Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Would You Do?

answerseeker

Recommended Posts

answerseeker Enthusiast
answerseeker
Posted

Ok so 1 week prior to my blood work and 3 weeks prior to my biopsy I was on prednisone. A lot. I was hospitalized due to asthma so the prednisone was in my iv and I was on the oral pills. So my tests were negative. I now know for a fact prednisone interferes with testing because it was mentioned in the book "real life with celiac" written by 2 GI doctors.

Not only that but my biopsy result literally came back negative the next day. They told me at least 2 weeks so I was shocked it came back so soon. Wondering if it was even properly examined and if multiple samples were taken.

My GI dr acknowledges I could still possibly have celiac. I see him next week and may discuss possibly retesting.

If you were me would you do a gluten challenge and repeat testing to get a accurate diagnosis?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


moosemalibu Collaborator
moosemalibu
Posted

Any steroid suppresses the immune system so no doubt that if you were on prednisone it could have altered the normal function of the immune system. 

 

It is interesting that your biopsy came back the next day. I don't know how they do things specifically, but in the animal world (where I work), biopsies mean that the tissues are cut and then sent to a pathologist to interpret. The cutting and prepping and fixing of the tissue and then sending the slices on slides to the pathologist AND getting his/her interpretation takes time. Are you sure they performed a biopsy?

 

Not sure what i would do but I'd definitely ask more questions and push the docs for answers.

answerseeker Enthusiast
answerseeker
Posted
  • Author

He said they took biopsies and I plan on asking him next week when I see him. It seems odd that it came back so quickly.

frieze Community Regular
frieze
Posted

was it a "final" or initial report?

answerseeker Enthusiast
answerseeker
Posted
  • Author

I never saw the report so not sure

kareng Grand Master
kareng
Posted

I never saw the report so not sure

So you know what you need to do! Get the reports - you should have a pathology report for the biopsies.

answerseeker Enthusiast
answerseeker
Posted
  • Author

But if the dr said its negative its not going to tell me anything

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

But if the dr said its negative its not going to tell me anything

I must have misunderstood. I thought there was some thought it might not even have been the path report for the biopsies? Or there was some thought he might not have done biopsies? Or it wasn't the correct report? Or he only did one or two biopsies?

If you are sure you completely understand what the doctor is talking about, and its what you think he is saying, then I guess your good. If it were me, I would still want the reports

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,797
    • Most Online (within 30 mins)
      7,748
    Sandra LC
    Newest Member
    Sandra LC
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      Hello there! New to celiac community, although I have lots of family in it.  My two year old was just diagnosed with celiac disease based on symptoms and bloodwork.  symptoms (swollen belly, stomach hurting, gagging all the time, regular small vomit, fatigue, irritability, bum hurting, etc) she got tests at 18 months and her bloodwork was normal. She just got tested again at 2 1/2  because her symptoms were getting worse and these were her results :   Tissue Transglutaminase Ab, IgA 58.8 Unit/mL (High) Endomysial Antibody IgA Titer 1:5 titer (Abnormal)   Gliadin Antibody IgA < 1.0 Unit/mL Gliadin Antibody IgG 8.5 Unit/mL Immunoglobulin A 66 mg/dL Her regular pediatrician diagnosed her with celiac and told us to put her on the strict gluten free diet and that we wouldn’t do an endoscopy since it was so positive and she is so little (26lbs and two years old). I’m honestly happy with this decision, but my family is saying I should push and get an endoscopy for her. It just seems unnecessary and an endoscopy has its own risks that make me nervous. I’m certain she has celiac especially with it running in mine and my husbands family. We are now thinking of testing ourselves and our 5 year old as well.  anyways what would y’all recommend though? Should we ask for an endoscopy and a GI referral? (We are moving soon in 5 months so I think that’s part of why she didn’t refer us to GI)    
    • olivia11
      My journey is it gluten or fiber?

      By olivia11 · Posted

      This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense.   You are not confusing yourself  you have got it right. Thiamax (TTFD) plus a B-complex, and if you want benfotiamine, the Life Extension formula covers that at ~100 mg.
    • olivia11
      My journey is it gluten or fiber?

      By olivia11 · Posted

      High fiber can definitely cause sudden GI distress especially if it’s a new addition but accidental gluten exposure can feel similar. Keeping a simple food/symptom log and introducing new gluten-free foods one at a time can really help you spot the pattern. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense.
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      sorry a bit confused so I should take my B complex along with Objective Nutrients Thiamax for TTFD but what about a Benfotiamine to take. The Life extensions contains Benfotiamine and Thiamine together or im confusing myself. I am trying to see if I take Thiamax what should I take for Benfotiamine. Thanks EDITING after further research I see ones water soluble ones fat soluble. So I guess 100MG as you suggested of Life Extension contains Benfotiamine and Thiamine Hydrochloride. and the Objective Nutrients Thiamax contains TTFD.     would work for me.
    • Rogol72
      Build muscle back feeling weak?

      By Rogol72 · Posted

      I put on over 12kg by eating protein with every meal, 3 to 5 times a day. Eggs, Chicken, Tuna, Turkey etc. I stay away from too much red meat as it can be inflammatory. Scott is correct. I've come across a bunch of Coeliac PT's on Tiktok and Instagram. They all say the same thing, the key is getting enough protein and consistency.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.