Anybody Out There A Morbidly Obese Celiac?
Posted 03 July 2009 - 01:02 AM
I am a 23 year old female. I am not a heavy eater but have been huge since I was maybe 8 or 9 years old. I have also been diagnosed with PCOS, Sleep apnea, Chronic Migraines, Depression and anxiety, Graves disease, high blood pressure... Lots of things. I have a hard time losing weight on any diet even when working out. I train a lot with my dad and he ran an ironman last year...here i sit extremely big losing maybe 3-4 lbs when working out. I don't get it and frankly my doctors have been dumbfounded. I have yet to become completely gluten free because I make a lot of beginner mistakes. If there is anyone out there in the same boat or even on the same ocean, has the gluten-free diet helped you lose weight at all? Or at least helped you be able to lose weight.
Thanks for any input
Posted 03 July 2009 - 02:53 AM
I've tried all kinds of diets, have done Weight Watchers so many times I lost count, South Beach, Slim-fast, etc and could never lose more than a couple of pounds. UNTIL... about a month ago I went totally gluten free. I'm now down at least 15 lbs!!!! Yes, I have slipped and eaten gluten - not only did I end up with the nasty tummy effects but I would gain 3 lbs overnight! It seems that the longer I'm gluten free, the more sensitive I am to when I do have it.
You will feel *so* much better once you finally get the gluten out of your system. Yes, it's hard, but so worth it! I've had to remember that whenever we eat gluten, we are damaging our bodies, whether or not we feel sick.
I'm willing to do this with you. Feel free to send me a message either through the board or e-mail me (my e-mail should be available on my profile page).
Posted 03 July 2009 - 09:39 AM
Mom of 4 beautiful girls (the 2 youngest are only 10 months apart!)
Diagnosed with Celiac disease on November 8, 2006; gluten-free as of 12-1-06.
DD#2 13 years old; diagnosed on November 28, 2006. gluten-free as of 12-7-06.
DD#3 9 years old; diagnosed through blood work in October 2006. Gluten-free as of mid-November and doing GREAT!!
DD#4 8 years old; had a scope done on 6-22-07 (at 14 months old) and the dr saw stomach ulcers, but all test results were negative. GI dr told us to put her on the gluten free diet anyway. She is gluten free as of 6-22-07.
Posted 03 July 2009 - 11:38 AM
I am obese too. I have been overweight since I was in Jr high. Sadly, I havn't lost any weight since going gluten-free. But everyones body is different. You may be lucky and lose weight, but you may not.
Ptkds's story is my experience in a nutshell. But I'm on prednisone for autoimmune hepatitis right now....I'm hoping that when I'm off it I will start to lose.
It's possible that I will have to cut out other foods too....I know that some on this board have had to eliminate most or even all grains and dairy in order to lose weight and feel better.
Tested Fall 2008: bloodwork, biopsy negative; HLA DQ8. Doctor believes results negative due to prednisone and Imuran taken for autoimmune hepatitis.
Dx with celiac disease because of dietary response, genetics, and family history of celiac disease.
Dx with Lyme Disease Jan 2010; Lyme likely triggered some of the AI diseases.
Gluten free since 25 Nov 2008
Posted 03 July 2009 - 01:34 PM
To quote the statistics, about 20% diagnosed celiacs (European and North American) are obese or overweight. My guess is the percentage is even higher among undiagnosed celiacs since, despite the evidence, most doctors still laugh at the idea of obese celiac.
Posted 03 July 2009 - 05:11 PM
When I was my sickest, I was my heaviest. For some of us, malnourishment adds pounds. Our bodies go into starvation mode, and takes what it can to build up our fat stores. It's not true that most celiac's are thin, some are, some aren't. One of my sons is very heavy, and his doctors haven't checked him for celiac, "You don't look celiac!" There is no "celiac" look.
