Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Am Puzzled, My Girl Is In Troubles And I Don't Know What To Do!

jepacar

Recommended Posts

w8in4dave Community Regular
w8in4dave
Posted

Ohhhh Sweetie! I am so very sorry all this is going on with her. I figured they would of fixed it by now!! Do they have her on a special diet of any sort? Prayers and thoughts your way !!! 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tommysmommy Newbie
tommysmommy
Posted

Please reconsider eliminating the breast milk - even if only for a day - just to see. Breast milk is very different than other milks but that doesnt mean that as her body heals it isnt finding it difficult to digest (its a common villi issue) young childen tend to react quickly...worth trying for a day or two - if symptoms persist - then uve ruled out a cause, if they resolve...give almond milk a try.

w8in4dave Community Regular
w8in4dave
Posted

Thanks friends for your support. This is the thing, they found out about the blockage through an x-ray, then they gave her a bulk amount of laxative (PEG 3350) for three days. The day number three she was so sick that she had to lay down the whole day on top of towels because she was passing some kind of yellow water constantly, so I took her to emergency were a "doctor" told me to stop the medication and that the stool would brake down by itself, which it never happened. The last Friday I finally got an appointment to see her pediatrician who told me  "this is not a simple stool blockage" but he doesn't know what it is, so he sent her to do a lot more test (blood and stools) meanwhile she still has diarrhea and pain.... I don't think I have more hair to pull out of my head :(

Waiting to hear another report!! hoping it is a good one! Prayers, good Juju , hugzz and everything eles that can send good vibes your way sweetie! 

  • 2 weeks later...
jepacar Newbie
jepacar
Posted
  • Author

Hi my dear friends...you won't believe what happened, I eliminated all coconut product and the problem solved the next day!!! it didn't happen when she had the blockage because no matter what, she had "diarrhea" which it was some form of liquid poo trying to go through the blockage, but as soon as the blockage was gone I started the coconut product again, so I couldn't notice any difference...oh boy!! somebody told about cross reactivity and seems that is what was happening...I could do a party, a novel wouldn't be as good as the felling I have now after a week of normal poo...I appreciate very much all your advices and support, seriously!!! now the 2 of us are completely off of any form of coconut...love you guys!!!

cyclinglady Grand Master
cyclinglady
Posted

That's great news!

w8in4dave Community Regular
w8in4dave
Posted

OMGosh!! So very happy to hear this news!! It is truly a blessing!! Thanks for letting us know how she is doing!! I know it is hard specially when it is our children!! We hate to see our children suffering!! Bless you both!! :) 

jepacar Newbie
jepacar
Posted
  • Author

OMGosh!! So very happy to hear this news!! It is truly a blessing!! Thanks for letting us know how she is doing!! I know it is hard specially when it is our children!! We hate to see our children suffering!! Bless you both!! :)

Thanks a lot...we suffered sooooo much and it was so hard to figure this out...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,267
    • Most Online (within 30 mins)
      7,748
    Alan Tack
    Newest Member
    Alan Tack
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Wheatwacked
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Wheatwacked · Posted

      They both do.  The peanuts add nutrients to the treat. Tootsie Roll: Sugar, Corn Syrup, Palm Oil, Condensed Skim Milk, Cocoa, Whey, Soy Lecithin, Artificial and Natural Flavors. M&M Peanut: milk chocolate (sugar, chocolate, skim milk, cocoa butter, lactose, milkfat, peanuts, soy lecithin, salt, natural flavor), peanuts, sugar, cornstarch; less than 1% of: palm oil, corn syrup, dextrin, colors (includes blue 2 lake, blue 1 lake, red 40, yellow 6 lake, yellow 5, yellow 6, blue 1, yelskim milk contains caseinlow 5 lake, blue 2, red 40 lake), carnauba wax, gum acacia. glycemic index of Tootsie Rolls ~83 gycemic index of M&M Peanuts ~33   The composition of non-fat solids of skim milk is: 52.15% lactose, 38.71% protein (31.18% casein, 7.53% whey protein), 1.08% fat, and 8.06% ash.   https://onlinelibrary.wiley.com/doi/10.1002/9781118810279.ch04  Milkfat carries the fat soluble vitamins A, D, E, and K. The solids-not-fat portion [of milk] consists of protein (primarily casein and lactalbumin), carbohydrates (primarily lactose), and minerals (including calcium and phosphorus). https://ansc.umd.edu/sites/ansc.umd.edu/files/files/documents/Extension/Milk-Definitions.pdf
    • Scott Adams
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Scott Adams · Posted

      But M&M's contain milk, and would not be at all like a Tootsie Roll.
    • Jmartes71
      Doctors and Celiac.com

      By Jmartes71 · Posted

      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets for disability because I show no signs of celiac BECAUSE IM GLUTENFREE! Actively dealing with sibo and skin issues.Depression is the key because thats all they know, im depressed because medical has caused it because of my celiac and related issues. I should have never ever been employed as a bus driver.After 3 years still healing and ZERO income desperately trying to get better but no careteam for celiac other than stay away frim wheat! Now im having care because my head is affected either ms or meningioma in go in tomorrow again for more scans.I know im slowly dying and im looking like a disability chaser
    • Wheatwacked
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Wheatwacked · Posted

      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values.  Both are made with sugar, not high fructose corn syrup.  I use them as a gluten free substitute for a peanut butter sandwich.  Try her on grass fed, pasture fed milk. While I get heartburn at night from commercial dairy milk, I do not from 'grassmilk'.     
    • Theresa2407
      Doctors and Celiac.com

      By Theresa2407 · Posted

      I see it everyday on my feeds.  They go out and buy gluten-free processed products and wonder why they can't heal their guts.  I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field.  Some days I would just like to scream.  So much better when we had support groups and being able to teach them properly. I just had an EMA blood test because I haven't had one since my Doctor moved away.  Got test results today, doctor ordered a D3 vitamin test.  Now you know what  type of doctors we have.  Now I will have to pay for this test because she just tested my D3 end of December, and still have no idea about my EMA.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.