Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coping with Celiac Disease

Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.


16,203 topics in this forum

  1. jststric
    ianm
    • 13 replies
    • 2.2k views
  2. wilem008
    tarnalberry
    • 11 replies
    • 2.8k views
  3. hazeleyez682
    WW340
    • 3 replies
    • 1.2k views

  4. Celiac.com Sponsor (A8):
    Celiac.com Sponsor (A8):



    Celiac.com Sponsor (A8-M):



  5. JamieSims
    summerteeth
    • 3 replies
    • 4.1k views
  6. Mstanton25
    JamieSims
    • 15 replies
    • 3.9k views
  7. Imanistj
    jerseyangel
    • 9 replies
    • 1.9k views
  8. sunnybabi1986
    ang1e0251
    • 2 replies
    • 1.1k views
  9. Amanda student
    Dada2hapas
    • 1 reply
    • 3.2k views
  10. pookie91260
    Guest
    • 6 replies
    • 4.1k views

  11. Celiac.com Sponsor (A10):
    Celiac.com Sponsor (A10):

  12. LuvMoosic4life
    robillm
    • 8 replies
    • 1.9k views
  13. pufffee
    • 5 replies
    • 1.4k views
  14. Frances03
    dhd2000
    • 6 replies
    • 1.3k views
  15. glutenfreeinminnesota
    • 3 replies
    • 10k views
  16. Nan2N
    zeenat
    • 14 replies
    • 3.2k views
  17. Lexi
    SillyBoo
    • 8 replies
    • 1.6k views
  18. AKcollegestudent
    Mtndog
    • 7 replies
    • 1.2k views
  19. Imanistj
    Guest
    • 6 replies
    • 2.1k views
  20. Imanistj
    Karrin
    • 16 replies
    • 2.4k views
  21. gettinbetterbaby
    • 6 replies
    • 3.1k views
  22. Googles
    • 16 replies
    • 3.1k views
  23. wontgiveup
    Nat33
    • 10 replies
    • 3.5k views
  24. SGWhiskers
    Glamour
    • 7 replies
    • 1.9k views
  25. The Fluffy Assassin
    • 27 replies
    • 5.2k views
  26. Expecting in Jan
    • 12 replies
    • 1.5k views
  27. mattathayde
    conviviality
    • 48 replies
    • 7.3k views
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Pua's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Pretty desperate for some guidance

    2. - Pua replied to Pua's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Pretty desperate for some guidance

    3. - trents replied to Marilyn1941's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Does 101gl mean. I have celiac desease

    4. - Wheatwacked replied to Pua's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Pretty desperate for some guidance

    5. - Wheatwacked replied to Marilyn1941's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Does 101gl mean. I have celiac desease


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,835
    • Most Online (within 30 mins)
      7,748

    Ellouise
    Newest Member
    Ellouise
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      69k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Pua, do you understand that genetic testing cannot be used as proof of having celiac disease as it only establishes the potential to develop active celiac disease? About 40% of the population has the genetic potential to develop active celiac disease but only about 1% actually develop it. However, it can be used as a rule out measure.
    • Pua
      Mahalo for all of the answers this has been super helpful. He is doing so much better on a gluten free diet. I may consider genetic testing as I never thought of that as an option and I definitely don’t want to go the usual route and have to give him gluten again for the test. It’s nice to have an “official diagnosis” but as long as he’s healthy I don’t care.  mahalo again!
    • trents
      Welcome to the forum, @Marilyn1941! As Wheatwacked explained, we need more information. There are a number of blood antibody tests that can be run to detect celiac disease. Some are more meaningful than others in the sense of positive results being due to celiac disease or possibly due to something else. So, knowing exactly what test the score you gave is referring to would be helpful. In addition, the ranges and units of measure used by different labs differs from one lab to another. There is no industry standard for these. So, we would need to know the reference ranges for negative vs. positive for that test used by the lab who did the analysis. And was there only that one test ordered by the physician? 
    • Wheatwacked
      When my son was weaned in 1976 he was diagnosed with Celiac Disease.  My mom said at the time. "you got what you gave." His doctor insisted on Nutramigen as the only hyperallergenic baby formula with full nutrition.  After 6 months he was weaned to gluten free diet.  It seems it still has that status. He has grown strong and well.
    • Wheatwacked
      Hi @Marilyn1941, Welcome to the forum. There is not enough info to go on.  What test name? What are the results and the laboratory's normal range they used?  Why were you tested? What kind of symptoms?  Age, sex and country would be helpful but not necessary. 
×
×
  • Create New...