Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Is Gluten Withdrawl?


eblue

Recommended Posts

eblue Apprentice

Hey everyone:

 

I am a bit discouraged. I was diagnosed with celiac about a month ago. I did not have the endoscopy, as my blood test results were extremely positive. My Dr. did not feel it was necessary, and since I had already spent a fortune on every other test in the book, I decided not to. I started my gluten free diet immediately, and within a week felt so much better. I had honestly been feeling ill for so long that I forgot what it was like to actually feel a little bit normal.

 

So, I continued my gluten free diet, and some of my GI sympt began to go away. My stomach cramps, bloating, D, and nausea got noticeablly better. My anxiety, fatigue, and body aches were still there, but I knew that I had to be patient and that it could take a very long time for healing....

 

Until this week!!!

 

I have been miserable this week. I have had dizzy spells, rapid heart rate, fatigue, and moodiness like crazy. I even threw up one night.  I have not felt this bad since before my diagnosis. Even laying down sometimes, I get this horrible faint, dizzy, weak feeling like I am going to pass out. What in the world is going on?? I don't see how I could have possibly digested gluten, unless it was from hand soap or makeup or something like that.

 

What is gluten withdrawl anyways? I have heard of it but I have no idea what it actually means? Do yall think that could be the culprit in my illness this week? Did anyone else have something similar happen a few weeks after they went off of gluten?

 

HELP!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

Withdrawl is basically your body wanting more gluten and not getting any. So your body reacts without the presence of it. However, it would normally happen when you first start going gluten free.

eblue Apprentice

Withdrawl is basically your body wanting more gluten and not getting any. So your body reacts without the presence of it. However, it would normally happen when you first start going gluten free.

Thanks. Maybe I am just coming down with something. who knows.

1desperateladysaved Proficient

First off I had over 30 years of symptoms and am super-sensitive besides.  I had 4 days of bliss after starting gluten free.  After That I did really take a dive with fatigue and dizziness.  I eventually pulled back out of it.  My problem could have been withdrawal, but I also had let some gluten get by me by not reading labels closely enough. 

 

 

If I were you

 

I would try to rest extra. 

 

 

 I would consider quality gluten free supplements

 

 

I would check and recheck labels and find more and more gluten free products for you home. 

 

Give yourself time to adjust.  My family also had to make adjustments and we pretty much ended up without gluten in the house.

 

  I ended up doing many more things to keep my mind clear and the fatigue at bay, but that happened over months for me.  Over time it is easier to tell what is working for you, and then consider more if you need to.

 

You are on the gluten free path:  Keep Walking.  Get well!

 

D

eblue Apprentice

First off I had over 30 years of symptoms and am super-sensitive besides.  I had 4 days of bliss after starting gluten free.  After That I did really take a dive with fatigue and dizziness.  I eventually pulled back out of it.  My problem could have been withdrawal, but I also had let some gluten get by me by not reading labels closely enough. 

 

 

If I were you

 

I would try to rest extra. 

 

 

 I would consider quality gluten free supplements

 

 

I would check and recheck labels and find more and more gluten free products for you home. 

 

Give yourself time to adjust.  My family also had to make adjustments and we pretty much ended up without gluten in the house.

 

  I ended up doing many more things to keep my mind clear and the fatigue at bay, but that happened over months for me.  Over time it is easier to tell what is working for you, and then consider more if you need to.

 

You are on the gluten free path:  Keep Walking.  Get well!

 

D

Thank you :) Hearing that you went through something similar with the "4 days of bliss and then took a dive" makes me feel better

notme Experienced

i had withdrawals - it feels like a really bad flu - i may have even gotten a fever i can't remember.   take some time and baby yourself - it'll be up and down for awhile - hang in there!  and check those soaps and whatnot, if you're going through withdrawal, you want to do the best you can not to start over again.  :)

nvsmom Community Regular

It doesn't sound like withdrawal to me because you are weeks into the diet, it usually hits in the first week but who know, you could be the exception. I hope you feel better soon.  :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,532
    • Most Online (within 30 mins)
      7,748

    jimploszay
    Newest Member
    jimploszay
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scatterbrain
      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
    • Jmartes71
      Yarrow Pom works really well with the skin issues I found out.I had to stop so my doterra because dealing with medical celiac circus. I had shingles in Feb 2023. Prayers for healing 
    • cristiana
      More great tips, and a good excuse to shop at M&S and also buy more iced buns!   I wish we had an ASDA near us, as the few times we've been to one their gluten-free pasta range seemed very reasonably priced compared to other shops.  Thanks so much, @Russ H.
    • Russ H
      I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles or cold sores is not well understood, but stress, sunburn and radiotherapy treatment are known triggers. Some of the herpes viruses are implicated in triggering autoimmune diseases: Epstein-Barr virus is suspected of triggering multiple sclerosis and lupus, and there is a case where it is suspected of triggering coeliac disease. As to whether coeliac disease can increase the likelihood of viral reactivation, there have been several cohort studies including a large one in Sweden suggesting that coeliac disease is associated with a moderate increase in the likelihood of developing shingles in people over the age of 50. US 2024 - Increased Risk of Herpes Zoster Infection in Patients with Celiac Disease 50 Years Old and Older Sweden 2018 - Increased risk of herpes zoster in patients with coeliac disease - nationwide cohort study
    • Russ H
      BFree bread is fortified with vitamins and minerals as is ASDA own-brand gluten-free bread. All the M&S bread seems to be fortified also.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.