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Endoscopy - Affect On Symptoms

dilettantesteph

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dilettantesteph Collaborator
dilettantesteph
Posted

How have peoples symptoms been affected by endoscopy and biopsy?  Do they worsen for a few days from the procedure itself?  I'm trying to figure out what is going on, and I don't remember ever reading about this.

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shadowicewolf Proficient
shadowicewolf
Posted

Nope, I didn't :)

nvsmom Community Regular
nvsmom
Posted

I've heard many poeple feel worse because of the gluten they ate prior to the test but I haven't heard of the test making them feel worse... I never had the endoscopy so I'm not exactly knowledgable about this... Hope you find answers and feel better soon.

pricklypear1971 Community Regular
pricklypear1971
Posted

My son had very negative behavioral/emotional reactions for a month+ after his endoscopy.

Funny enough, he mostly stopped complaining of stomach upset, c, d, etc.

But the behavior was definite. Even his teacher noticed.

We think it was a reaction to the anasthesia. He was a little "shocky" post procedure. The chills, chattering. Not unusual or unheard of-but a slight reaction.

lisa74 Newbie
lisa74
Posted

When I had my endoscopy and biopsy, my symptoms stayed the same, no changes until I went gluten free. Are you feeling worse?

dilettantesteph Collaborator
dilettantesteph
Posted
  • Author

Thank you for replies.  This was a follow up endoscopy while already gluten free, but suffering minor symptoms from slight gluten contamination.  I think that I just wasn't being patient enough with improvement upon finding a safer diet.  Things seem to be going better now.

Em314 Explorer
Em314
Posted

I felt reeeeeeally wiped out and kinda like I had a low grade fever for a day or two after, but I don't remember much else being wrong.

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kareng Grand Master
kareng
Posted

I don't think I was any different. I started gluten-free right after it so I can't really judge.

I have several friends, probably not Celiac, whose " stomach" issues got better after and endo/ colo combo. Probably the good clean- out.

gatita Enthusiast
gatita
Posted

I felt pretty wasted after my double 'scopes last week (endo- and colono-).... my guts were all squirrelly too. It's a week later today and I'm fine now. I think the pre-colonoscopy flush-out might have been a good thing for my SIBO.

dilettantesteph Collaborator
dilettantesteph
Posted
  • Author

I think the endoscopy caused some flare up for about a week here too.

 

The pediatrician thought that likely.

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
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    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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