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Parents, Friends and Loved Ones of Celiacs

Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.


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  • Posts

    • knitty kitty
      @junell, Can you get a DNA test to look for genes for Celiac Disease?   Have you had your thyroid checked? Have you been checked for nutritional deficiencies?  Being on a restricted diet for so long and especially now since you are having symptoms can cause malabsorption resulting in vitamin deficiencies.   Talk to your doctor and dietician about supplementing with essential vitamins and minerals.
    • Rebeccaj
      Hello , I would like to know what happens to people living or working in a industry or living with people that are non celiac or allergy Pron or anaphylaxis.    what are the symptoms and have you reached neurological symptoms during Airbourne exposure or hours later. persistent just ptsd related or unknown as its usually only high inflammation in the body when consumed with Vegas nerve symptoms of ingested or neuroglial of ingestion of inhalation accidently as my doctor has given me the ok to work but then my boss has let me go for a focal seizure as  Allery or ptsd unsure  any Insite of what someone else has gone through I was diagnosed when I was 27 so gluten free for the rest of my life but my family are not . ?
    • Beverage
      I strongly agree with others about processed gluten free foods, like breads and pasta, being bad for us. Read the labels, full of this starch and that starch, seed oils that are inflammatory, etc. Before you were celiac, you probably wouldn't even touch something with those ingredients. I do much better with whole foods, meat, veggies, a little fruit. I made 90% myself, make extra and freeze it for future meals. Cutting out processed gluten free food and eating mostly real whoke food helped me feel much better. And definitely benfotiamine!
    • knitty kitty
      Please be sure to try Benfotiamine or Thiamine Hydrochloride.  The form Thiamine Mononitrate is not absorbed nor utilized well.  Benfotiamine is much more bioavailable.  Perhaps Thiamine Mononitrate was in your previous B Complex supplements, explaining why they didn't work for you.   All the B vitamins work together.  Thiamine needs the other B vitamins to make enzymes and ATP, so you will need to take them.  Taking them in individual supplements is fine.  I've done the same.  Just remember you need all eight.   Let me know how it's going for you!
    • Zuma888
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