Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone From Philly


Kenster61

Recommended Posts

blueeyedmanda Community Regular
hello friends,

I have been away for the past few months. I was in the Camp Hill area and they have a group that meet every month accept the Holidays. I want to see a group get started that meets monthy where we share our recipes and learn how to deal with this illness. If this is something you guys would like to see let me know.

Ken Ritter

ken.ritter@comcast.net

I am from the Harrisburg area, and besides my two celiac friends I really don't know anyone else. If anyone is ever going to get together and go out to eat down towards the Philly area I am willing to travel to dine with people who understand. I think we should do a road trip to Doylestown for the gluten-free pizza.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



amybeth Enthusiast

If you roadtrip to Doylestown PM me. Jules is great! They also sell gluten-free dessert items at the counter (prepackaged stuff - so their extra safe!)

I'd meet you there.

blueeyedmanda Community Regular

Thanks, I will let you know when we are thinking of heading out. Right now things are hectic with work and by the weather this morning it looks like winter has arrived. I will remember that though.

:)

kbabe1968 Enthusiast
If you roadtrip to Doylestown PM me. Jules is great! They also sell gluten-free dessert items at the counter (prepackaged stuff - so their extra safe!)

I'd meet you there.

Echoing that - we live about 20 mins away from Jules. It was great. I did take out so didn't get the gluten free treats! I'll have to dine in next time!

  • 3 weeks later...
hershey Newbie

Hi! I live in the Malvern/West Chester area and was diagnosed last November along with my 16 year old son who is much sicker and having a lot more adaptation problems than I am. Is there really gluten-free pizza commercially available anywhere? Doylestown is quite a hike for us.

Mel

  • 4 months later...
jacwheeler Newbie
Hi,

I've been looking for people to meet up with in the Philly area if anyone is interested.

Ken Ritter

Hey I live outside of Philadelphia in the suburbs about 20 miles north. Ive been doing the diet for about 2 weeks now and doing pretty well. Id be interested in having some sort of meeting. My uncle does the diet and a girl I work with does too. I know she would probably be interested too.

Open Original Shared Link

  • 4 months later...
Nyxie63 Apprentice

I'm in Limerick, kinda halfway between KoP and Pottstown. Self dx'd about 2 weeks ago. Anyone know of a support group out this way? I don't mind driving longer distances, but would definitely appreciate company on the way there and back, so if anyone in the local area is interested in carpooling, let me know. I'd also be more likely to actually make it to meetings if there's someone else along. I don't mind driving out to the Harrisburg area if something's going on, since Mom lives in Camp Hill and she has crash space.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueeyedmanda Community Regular
I'm in Limerick, kinda halfway between KoP and Pottstown. Self dx'd about 2 weeks ago. Anyone know of a support group out this way? I don't mind driving longer distances, but would definitely appreciate company on the way there and back, so if anyone in the local area is interested in carpooling, let me know. I'd also be more likely to actually make it to meetings if there's someone else along. I don't mind driving out to the Harrisburg area if something's going on, since Mom lives in Camp Hill and she has crash space.

There are a few Harrisburg celiacs on here, we would love to have a gathering one day :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,200
    • Most Online (within 30 mins)
      7,748

    Elisa Stutsman
    Newest Member
    Elisa Stutsman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
×
×
  • Create New...