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Parents, Friends and Loved Ones of Celiacs
Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.
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Recent Activity
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- Shining My Light replied to Shining My Light's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms20Virus, celiac disease or both?
@trents I’m pretty sure what I’m left with when separating celiac to other causes is my 10% being a virus. The one I had about 3 weeks before taking this TTG test. Everything I’ve read says type 1 diabetes, rheumatoid arthritis, hepatitis and some viruses are what could cause the elevation. The other blood tests I had I can compare things against. I... -
- Alibu replied to Alibu's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms16Waiting on biopsy after positive bloodwork, but also not really believing this is real
@knitty kitty My whole family has migraines and I started getting them at age 19, so I'm not sure mine are related to gluten, although I do feel like obviously the more inflamed my whole system is, the more likely I am to suffer from more of these things. -
- knitty kitty replied to Alibu's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms16Waiting on biopsy after positive bloodwork, but also not really believing this is real
@Alibu, Just wanted to add... Migraines can be caused by thiamine insufficiency. I used to have them, regularly, but haven't since supplementing with thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and Magnesium Threonate. These forms get into the brain easily and really improve migraines. I do still get Ophthalmic migraines... -
- Alibu replied to Alibu's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms16
Waiting on biopsy after positive bloodwork, but also not really believing this is real
@knitty kitty Thank you for those, I will definitely bring them up! I did send a message to my doctor basically asking what they think so I'll go from there. He may very well just decide that this was enough to diagnose celiac, but I have no clue what his thoughts are right now. I also asked for a second opinion on the pathology.- 1
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- knitty kitty replied to HilaryM's topic in Related Issues & Disorders3
New onset constant gas
@HilaryM, Are you eating a diet high in carbohydrates? You might find a Paleo diet easier on your digestive system. A Paleo diet can promote changes in intestinal flora, effectively starving out SIBO bacteria. Be wary of gluten free processed foods. Many are not enriched or fortified with vitamins and minerals lost in processing like gluten...
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By Shining My Light · Posted
@trents I’m pretty sure what I’m left with when separating celiac to other causes is my 10% being a virus. The one I had about 3 weeks before taking this TTG test. Everything I’ve read says type 1 diabetes, rheumatoid arthritis, hepatitis and some viruses are what could cause the elevation. The other blood tests I had I can compare things against. I’m going to give your article a thorough read. My support in my circle is very small at the moment. @knitty kitty I think before EGD I would like to do the DNA test. I’m going to start keeping a better journal also. I’ve read a crazy amount of these “articles” - these two I’ve not seen. Some articles spell celiac differently. Thank you for... -
@knitty kitty My whole family has migraines and I started getting them at age 19, so I'm not sure mine are related to gluten, although I do feel like obviously the more inflamed my whole system is, the more likely I am to suffer from more of these things.
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By knitty kitty · Posted
@Alibu, Just wanted to add... Migraines can be caused by thiamine insufficiency. I used to have them, regularly, but haven't since supplementing with thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and Magnesium Threonate. These forms get into the brain easily and really improve migraines. I do still get Ophthalmic migraines which are triggered by computer screens. It's permanent damage from nutritional deficiencies. An Erythrocyte Transketolace test is a more accurate test for sufficient thiamine. Keep us posted on your progress! -
@knitty kitty Thank you for those, I will definitely bring them up! I did send a message to my doctor basically asking what they think so I'll go from there. He may very well just decide that this was enough to diagnose celiac, but I have no clue what his thoughts are right now. I also asked for a second opinion on the pathology.
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By knitty kitty · Posted
@HilaryM, Are you eating a diet high in carbohydrates? You might find a Paleo diet easier on your digestive system. A Paleo diet can promote changes in intestinal flora, effectively starving out SIBO bacteria. Be wary of gluten free processed foods. Many are not enriched or fortified with vitamins and minerals lost in processing like gluten containing foods are. Talk to your doctor and nutritionist about supplementing with vitamins and minerals while healing. Vitamins are organic compounds that the body cannot make and so must get from the diet. Supplementing ensures our bodies get a fair chance to absorb the essential nutrients it needs.
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