Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Much "cheating" Is Allowed ?

Tamber

Recommended Posts

cahill Collaborator
cahill
Posted

  This stuff can kill you.

This is the bottom line .

 

 

Welcome to the forums :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Hi Tamber, again.

 

I just wanted to say welcome again, and it's okay to want to cheat. And one cheat will no kill you, nor another cheat. I know many people in my small town who cheat, although diagnosed.  It's all about choices.

 

When I do get careless, it takes a day out of my life, listless on the sofa and I'm confined to home ( and I suffer less than others).  AND, why waste a day and why waste a day of good health.?

 

Go for the good stuff and live well.  And you know, what's right for you.  I am confident you will choose wiselyl  You will make the right choice. :)

mushroom Proficient
mushroom
Posted

I was a bit careless yesterday, and for the first time in a long time something rose up and bit me :ph34r:   I am really miffed with myself because who needs to feel like #*&T when they could be out having fun :rolleyes:

Lisa Mentor
Lisa
Posted

I was a bit careless yesterday, and for the first time in a long time something rose up and bit me :ph34r:   I am really miffed with myself because who needs to feel like #*&T when they could be out having fun :rolleyes:

Hope you feel better today. xxxooo    Today is tomorrow. Feel beter  Mushrooms!

mushroom Proficient
mushroom
Posted

Hope you feel better today. xxxooo    Today is tomorrow. Feel beter  Mushrooms!

 

Thanks!  Still trying to find something to eat other than yogurt that does not make me feel like barfing.  Think I'll make some veggie soup :)

Nikki2777 Community Regular
Nikki2777
Posted

Diagnosed 1 month ago here - I echo everyone, and will add that I thought I had manageable symptoms, but they've gotten worse since being gluten-free.  Now, an accidental glutening is just no fun at all.  And I suspect it will get worse.  This is nature's way of keeping you from cheating.

 

What helped me, and still does, is thinking that research is moving quickly with the new prevalence of Celiac, and maybe science will have a pill, or a new treatment in 5 years or 10 and I can go back to an occasional treat.  But the honest truth is, I'm finding plenty I can eat gluten-free and you just adjust.  The hardest part with me is figuring out when to trust restaurants, etc. and dealing with work related meals.  But I think I'll figure that out.  Good luck.  I was you only one month ago.

  • 2 weeks later...
sweettea Newbie
sweettea
Posted

What if you aren't celiac, and just "possibly" gluten intolerant/allergic?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

It all depends on how much you want to suffer and how much damage you want to risk doing to your body.    And allergy is something else entirely, and not to be taken lightly, as allergies can become worse and life-threatening.

sweettea Newbie
sweettea
Posted

It all depends on how much you want to suffer and how much damage you want to risk doing to your body.    And allergy is something else entirely, and not to be taken lightly, as allergies can become worse and life-threatening.

I guess I am just not really sure what is going on with me. Tests are negative and no GI problems. Went gluten free anyways to see if it helps with my chronic migraines and autoimmune skin issues. Not sure if that is allergy or intolerance.

Lisa Mentor
Lisa
Posted

I guess I am just not really sure what is going on with me. Tests are negative and no GI problems. Went gluten free anyways to see if it helps with my chronic migraines and autoimmune skin issues. Not sure if that is allergy or intolerance.

Hey Sweettea!  Migraines and skin issues are closely associated with celiac disease.  Are you aware of dematitis herpetiformis?

sweettea Newbie
sweettea
Posted

Hey Sweettea!  Migraines and skin issues are closely associated with celiac disease.  Are you aware of dematitis herpetiformis?

Hi! I just recently heard of it through my gluten research. I was diagnosed with lichen plants and lichen nitidus. I definitely don't look like I have the herpetiformis going on but google I'd probably showing me the worst case scenarios.

mushroom Proficient
mushroom
Posted

If you check the dermatitis herpetiformis section on the forum here, there is a photo bank of members photographs of their lesions for comparison purposes.  These run the gamut from mild to severe.  Even dermatologists have a hard time with this diagnosis. 

 

ETA: Eczema and psoriasis are two other skin conditins associated with celiac disease.

Tamber Newbie
Tamber
Posted
  • Author

I guess I am just not really sure what is going on with me. Tests are negative and no GI problems. Went gluten free anyways to see if it helps with my chronic migraines and autoimmune skin issues. Not sure if that is allergy or intolerance.

 

Sweettea - If I may, what tests did you have ? 

 

For me, both the Deamidated Gliatin Abs IgA test and the t-Transglutaminase (tTG) IgA came back negative. It was the tgG IgG test that came back high. And that was later supported by a dramatic change in my Vitamin D levels - from 115 to 35 after approx. 65 days gluten free.

