about them. i didnt know what was wrong with me when tests showed i had celiac my doctors thought they had screwed upa nd that the tests were wrong due to my weight. i was 5'2" 200 pounds. and its all in my stomache. since becoming gluten free i am down to 180lbs. i think sometimes though its only due to my lack of desire for what i once loved good food. thank you for making me feel not so alienated.

1

Share this post


Link to post
Share on other sites

I'm sorry I haven't gotten to read everyone's stories yet, it's late and I just got so excited to find out I'm not alone!

I was always a little overweight growing up, but not horribly so. My highest weight as a teen was 174 (I'm 5'3", so that's a lot, but I was a size 16). I then went on a diet and worked hard to lose the weight, and I did. I got down to a size 14, 154 lbs. (what's with the 4's? my body seems to like them no matter what scale I use) and then went off to college. I tried hard to avoid the Freshman Fifteen, and mostly I succeeded until second semester freshman year, and suddenly the weight starting piling on. I hadn't changed much of my eating habits, and I was walking and exercising more, and generally being really careful. But I had changed something--I started taking birth control pills. I'm not sure that's what caused my symptoms, but my weight kept going up and I was TIRED all the time, and mentally fuzzy. It was like my brain was under a fog all the time. I started getting these really strong cravings for things, like broccoli (which is cool, I like broccoli). Not for weird things, but definitely reminded me of my mother when she was pregnant with my little brother--hormonal cravings. My doctors, and I tried several, just kept telling me it was "probably" PCOS and the only treatment was to lose weight--which of course was what I wanted to do, but couldn't for some reason. They were really unhelpful.

For years I've been experiencing other classic symptoms of celiac as well, only not really thinking much of it. It was "normal" for me. Intermittent constipation and diarrhea and constant bloating... it was uncomfortable, but nothing I ever thought to go to my doctor about. I was also experiencing symptoms of mild anemia, irritability, depression, irregular (and then altogether missing) menstruation, migraines. The ironic thing is, I went to my doctor about my migraines in the very beginning of the weight gain--they started around the same time--and my doctor, also a naturopath, told me that migraines sometimes are caused by wheat allergies or other related issues, and that I should go completely wheat-free for a week and see how I did. I did it, and it was hard, but because I didn't know about gluten, I didn't really get everything out of my diet that had wheat or gluten in it, and so the challenge failed. It might have gone better if I'd not thought my doctor was insane, too--I didn't really think wheat could cause migraines. Ah well... seven years later, now I know better.

After years of trying to fight back the weight gain, I got up to 235 lbs. and through Weight Watchers I got it hovering around 215 for the last year, but it took two different tries, each of which I had to quit because they were making me sick each time. I didn't get it--WW doesn't prescribe specific foods, they just tell you to eat less fat and more fiber and count your points. Well... what I didn't know what that all the "high-fiber" foods I'd added to my diet were what was making me sick because they were all wheat-based. Ha! My doctor thankfully didn't ignore my questions about celiac, and we did a gluten challenge. She felt my rapid and severe improvement on a gluten-free diet was enough to diagnose me with celiac, and so here I am now. I was diagnosed in May 2009.

I immediately lost about five pounds, and one full size. I can fit into my "tiny" size 18's now, and my size 20's and "large" 18's (you know how it goes, some brands are just bigger than others) are practically tents on me now. My weight jumps up and down from about 212 to 215 now, and I'm still trying to lose more weight. I'm getting married in February, and I'd like to go down another size or two before getting my dress.

I'm so happy to find others in my situation, and I look forward to going back and reading everyone's stories more carefully tomorrow. I'd love to find out what sort of dieting tips and tricks you all have too.

-Erin

Hey I am a newly diagnosed Celiac and I am also morbidly obese. My doctor practically laughed in my face when I asked to be tested and the only reason I got tested was because my extremely skinny mother was diagnosed and her doctor said all family members should be tested. So there I was getting laughed at. Funny thing of course... I ended up having it. I thought that people with celiac disease usually were malnourished. Am I way off base? Anyway I weight a LOT and I am wondering if there are more out there like me.