I have many intolerance's, and have a constant battle with weight. I have been working very hard at losing weight, and at this time, have lost about 35#. I exercise for about 30 mins every morning, and take a walk in the evenings as often as I can. I do not eat any processed foods, except for my peanut butter, which is Skippy Natural, only 3 ingredients. I have recently had to go lactose free, so I have given up cheese. I also was recently informed that many of the gluten free products still contain sometimes 20ppm of gluten, some 10ppm...though some of us cannot tolerate that amount...I stay away from all grains now.
One day, you will figure this all out. Good luck.
Long Island, NY
Double DQ1, subtype 6
We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!
Posted 05 July 2009 - 09:53 AM
Posted 06 July 2009 - 04:32 AM
Diagnosed Dec. 2008
Diagnosed with follicular Non Hodgkin Lymphoma Sept. 2010
Large B cell lymphoma 2011
Posted 06 July 2009 - 09:31 AM
Posted 07 July 2009 - 11:09 PM
I think that I will have to eliminate all sugar, flours and go on a paleo-type diet to lose weight... just can't seem to do it though.
Hang in there ts1986!
Son, age 18, previously delayed growth 3rd percentile weight, 25th percentile height (5'3" at age 15). Negative blood work. Endoscopy declined. Enterolab positive 3/12/08. Gene results: HLA-DQB1 Molecular analysis, Allele 1 0201 HLA-DQB1 Molecular analysis, Allele 2 0503 Serologic equivalent: HLA-DQ 2,1(Subtype 2,5) Went gluten-free, casein-free 3/15/08. Now 6'2" (Over six feet!) and doing great.
"Great difficulties may be surmounted by patience and perseverance." Abigail Adams (1744-1818) 2nd First Lady of the United States
Posted 08 July 2009 - 05:45 AM
According to my WII I'm overweight. I lose weight quickly when I go low carb (under 10 carbs a day) but it's incredibly hard to sustain. So I tell myself I'll have more time for that when schools out for the summer, then when the kids go back to school I'll have more time. It's bull, I just don't enjoy cooking! My latest deal with myself is .....July 16th I'll go low carb until my WII smiles.
I don't have to weight in to play golf!
Posted 10 July 2009 - 03:48 AM
The thing is, I was told years ago that I should eat low-carb, and whilst I did, I would lose weight and feel great, but as others have said, it was hard to keep up and inevitably the weight would pile back on as the carb intake increased.
I eventually developed IBS then Diabetes about 12 years ago. I was plagued with Candida infestations.
Since my digestive collapse and the realisation I was gluten intolerant I have done a lot of research. Recently I think I have picked up the missing link - for me, but I feel that it may well be true for a lot of people.
Carbs drive blood sugar. As a diabetic that is an issue for me, but you don't have to have Diabetes to be affected by blood sugar issues. Blood sugar drives insulin. If the blood sugar is constantly raised due to carb intake then the pancreas has to keep pumping out insulin.
Insulin is the fat laying hormone. If farmers want to fatten animals, they don't feed them fat or protein, they feed them grain - carbohydrate. Fat does not make you fat. Carbohydrates are turned into fat in the body - insulin sees to that. So every time you eat more carbohydrate than your body needs, it gets turned into fat. If you eat fat with carbohydrates the body will use the fat as fuel and store the carbs.
On lower carbs I still could not lose weight very easily, but 10 days ago I really reigned in my carb intake and gradually upped my fat intake and now the weight is dropping off. 7lbs in 10 days.
Not only that, but the higher fat is dealing with the 'fungus factory'. That was better on the low-carb diet, but it has really improved over the past 10 days. And if the external signs are improving then I can only have faith that the internal ones are too.
I am no longer craving chocolate - I now think that what I was actually craving was not the chocolate itself but the fat in it. I no longer need to snack all evening, and I actually eat less overall. It really looks as if my body is now getting what it needs. We are only driven to eat when our body needs nutrition. If it doesn't get it from the right food, then we are compelled to overeat.
I make sure that my diet is very good and nutritious - wholesome natural foods, fruit, veg, meat, fish, nuts and yogurt, and that the fats are good ones - some animal fats (they do not raise cholesterol!), butter, coconut oil, ghee, olive oil, and I also take cod liver oil and flaxseed oil supplements for their vitamin D and A, trace elements, minerals and essential fatty acids. I avoid trans-fats and hydrogenated and most vegetable oils, especially for cooking (ever tried to scrape the cemented oil off a fryer? Yuk. Just imagine what that is doing to your cells!).
