Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Means No Coffee?


moose07

Recommended Posts

moose07 Apprentice

Hey Everyone,

So I read this blog today that basically says a protien in coffee can cause the same harmful effects as gluten can. I'm just wondering if anyone else has heard this or knows anymore. I'm a little upset about it. :/

Here is the blog Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 79
  • Created
  • Last Reply
kareng Grand Master

We just had this discussion yesterday. It's rediculous. A brewed beverage has no or barely any protein, first. This is just some Internet doctors theory.

Monklady123 Collaborator

Hey Everyone,

So I read this blog today that basically says a protien in coffee can cause the same harmful effects as gluten can. I'm just wondering if anyone else has heard this or knows anymore. I'm a little upset about it. :/

Here is the blog Open Original Shared Link

I wouldn't stop that morning cup of coffee just yet. :)

And you know how people say to us "I would DIE if I couldn't eat bread!" and we reply (to ourselves) "no you wouldn't." Well... seriously...I would DIE without my morning coffee. :P

(Go ahead, think to yourself "no you wouldn't." But I'm telling you that yes I would!) :lol:

JustNana Apprentice

Moose

Say what?

Monklady, I have written my will, gathered my kin and sharpened my hari-kari knife.

This will NOT stand.

Plus I ain't buyin' it. The whole gluten free community is so big now that we are a marketing force! (That's a good thing). If coffee had been discovered to be dangerous to celiacs it would make the 6:00 AND 11:00 news.

Let not your heart be troubled.

psawyer Proficient

If coffee had gluten I would have been dead years ago. :ph34r:

Even if it isn't "gluten," I consume enough of it that if it was problematic, I would certainly know by now. Enjoy your coffee!

Bubba's Mom Enthusiast

I wouldn't stop that morning cup of coffee just yet. :)

And you know how people say to us "I would DIE if I couldn't eat bread!" and we reply (to ourselves) "no you wouldn't." Well... seriously...I would DIE without my morning coffee. :P

(Go ahead, think to yourself "no you wouldn't." But I'm telling you that yes I would!) :lol:

I'm with you! I can live without bread..but they better not try to take my morning coffee away. :angry::ph34r:

JustNana Apprentice

Hey Bubba's mom

How's it goin?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bubba's Mom Enthusiast

Hey Bubba's mom

How's it goin?

Goin' good as long as they don't try prying my coffee cup out of my hand! LOL :D

JustNana Apprentice

I read that goofy blog.

Sorry, but when they start saying they know what causes MS...blah blah blah - my BSometer sounds an alarm.

Are these sincere but gullible people or just trolls?

Ugh

OliviaB Newbie

I just found out I had Celiac Disease yesterday and can't have gluten. Then today I see the headline Celiacs Means No Coffee? Can you say heart attack?! Don't scare a newbie like that :P! I am so glad most disagree with that blog or I would be having a major melt-down right now!

pricklypear1971 Community Regular

I just found out I had Celiac Disease yesterday and can't have gluten. Then today I see the headline Celiacs Means No Coffee? Can you say heart attack?! Don't scare a newbie like that :P! I am so glad most disagree with that blog or I would be having a major melt-down right now!

I suggest not taking gluten-free advice from the general public (this board is not the general public).

My FIL thought I potatoes had gluten in them, and cookies didn't....and some people think all cheese has gluten in it...

So, my point is, get used to heart attacks. And get used to hearing some incredibly stupid, uninformed stuff.

And get used to laughing at people who "would die if they couldn't eat bread". I mean seriously, it's funny. I tried the polite smile a few times, but now I just give in and laugh. Obviously, they don't get it. But you will, soon. And if you don't, yet, deliver a nice frozen loaf of gluten-free bread to one of those idiots and watch their face. And then ask them if they could give it up or die.

But I digress...

larry mac Enthusiast

The first thing I do in a case like this (outlandish claim) is see what they're selling. It doesn't take long. Sarah the healthy home economist is selling product links and advertising.

"Please contact Sarah at thehealthyhomeeconomist.com for a Media Kit.

Please Note: The Healthy Home Economist is part of the Real Food Media online magazine. We have paid sponsors. Unfortunately, this precludes us from doing unpaid promotions or reviews for free product."

Ie, she doesn't talk about anything she's not getting paid for.

The exciting and important news about a so-called coffee/gluten connection was revealed to her at a paleofx12 conference ( an alternative health and nutrition "disipline" based on evolutionary study (or somesuch) where she saw dr. david clark speak. He's not really a doctor, he's a chiropractor. Thus the titles of functional this and functional that in his bio. He's also selling stuff. Books and whatnot.

There's always people out there trying to make a living duping the gullible.

Try not to be the gullible!

best regards, lm

.

JustNana Apprentice

Olivia,

I swear the people on this site have heard and seen it all...ignorant public, thoughtless friends and family, even dumbazz doctors. They are skeptical but open minded. You are Sooooo lucky you found this forum. It is THE best forum I have ever read, bar none.

dani nero Community Regular

I'm gonna give the previous posts some serious reinforcements. I've never gotten any information off this forum that was harmful. Without the experience of the people here I would have still been lost and itching my skin into oblivion.

lynnelise Apprentice

I had a friend who is on the paleo diet send me a link to this article. She seemed kind of offended that I didn't trust it. Honestly the terms "functional neurologist and functional endocrinologist" immediately raised a red flag.

I used to think I had some sort of reaction to coffee, not at all similar to my gluten reaction though. I would get tingly lips, tongue, and gums! I was drinking coffee with almond milk daily at this time. I ditched the almond milk and have had no issues. I drink coffee with milk or soy frequently!

JustNana Apprentice

Hey Moose! YooooHooooo....

Where IS that oh so concerned poster? Drop in. Write a goofy inflammatory post. Run.