I am a 23 year old female. I am not a heavy eater but have been huge since I was maybe 8 or 9 years old. I have also been diagnosed with PCOS, Sleep apnea, Chronic Migraines, Depression and anxiety, Graves disease, high blood pressure... Lots of things. I have a hard time losing weight on any diet even when working out. I train a lot with my dad and he ran an ironman last year...here i sit extremely big losing maybe 3-4 lbs when working out. I don't get it and frankly my doctors have been dumbfounded. I have yet to become completely gluten free because I make a lot of beginner mistakes. If there is anyone out there in the same boat or even on the same ocean, has the gluten-free diet helped you lose weight at all? Or at least helped you be able to lose weight.

Thanks for any input

1

Share this post


Link to post
Share on other sites

My health plan sucks so when I asked to be tested for celiac disease they told me "no" pretty much. Said it wasn't covered. My doctor though she just told me to try the diet for 3 months and see what happened. I do have a lot of weight on and it's been pretty bad trying to lose any of it. I have some big issues with the hormones.

I'm 4 weeks in and I've lost 12 LBS. The calorie count is pretty much the same, just no gluten. I called her to tell her and she was pretty surprised. Told me to keep at it and that she'd see me mid-Feb as scheduled.

It's rare for me to lose any weight at all. I've been really struggling to do so for a long time now. Nothing has worked. 4 weeks, no gluten and all of a sudden it's I'm dropping weight like I was working out 24/7 or running marathons or something!

Amazing, I just hope it continues this way. I'd love to be able to fit back into a size 6/8 by this time next year. I haven't seen my "normal" size in almost a decade and a half. I'm just not built to be a size 18 and it's been putting a real strain on my health.

Clearly there is a link between the weight gain and the gluten thing, at least for me. The sudden number drop on my scale says it all.

1

Share this post


Link to post
Share on other sites

I am so happy to see others with a weight problem and celiac. I am 5'5" and weigh 172lbs! I know it is not morbidly obese, but I am still in the obese category. I was 135lbs when I got married a little over 4 years ago. About a month after getting married, my weight shot up and I doubled over in pain. No one could figure it out. My doctor thought I had appendicitis and sent me to the ER. The ER doctor found that my appendix was fine and told me they didn't support drug seekers!! I am allergic to smoke, so I have never smoked, never was interested in even trying drugs, just never saw the appeal, and the one time I tried a sip of beer I about gagged, nasty stuff, so I have also never been drunk. And here I was, in terrible pain, not asking for pain killers, just an answer as to what was wrong, being called a drug seeker. Sorry, that still pushes my buttons.

My P.A. is actually the on that stuck with me and made sure I had a dx. But even after being gluten free for four years, my weight will not budge. I can exercise like crazy, watch every calorie, avoid grain, no change, but on the flip side, I tried a little experiment and ate what every I wanted. Not off the gluten free diet, but if I made pancakes for breakfast I would have one instead of some yogurt or something. My weight still didn't change up or down. My doctor told me that my body thought it was starving and slowed my metabolism down to a crawl as a conservation method and that it may take 5 years for it to resolve itself.

Right now I am trying this negative calorie diet. You replace 60-70% of your diet with certain fruits and veggies, try to stick to brown rice, and good lean meats. I only started it this last week, but I have already lost 4 lbs! That is the best I have done since everything went crazy on me 4 years ago. Has any one else tried this method, were you able to keep it off? Any other ideas? I am getting a little desperate. I realize I may have a year to go before my metabolism comes back to Earth, but I don't feel healthy. Thanks.

1

Share this post


Link to post
Share on other sites

There is a myth out there: that celiacs are skinny. The truth is, about 60% of celiacs are overweight or obese.

My sister and I are both celiacs, an inheritance from both sides of the family. We both had bizarre weight issues. Either gaining weight furiously even though we would both be living extremely active lives (biking or jogging to work, weight lifting, training for the Ironman etc etc - and eating very heathfully) or losing weight suddenly for absolutely no explanable reason. I have gained and lost 20lbs within 2 months, been over 200 lbs and under 120 lbs. We were very very VERY frustrated.

However, once on a gluten-free diet, our bodies seemed to settle down. I am now consistently 150 lbs. It never varies.

