Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Crazy Update; Waiting On Tests For My Daughter Now

MissyShelle

Recommended Posts

MissyShelle Rookie
MissyShelle
Posted

Well, got insurance settled and I head to the doctor first thing Monday morning. 

 

However, today has been a rollercoaster. My oldest twin wakes up screaming that her legs hurt. Head to doctor. They do a routine blood panel (but N.P. throws in a few extra tests on a hunch) and we just suspect maybe a low potassium level. Get an urgent call 2 hours later that her hemoglobin is at a 7. So now waiting on the Children's Hospital to call to see if we are being admitted for testing/blood transfusion or just making an appointment. 

 

Her other blood work panels didn't show anemia, so we have to figure out what this is from. Then the doctor asks me "Aren't you being tested for Celiac?" I tell her yes and she said to definitely mention that to the drs when we go to the specialist because that's an important consideration in how they proceed. 

 

So, I sit and wait on a phone call, my daughter is in pain and exhausted. I figure with a hemoglobin of 7, we'd already be at the hospital but I guess there are procedures. 

 

UGH! But isn't a low hemoglobin tied to Celiacs? 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shadowicewolf Proficient
shadowicewolf
Posted

Not that i'm aware of. :(

Good luck.

ruthie-ray Newbie
ruthie-ray
Posted

I don't have a lot of info to provide, since I was only diagnosed on Monday, but I have two small children and feel for you.  Hope you get it figured out soon and your daughter's pain goes away.  Good luck.

  On 3/14/2013 at 7:48 PM, MissyShelle said:

Well, got insurance settled and I head to the doctor first thing Monday morning. 

 

However, today has been a rollercoaster. My oldest twin wakes up screaming that her legs hurt. Head to doctor. They do a routine blood panel (but N.P. throws in a few extra tests on a hunch) and we just suspect maybe a low potassium level. Get an urgent call 2 hours later that her hemoglobin is at a 7. So now waiting on the Children's Hospital to call to see if we are being admitted for testing/blood transfusion or just making an appointment. 

 

Her other blood work panels didn't show anemia, so we have to figure out what this is from. Then the doctor asks me "Aren't you being tested for Celiac?" I tell her yes and she said to definitely mention that to the drs when we go to the specialist because that's an important consideration in how they proceed. 

 

So, I sit and wait on a phone call, my daughter is in pain and exhausted. I figure with a hemoglobin of 7, we'd already be at the hospital but I guess there are procedures. 

 

UGH! But isn't a low hemoglobin tied to Celiacs? 

bartfull Rising Star
bartfull
Posted

Open Original Shared Link

kareng Grand Master
kareng
Posted

B12 and iron and folate anemia a are common in Celiac if that is what you are asking. Seems like the doctor knew that, too?

1desperateladysaved Proficient
1desperateladysaved
Posted

My low iron, I suspect, is tied to celiac.  Yeah, low iron just doesn't feel good.  So, I hope you can get help and definative answers soon.

 

Diana

MissyShelle Rookie
MissyShelle
Posted
  • Author

The thing is, the doctor said her overall blood work looked good, it was just her hemoglobin that was so low. So we are heading to hospital tomorrow for more tests and possible transfusion. Man, it's been a long 2 weeks in my household. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to shirlane's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Is AG1 safe for Celiacs??

      From their website I see "organic barley leaf powder" as an ingredient. Keep in mind that the gluten is in the kernel, and not in the leaves. https://drinkag1.com/about-ag1/ingredients/ctr
    2. Scott Adams
      - Scott Adams replied to chrish42's topic in Doctors
      1

      Doctors and Celiac.com

      Before the rise of social media we were well known by a lot of doctors and were recommended by many, especially our Safe & Forbidden Lists, but as doctors get younger and younger this is probably not happening as much as before.
    3. nataliallano
      - nataliallano replied to MagsM's topic in Related Issues & Disorders
      28

      Inflammation and Menier’s disease link?

      Thanks Scott I will definitely check my vitamins and minerals to see what I am missing so then I can supplement. I was very concern about my Meniers syntoms and i tryed to find some alive. Now im just realizing that my celiac is provably the root cause of my Meniers none of the 12 doctors I saw told me anything about this. This web site is so helpful...
    4. Wheatwacked
      - Wheatwacked replied to Betsy Crum's topic in Related Issues & Disorders
      5

      Chest pain from celiac

      Vitamin D deficiency can contribute to rib pain. Chest pain stemming from the ribs ccould be costochondritis, which involves inflammation of the cartilage connecting the ribs to the breastbone. This pain can range from mild to severe, potentially mimicking heart attack symptoms, and is often worsened by breathing or movement. Other potential causes include...
    5. Wheatwacked
      - Wheatwacked commented on Nicky2925NZ's blog entry in Nicky2025BZ
      2

      GLUTEN EASE TABLETS DONT WORK

      "Vitamin D, as an immune modulator, is known to regulate immune response and maybe implicated in disease pathogenesis or susceptibility of celiac disease. Components of the immune system, such as B-lymphocytes, T-lymphocytes, and dendritic cells, are influenced by the regulatory effects of Vitamin D ... Increasing evidence also suggests that Vitamin D deficiency...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,257
    • Most Online (within 30 mins)
      7,748
    Y2Kimberly
    Newest Member
    Y2Kimberly
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Is AG1 safe for Celiacs??

      By Scott Adams · Posted

      From their website I see "organic barley leaf powder" as an ingredient. Keep in mind that the gluten is in the kernel, and not in the leaves. https://drinkag1.com/about-ag1/ingredients/ctr
    • Scott Adams
      Doctors and Celiac.com

      By Scott Adams · Posted

      Before the rise of social media we were well known by a lot of doctors and were recommended by many, especially our Safe & Forbidden Lists, but as doctors get younger and younger this is probably not happening as much as before. 
    • nataliallano
      Inflammation and Menier’s disease link?

      By nataliallano · Posted

      Thanks Scott I will definitely check my vitamins and minerals to see what I am missing so then I can supplement. I was very concern about my Meniers syntoms and i tryed to find some alive. Now im just realizing that my celiac is provably the root cause of my Meniers none of the 12 doctors I saw told me anything about this.  This web site is so helpful, thanks to people like you we can get answers. 
    • Wheatwacked
      Chest pain from celiac

      By Wheatwacked · Posted

      Vitamin D deficiency can contribute to rib pain. Chest pain stemming from the ribs ccould be costochondritis, which involves inflammation of the cartilage connecting the ribs to the breastbone. This pain can range from mild to severe, potentially mimicking heart attack symptoms, and is often worsened by breathing or movement. Other potential causes include muscle strain, rib fractures, or even referred pain from other conditions.  It will also help to chose vegetables low in omega 6.
    • Scott Adams
      Hypothetical question about antibodies

      By Scott Adams · Posted

      Great question! Even if some individuals with celiac disease don’t experience immediate villi damage from occasional cross-contamination, it’s still strongly recommended to maintain strict avoidance of gluten. The immune response triggered by gluten can vary between individuals, and even small amounts may cause systemic inflammation or other symptoms, even if intestinal damage isn’t immediately detectable. Additionally, repeated exposure—even at low levels—could lead to cumulative harm over time. Strict avoidance of cross-contamination remains the safest approach to prevent long-term complications and ensure overall health. Everyone’s sensitivity differs, so working with a...
×
×
  • Create New...