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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.


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  • Recent Activity

    1. - Caligirl57 replied to Charlie1946's topic in Related Issues & Disorders
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      Severe severe mouth pain

    2. - Jmartes71 posted a topic in Related Issues & Disorders
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    3. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
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      Severe severe mouth pain

    4. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
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      Severe severe mouth pain

    5. - trents replied to Charlie1946's topic in Related Issues & Disorders
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      Severe severe mouth pain

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    • Jmartes71
      Curious if any other disregarded celiacs medically, not eating wheat and other foods im not to consume but yes its in the house because others have to eat. Currently dealing with eye issues, skin issues,blood and colon look fabulous because NOT consuming. Now im dealing with i may have ms or meningioma....Im also sibo positive, ibs which they think is the cause, " depression " which medical has caused me.Why is it so hard for medical to believe. I went to ER Dec 23 per pcp and got blood drawn sick as hell looking like a corpse bride with dark circles and pale skin.No surprise they said my blood is fine and I had to say thats not what im here for because im always told its fine when not, Ketones waked and then they said I have the flu, ya the flu 24/7 for years battling what the heck is going on.Doctors really need to listen, understand celiac which I've tried to school in past from what I've learned on these websites but it feels as if running in a useless circle. Im to take gabapentin 300. for a week and then go up to 600 since taking this and a other med that was prescribed no longer taking because it makes me awake.This one too is amping me up to not be sleepy when I am tired. Just curious if meningioma or ms is a link to core issue of celiac?I also saw the proclamation but confused because it states that California has two women?  Do I reach out to them? Ive already wrote to my local representative in Stanislaus County.Being celiac and dealing with a circus of clowns that didn't diagnose one doesn't make celiac go away and its not fair or right to us.Im angery, diagnosed by gi doctor by biopsy before foods eliminated from my diet, celiac sprue at the age of 23 in 1994.Now menopause has killed any tolerance i had and body affected badly.No one should go through the medical HELL ive been through.  Also positive HLA-DQ2 
    • Charlie1946
      @Caligirl57 hi and thank you for the reply! I have had myself scared to death over this. I am still having pain but it's not as bad. I have always had bad teeth and gums  @trents thank you, so omeprazole is the right thing to take?
    • cristiana
      @Charlie1946 You are more than welcome.  If you are struggling with mental health do consult with a medical professional and follow their advice if they think you need medication, as I did for a while, but I hope you will find these books as helpful as I did on the road to recovery.
    • trents
      PPI is the acronym for Proton Pump Inhibitor. Omeprazole is a PPI. PPI's work in a different way than do "H2 blockers" like Tagamet or Pepcid and different also from acid neutralizers like Tums. 
    • trents
      I think cristiana's post is an important contribution to this discussion and reinforces what I said earlier about the anecdotal nature of those reporting they seem to be able to tolerate wheat products in Europe. We need to be careful not to extrapolate from the particular to the general. And as she also implied, not having a discernable reaction to consuming a wheat product made in Europe or made from flour imported from Europe may not equate to "0" intestinal lining harm for those who actually have celiac disease.
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