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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.


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    • trents
      Lactase is the enzyme that breaks down lactose. Lactase is produced in the small intestine. It is not produced in the pancreas. https://cymbiotika.com/blogs/health-hub/understanding-what-organ-produces-most-digestive-enzymes   "Lactase is found in the brush border of the small intestine of humans and other mammals." https://en.wikipedia.org/wiki/Lactase Studies have shown through micro analysis that the small bowel lining from those with celiac disease may never completely heal, even after years of gluten free living. There is healing at the macro level but not all cellular functions may be restored.
    • Waterdance
      Thank you so much for this thorough and informative post. This information does help me to understand my body better. I will commit to a strict gluten free diet. I may not have a diagnosis but I know gluten is causing issues. The worst offender, white bread, causes a reaction within 20-30 minutes. Which I hate because I like sandwiches. Lol. Common sense dictates that it's time to stick to a strict gluten free diet. Thanks for the tips about alternatives. I do cook and bake so it's helpful to know what may work. I appreciate so much all the time and effort you all have put into helping me understand and being supportive. Thank you. 
    • Lotte18
      I went back to consuming dairy after a year of healed villi.  What I didn't know is that along with developing celiac, my pancreas was no longer producing enough enzyme to consume lactose.  My GI said he often sees this with celiac patients.  Some people can go back to dairy with no problems at all and others will develop odd symptoms like ataxia--balance issues, etc.-- for no apparent reason.  It took me a year of suffering to get it all straightened out.  Hope this saves you some time!  
    • Russ H
      Do you know what the lab's standard range is for the IgA tTG2 result? The Endomysial IgA basically tests for the same antibodies as IgA tTG2 but it uses an older, less sensitive method and the result is positive/negative rather than quantitative. Hence, it is possible to show raised IgA tTG2 antibodies without getting a positive test for Endomysial IgA antibodies.
    • Heatherisle
      She’s eating mostly gluten as far as I know. Think her GP is trying to get her seen fairly quickly
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