I think what happens is, when you are sick from eating gluten, and your stomach can no longer process nutrients or break down food, your body begins to starve. When some bodies are starving, the survival response is to hold on to any fat/sugar/energy it can, and store it. I used to have insane hunger cravings that would cause me to eat entire boxes of cookies so that I would be able to simply be able to function. I never ever ever have these cravings anymore. My body has settled down, the metabolism has balanced, I am not a werewolf anymore.

Welcome to your new life. :)

Natasha

0

Share this post


Link to post
Share on other sites

AliB,

Can you explain how you eat/what you eat on a daily basis? I really think that your diet would work for me greatly! Any advice would be awesome!

I too am an overweight Celiac, but I wasn't always, only about the last 7 years. And I still feel like my body needs a different plan of eating and your approach seems logical and I think my body likes less carbs in general.

Thanks!

0

Share this post


Link to post
Share on other sites

Wow, recently found a gluten sensitivity, not full blown celiacs yet, but I too am having issues losing weight, my doc is dumbfounded, tested me for everything, tried diet pills to no avail, nothing, it gets depressing, not to add to the IBS, depression, etc that also plague me, glad to know I am not alone!

0

Share this post


Link to post
Share on other sites

I'm not sure why I clicked on this thread - I'm not heavy or skinny. But I'm glad I entered here so I could pass on this: the nutritionist I saw after I was diagnosed admitted that she, after she was diagnosed with celiac's, gained A LOT of weight after going gluten-free because she relied too much on processed gluten-free baked goods - such as cookies and breads and pastas, etc. And this was a nutritionist. (She lost the weight.) So be careful, and don't have too many of the gluten-free products like that - they have a lot more sugars in them in order to still taste and feel gooey - hence the risk of weight gain.

A lot of people with chronic depression turn to carbs to try to boost their moods. And a lot of people who are initially gluten-free will feel deprived and buy a lot of those gluten free carbs like breads and donuts and cookies in order to feel less deprived. So make sure you're treating your depression well (so you won't crave the carbs as much, or feel sorry for yourself or pessimistic - because depression reduces our sense of hope and optimism), and try to stick to the stuff that mother nature already made gluten-free: fruits and meats and nuts and veggies...

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,125
    • Total Posts
      919,500
  • Topics

  • Posts

    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
    • I honestly feel like both doctors think it's all in my head even though there is proof.  Yeah there was a point when I felt crazy.  That was when I was being shuffled from dr to dr being given individual diagnoses of my problems.  None of those diagnoses ever made me get better.  Seriously I was diagnosed with heart palpitations, neurocardiogenic syncope, I was given a butt load of steroids because a dr felt like I was producing too much adrenaline, freaking had a few tell me I was depressed, and the good ol IBS.  It seemed most wanted to push pills.  It's all just ridiculous!
    • I can't believe your doctors!!! You have a daughter who is dx'd already! Yet the ped doesn't want to test your other kids unless you have a dx????!!! Are you kidding me???!!! That's absurd!!! They have a first degree relative who has been dx'd with celiac already. There is no need to wait to see what you turn out to be!! And then, and then, and then....don't even get me started on your doctor!!! Does he have brain damage? Oh this is insane & ridiculous!  I have never heard of a disease that doctors are so unwilling to consider or test for OR to diagnose as this one! Usually they are hot to trot to make a dx but say the word celiac & they shake in their boots. Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!!!!!!!!!!!!!!!
    • I had a negative biopsy and was still diagnosed with Celiac. My GI ran a bunch of tests looking for the cause of my 15+ years of diarrhea and the only thing that came back positive was the entire Celiac panel. All very high. So he performed an endoscopy with biopsy. The biopsy was negative. So he ordered a genetic test. When that came back as "high risk" he decided a trial gluten free diet was in order. After 8 weeks my symptoms resolved and my antibodies were back to normal. Since then, follow up testing had shown I have osteoporosis. I am a 40 year old male.  So yes, you can definitely still have it and have significant damage with a negative biopsy. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,161
    • Most Online
      1,763

    Newest Member
    Jashan8534
    Joined