 

PS Does anyone here know whether the innaccurate results of my IgA tests could have anything to do with my having very low Immunoglobuliina A levels ?

mushroom Proficient
mushroom
Posted

PS Does anyone here know whether the innaccurate results of my IgA tests could have anything to do with my having very low Immunoglobuliina A levels ?

 

Yes.  The  Immunoglobulin A, aka total serum IgA, is run as a control test to ensure that you produce normal amounts of antibodies.  If yours was low it would invalidate any IgA testing, in which case they use the IgG.   I am hoping you meant your D went up to 115 from 35 ;)

Tamber Newbie
Tamber
Posted
  • Author

Yes.  The  Immunoglobulin A, aka total serum IgA, is run as a control test to ensure that you produce normal amounts of antibodies.  If yours was low it would invalidate any IgA testing, in which case they use the IgG.   I am hoping you meant your D went up to 115 from 35 ;)

Thanks Mushroom. I should have been more specific. While my D,25 was and is completely responsive to supplementation, my D1,25 has been steadily, independently climbing for a few years and finally hit 115 (High normal being 75 at my lab). That signalled to my docs that something was going on. Turns out that celiac was preventing my body from properly metabolizing D3 which then found its way into my blood and my urine and caused a significant deterioration in my oestopenia/osteoporosis numbers as well as a broken tooth.. Once my body is back on track, I'll increase my D3 supplementation  to constructively increase my D levels. It was a lesson that high D 1,25 isn't always a good thing and may in fact signal an infection or other problem.

mushroom Proficient
mushroom
Posted

Thanks Mushroom. I should have been more specific. While my D,25 was and is completely responsive to supplementation, my D1,25 has been steadily, independently climbing for a few years and finally hit 115 (High normal being 75 at my lab). That signalled to my docs that something was going on. Turns out that celiac was preventing my body from properly metabolizing D3 which then found its way into my blood and my urine and caused a significant deterioration in my oestopenia/osteoporosis numbers as well as a broken tooth.. Once my body is back on track, I'll increase my D3 supplementation  to constructively increase my D levels. It was a lesson that high D 1,25 isn't always a good thing and may in fact signal an infection or other problem.

 

Okay, gotcha. :)

nvsmom Community Regular
nvsmom
Posted

I guess I am just not really sure what is going on with me. Tests are negative and no GI problems. Went gluten free anyways to see if it helps with my chronic migraines and autoimmune skin issues. Not sure if that is allergy or intolerance.

Migraines... I used to have those close to two weeks out of every month... I had no idea they were gluten related before my diagnosis. I hope yours go too.

 

Gluten intolerantsexperience basically every symptom as a celiac except villi damage. They can have ataxia, nueropathies, gastro issues, nutritional deficiencies, and pain - all that inflammation can lead to other disease too. To be safe, I would go 100% gluten-free.

 

Best wishes.

sweettea Newbie
sweettea
Posted

Sweettea - If I may, what tests did you have ?  For me, both the Deamidated Gliatin Abs IgA test and the t-Transglutaminase (tTG) IgA came back negative. It was the tgG IgG test that came back high. And that was later supported by a dramatic change in my Vitamin D levels - from 115 to 35 after approx. 65 days gluten free. PS Does anyone here know whether the innaccurate results of my IgA tests could have anything to do with my having very low Immunoglobuliina A levels ?

I've had them all done including an endoscopy with biopsy which is why I'm leaning towards gluten intolerance.

foam Apprentice
foam
Posted

Fine line between an intolerance and full on Celiac disease, either way you can end up autoimmune. I only ever got gut aches from eating bread/pasta/etc and a slight brain fog immediately before the gut ache and complete system flush :0 but it wasn't enough of a problem that I thought I needed to stop eating it. I certainly never had anything like you read about with people getting sick at the sniff of a flour dust. It's probably just a matter of how sensitive you are in general. So I figured I didn't have a serious problem with it.. Well I was wrong

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,918
    • Most Online (within 30 mins)
      7,748
    Dizzyma
    Newest Member
    Dizzyma
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      Fermented foods, Kefir, Kombucha?

      By xxnonamexx · Posted

      very interesting thanks for the info  
    • Florence Lillian
      gluten free cookie recipes

      By Florence Lillian · Posted

      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Severe severe mouth pain

      By Russ H · Posted

      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Severe severe mouth pain

      By cristiana · Posted

      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      gluten free cookie recipes

      By Scott Adams · Posted

      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.