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Are These Neuro Symptoms?

Nikki2777

By Nikki2777
in Related Issues & Disorders

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Nikki2777 Community Regular
Nikki2777
Posted

I was diagnosed last March, and I've been pretty confident it was caught on the early side -- I had 'mild villous atrophy" and it was "in patches".  My symptoms were inconsistent, sometimes GI, and in retrospect -- I see that the hives and itchiness I'd been experiencing were probably related.

 

However, once about a month before my diagnosis and again a week or two after I'd gone gluten free, I had an episode where I suddenly was speaking to someone and had trouble forming words.  Both episodes lasted about 10 minutes or so.  After doing some reading, I decided they must be celiac related and since I didn't have another episode, I figured it would end with my healing.

 

Well, my 3 month followup endoscopy showed normal villi and my bloodwork was fine.  I hadn't had another episode until today.  I'm pretty sure I was glutened about two weeks ago (first time in ages), and for the last day or two, my brain/head has felt "buzzy" or pressure filled, making me sort of dizzy and relieved briefly by a big exhale.  Then today, I had another, briefer episode of not being able to form words.  Scared me silly.

 

Does this sound like a neuro/celiac symptom?  I always figured that they were caused by prolonged vitamin deficiency, and as I've only had the one glutening, it seemed unlikely.  Is this Ataxia?

 

I have my annual physical coming up mid-October, but I'm wondering if I should be worried before then.  And what should I be asking my Dr. for?  An MRI?

 

Any advice is welcome.  I'm a bit scared, to be honest, and I thought I had this Celiac thing under control.

 

 

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w8in4dave Community Regular
w8in4dave
Posted

I don't have your answers but yea that sure does sounds scary!! I hope someone has some insight for you. Good luck! 

kareng Grand Master
kareng
Posted

The buzzy, pressure filled, bit dizzy and relieved with a big breathe - sounds like what happens with a bit of a stuffy head from a cold or allergy. Some allergens are really bad right now. Not sure if that is it.

ravenwoodglass Mentor
ravenwoodglass
Posted

This could be gluten related but it could also be something more serious. Call your doctor and talk to a nurse about this and see if you can get your appointment moved up. It may just be gluten related but it could also be signs of a stroke.

bartfull Rising Star
bartfull
Posted

Yeah. I don't want to scare you but it sounds a lot like what they call TIA'a, or mini-strokes. They can happen at any age, and they are often precursors to major strokes. You should see a doctor immediately. If you go to the ER, they will see to it that you get in to see your doctor right away.

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