Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ibs And Hysterectomy

amanda.wilson

Recommended Posts

amanda.wilson Newbie
amanda.wilson
Posted

Does anyone else have severe IBS?? I'm on 3 different IBS meds now and I'm even having a complete hysterectomy.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

Talk to us, Amanda.  Tell us a little more about yourself and your symptoms.  We are here to listen. :)

GottaSki Mentor
GottaSki
Posted

Welcome Amanda!

 

I had a hysterectomy -- not total -- 12 years ago due to cancer - wasn't diagnosed with Celiac until 4 years ago after decades of numerous symptoms.

 

IBS is a collection of symptoms that are often the same as those with missed or un-diagnosed Celiac Disease.

 

Let us know if we can help :)

IrishHeart Veteran
IrishHeart
Posted

Another "IBS" and hyster-sister right here. Total hysterectomy after years of miscarriages and the early menopause from hell. 

 

Those symptoms you're having may all be celiac-related.  Tell us more!  (that "IBS" I had for most of my life--all gone)

jerseyangel Proficient
jerseyangel
Posted

Yep, IBS all my life and hysterectomy at age 49 following an unpleasant period where I was in peri menopause, my then indiagnosed celiac was shifting into high gear, and I had fibroids, endometriosis and addenomyosis.

Let us know how we can help-- there is light at the end of this tunnel:)

IrishHeart Veteran
IrishHeart
Posted

.......and that light is not an oncoming train, we promise! :)

 

Me, too, P--I was 47 and those fibroids, endo, cysts, etc can wreak havoc with the intestines. Adhesions can make a mess, too.My entire pelvic floor was deeply impacted and I had to have "special PT" to make things right. Not fun. 

jerseyangel Proficient
jerseyangel
Posted

.......and that light is not an oncoming train, we promise! :)

 

Me, too, P--I was 47 and those fibroids, endo, cysts, etc can wreak havoc with the intestines. Adhesions can make a mess, too.My entire pelvic floor was deeply impacted and I had to have "special PT" to make things right. Not fun. 

Not at all <_< I had a similar mess going on in there--the surgeon had to deviate from the planned procedure because the endo had attached itself outside the reproductive area.  Looking back, I wish I had had it done 10 years prior. (the famous hindsight B) )

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


frieze Community Regular
frieze
Posted

Does anyone else have severe IBS?? I'm on 3 different IBS meds now and I'm even having a complete hysterectomy.

what is the reason for the hyst?  what out comes are being hoped for?  If you haven't tried gluten free, I would give it a go first.

amanda.wilson Newbie
amanda.wilson
Posted
  • Author

I'm 31 and I've been gluten free for almost a year, not only with my food but w/ every products. I've always have had a history w/ my periods I.E. small clots cysts bad cramps. But since the IBS dx the clots are now the size of cutie oranges, severe watery D, and vomiting. I lost 5lbs in 3 days and was extremely weak. With an active 5 year old I can't afford to go down like that.

amanda.wilson Newbie
amanda.wilson
Posted
  • Author

And I'm having surgery 3-13-13 so if I don't respond in a timely manor you know why. Lol

jerseyangel Proficient
jerseyangel
Posted

And I'm having surgery 3-13-13 so if I don't respond in a timely manor you know why. Lol

Best of luck! I hope it all goes smoothly. Let us know how you're doing when you are able:)

GottaSki Mentor
GottaSki
Posted

Best of luck Amanda!

If you haven't been there yet HysterSisters is a great website :)

mushroom Proficient
mushroom
Posted

Best wishes for a speedy recovery!

jerseyangel Proficient
jerseyangel
Posted

Yes-- HysterSisters! That was very helpful to me, thanks Lisa:)

amanda.wilson Newbie
amanda.wilson
Posted
  • Author

My gyno office called this evening to say that BCBS decided to deny my surgery at the last minute :(. If I was a betting gal I would say the person whom denied it has male plumbing! Now they have my doc and I jumping through hoops and dang it my muscles hurt to much to keep jumping not to mention girls w/ big boobs aren't ment to jump!!!