Harumph!

dani nero

I have DH too. I've already seen some improvement. I would love to hear your story. Maybe over a nice gluten-free snack and a BIG CUP of COFFEE. :-)

moose07 Apprentice

Hey Moose! YooooHooooo....

Where IS that oh so concerned poster? Drop in. Write a goofy inflammatory post. Run.

Harumph!

dani nero

I have DH too. I've already seen some improvement. I would love to hear your story. Maybe over a nice gluten-free snack and a BIG CUP of COFFEE. :-)

Sorry that I don't spend my entire life on this board. Did you actually read what I wrote? I was asking if anyone else had heard of this notion. I never said I believed it.

JustNana Apprentice

No need to apologize.

:-)

ravenwoodglass Mentor

No need to apologize.

:-)

At least not on the OP's end.

IrishHeart Veteran

We just had this discussion yesterday. It's rediculous. A brewed beverage has no or barely any protein, first. This is just some Internet doctors theory.

Hi Moose,

Please re-read the other thread and see what we all think of this "theory". :rolleyes:

Honestly, none of us see any reason why you should worry about coffee. Okee dokee?!

Best wishes,

IH

JustNana Apprentice

Moose

I have sent you a private message, but want to publically apologize to you for my rude behavior. I completely misread the intent behind your thread. I was disrespectful and totally out of line. I have fought a tendency to be mouthy and judgmental for years and as you see I am not always successful.

This was the worst place to exhibit that ugly trait and I am truly sorry.

moose07 Apprentice

JustNana,

Thanks for the apology.

Everyone else, thanks for the adivce. I'm glad other people on here are good at researching all this stuff.

stef-the-kicking-cuty Enthusiast

Remember my post about new celiac pain a couple of days ago, even though I'm entirely glutenfree? With me it IS the coffee. I can not have coffee or I'm getting my old celiac pains.

Monklady123 Collaborator

Remember my post about new celiac pain a couple of days ago, even though I'm entirely glutenfree? With me it IS the coffee. I can not have coffee or I'm getting my old celiac pains.

Well, I'm not a doctor, but I would say that probably you're getting the pains from the coffee itself -- i.e., the caffeine, or the acid, or whatever else is in coffee. Not from gluten, which is not in coffee. Lots of people who have "stomach trouble" (as the doctors like to call any number of things) cannot drink coffee.

My entirely unmedical opinion is that all sorts of things bother us while we're healing, and that it can take a long time. I was doing okay with milk, then got glutened (through my own stupidity), and then couldn't have cereal with milk for the next week or so.

Anyway, just my thoughts. :)

cougie23 Explorer

Hook me up with an IV...LOL! :lol:

But seriously...The fact that my INSTANT NESCAFE FOLGERS CHOICE felt it nessasery to put gluten free on the lable for my INSTANT coffee, made me wonder if maybe OTHER instant coffees might have glutten as a binder/emulfifier to hold those lovely little crystals together! Hell even shampoo isn't safe...I tryied NEXUS and had a HORRIBLE reaction...my son looked at the lable, and said...you know mom...this has wheat in it! GASP! :ph34r:

Just goes to show...READ THOSE LABLES!

( and contrary to befief...you don't HAVE to ingest the shampoo to react to it...I'm living proof!I got sick to my stomache,naushous,dizzy and my hair went limp and oily...not to mention my whole body was ITCHY!!!)But thats another thread! :ph34r::D

They BETTER NOT MESS WITH MY COFFEE!!! :DB)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

    2. - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    3. - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,411
    • Most Online (within 30 mins)
      7,748

    EBeloved
    Newest Member
    EBeloved
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
    • Wheatwacked
      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
    • Wheatwacked
      Here is a link to the spreadsheet I kept to track my nutrition intakes.  Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/41 to add up my daily intake and supplemented appropriately.  It tracks about 30 nutrients at once.
    • Wheatwacked
      Hello @catnapt, That's so true.  Every person with Celiac Disease has different symptoms.  There are over 200 that it mimics.  Too many still believe that it is only a childhood disease you outgrow.  Or it's psychosomatic or simply a fad.  Idiots.  It's easy to get angry at all of them.   You just have to pick at the answers until you find the ones that work for you.  I too suffer from not being able to take the drugs that work for "everyone else".  SSRIs make me twitch ane feel like toothpicks are holding my eye open, ARBs cripple me.  Statins cause me intestinal Psuedo Obstruction.  Espresso puts me to sleep.  I counted 19 different symptoms that improved from GFD and dealing with my nutritional defecits.  I couldn't breath through my mouth until I started GFD at 64 years old.   My son was born with celiac disease, biopsy diagnosed at weaning.   So why are we the one-percenters.  Why, after being silent for so long, does it suddenly flare? There is the possibility that you have both Celiac Disease and Non Celiac Gluten Sensitivity.  NCGS was not established as a diagnosis until 1980.  NCGS is diagnost by first elimating Celiac Disease as the cause, and showing improvement on GFD.  Nothing says you can't have symptoms from both.  Wheatbelly: Total Nutrition by Dr. Davis was helpful to me. We come to the forum to share what we've learned in dealing with our own symptoms.  Maybe this will help someone. Speaking of which if you don't mind; what is your 25(OH)D vitamin D blood level?  You mentioned a mysterious Calcium issue. Vitamin D, Calcium and Iodine are closely interactive. It is not uncommon for postmenopausal women to have insufficient intake of Iodine.   (RDA): Average daily level of intake sufficient to meet the nutrient requirements of nearly all (97%–98%) healthy individuals; often used to plan nutritionally adequate diets for individuals You are a one-percenter.  You may need higher intake of some essential nutrient supplements to speed up repairing the damages.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.