More and more health professionals are coming round to realise all this, but quite how long it would take to become mainstream is anybody's guess.
I have effectively turned the food pyramid upside down. I now eat low-carb, medium protein and higher fat with plenty of veggies and some fruit. You don't have to go like Atkins and stuff yourself with protein either as that will push up the blood sugar albeit more slowly.
If you look at indigenous lean, healthy cultures, they all eat a goodly supply of fats and not too much in the way of carbs, and certainly nothing processed or refined or sugar-laden. Some healthy cultures like the Inuit eat virtually no carbs at all, which knocks those who state categorically that we need carbs, right out of the water.
Stopped gluten & dairy, Jan 08, but still other issues so dropped most carbs and sugar and have been following the Specific Carb Diet (SCD) since March 08. Recovery slow but steady and I can now eat a much broader range of foods especially raw which are good for my digestion and boost my energy level.
Not getting better? Try the SCD - it might just change your life.........
Posted 10 July 2009 - 11:35 AM
Sparkpeople is phenominal, they have a great Celiac sparkteam too. so good I can't believe its still free. www.sparkpeople.com
http://www.sparkpeop...asp?id=NAHUM1_7 - my page
Keeping you in my prayers, don't give up...even just losing 5 pounds made a little difference to me. I keep track of it 10 pounds at a time by moving little numbers across my fridge. It makes it much less overwhelming than looking at needing to lose a huge amount of weight. Those 10 pounds brackets will add up over time, the most important thing is that I get healthier.
more (((((hugs)))))) my docs ignored me for a long time until I switched to a different one. I was deficient and so sick, each day I'm so thankful that I'm one more day closer to healing.
Posted 14 July 2009 - 11:20 AM
I wish you all the best in your quest for good health.
Posted 25 July 2009 - 09:31 PM
As a child, I remember thinking, "Why can other kids eat a sandwiche, chips, milk for lunch . . . maybe even a Twinkie . . . and not gain weight?" It never made sense to me.
AND, I was as active as them, but I was always the nerd-fat-little-girl, even though I ran and played with the best of 'em. The only time anyone wanted me on their team was when we were playing red-rover, because I was always the chubby one who could break through the line.
Then, as an adult, I gave up and ate too much. I figured, what the heck . . . if nothing I do makes any difference, I might as well gorge and enjoy it. Sad, but true.
Later, I lost over 100 pounds and managed to get back to the top end of my BMI, but it was hard to do it sometimes. Looking back, I think gluten made it difficult. I struggled horribly when I would eat any refined foods. Once I went whole-foods only, I did okay. Pasta was a no-no, even if whole wheat. I did eat whole grain bread, but I did better on the weeks when I didn't have it.
Other whole grains were fine, however. Those that did not contain gluten. I didn't know it at the time, though, and just kind of hunt-and-pecked my way through things.
I am currently having to eat gluten every day for many weeks so I can be tested for Celiac. All I can say is that when I am gluten-free or near gluten-free, I can lose weight. When I eat gluten, I struggle so much it brings me to tears.
Case in point: I have gained 15 POUNDS in the last few weeks since having to eat gluten every day, and it is REALLY, REALLY HARD to keep going . . . but I know I must. I can get through this. Yes I can.
I have read that some people hold on to calories in an effort to survive. That is, your body and brain understand that your upper intestine isn't absorbing nutrients . . . so when the food reaches the lower intestine, it does everything it can to hold on to every gram of fat, every calorie, in an effort to keep you as healthy as possible.
I don't know if that is true, but it sure feels as though it may be true for me. Time will tell as I get my test results. In the meantime, please know that you have a friend here who cares most deeply and understands.
I am sending you hugs and best wishes!
There is hope! Gluten-free since Sept. '09, and I have my life back - I feel better than in many, many years!
Favorite quotation: "You must do the thing you think you cannot do." - Eleanor Roosevelt
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