Ok...I feel a lil better now after venting.

GottaSki Mentor
GottaSki
Posted
:(
jerseyangel Proficient
jerseyangel
Posted

Goodness:(. I hope your doctor will be able to get them to cover it.

amanda.wilson Newbie
amanda.wilson
Posted
  • Author

Only time will tell :). I'm just trying to stay positive in the mean it and jump thru their stinkin hoops. Thanks for all help!!'

frieze Community Regular
frieze
Posted

I'm 31 and I've been gluten free for almost a year, not only with my food but w/ every products. I've always have had a history w/ my periods I.E. small clots cysts bad cramps. But since the IBS dx the clots are now the size of cutie oranges, severe watery D, and vomiting. I lost 5lbs in 3 days and was extremely weak. With an active 5 year old I can't afford to go down like that.

What about an ablation?  have you tried anything to suppress ovulation for an extended period of time? have had a D/C?    It makes me very nervous when a doc is going for the hyst in a person so young. 

flowerqueen Community Regular
flowerqueen
Posted

Good luck!  Try not to worry.  I have both IBS and had hysto when I was in my early 40's, it's not as bad as you think.  Let us know how you get on.

amanda.wilson Newbie
amanda.wilson
Posted
  • Author

We have been suppressing ovulation w/ meds but my body isn't handling it very well. It's like it can sense the need to go into a cycle and can't and my bowel become inflame still killing my lower back. But she did an ultrasound and found evidence of a " spongey " uterus so now I go in for out patient procedure thru the belly button ( which the insurance wanted any way) this up coming week.

jerseyangel Proficient
jerseyangel
Posted

Thanks for the update. All the best to you:)

GottaSki Mentor
GottaSki
Posted

Oh Goodness...Hang in there Amanda!

 

Keep us updated...pulling for and praying for you that the upcoming procedure goes well. :)

amanda.wilson Newbie
amanda.wilson
Posted
  • Author

Thanks every1. I was never worried about having the hysto I was kind of looking forward to it lol, I was just wondering if it helped w/ the IBS or was hoping for to much. I know it's not a cure but I would be grateful for a 1% improvement....

jerseyangel Proficient
jerseyangel
Posted

Amanda, many times it can help with IBS symptoms, especially in the case of endometriosis.

I had my surgery after I had been gluten-free for 2 years. My bowel symptoms improved a lot in those 2 years, especially after I identified some additional food intolerances and cut those from my diet.

I can say that the monthly pain and diarreah that always accompanied my period went away, never to return.

I hope you sail through your surgery, recovery, and feel much, much better. I am betting you will:)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Kimmy88
      - Kimmy88 commented on Scott Adams's article in Winter 2026 Issue
      8

      Can You Really Trust Gluten-Free Menus? What Every Celiac Needs to Know Before Eating Out

      Thanks this is helpful!
    2. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Fermented foods, Kefir, Kombucha?

      very interesting thanks for the info
    3. Florence Lillian
      - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

      More cookie recipes ...thanks so much for the heads-up Scott. One can never have too many. Cheers, Florence.
    4. Russ H
      - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting...
    5. cristiana
      - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

      Hi @Charlie1946 You are very welcome. I agree wholeheartedly with @knitty kitty: "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis. I noticed it after standing in cold wind, affecting...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,915
    • Most Online (within 30 mins)
      7,748
    DRIZZE
    Newest Member
    DRIZZE
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • xxnonamexx
      Fermented foods, Kefir, Kombucha?

      By xxnonamexx · Posted

      very interesting thanks for the info  
    • Florence Lillian
      gluten free cookie recipes

      By Florence Lillian · Posted

      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Severe severe mouth pain

      By Russ H · Posted

      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Severe severe mouth pain

      By cristiana · Posted

      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      gluten free cookie recipes

      By Scott Adams · Posted

      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.