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At What Age Were You Diagnosed?


fisharefriendsnotfood

At What Age Were You (or Your Loved one) Diagnosed?  

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fisharefriendsnotfood Apprentice

I just wanted to make this poll because I fell like I'm one of the only ones who was diagnosed very young (2 years of age). Okay, Thanks!

-Jackie


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  • Replies 66
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Lisa Mentor
I just wanted to make this poll because I fell like I'm one of the only ones who was diagnosed very young (2 years of age). Okay, Thanks!

-Jackie

<{POST_SNAPBACK}>

Interested in seeing the results....good idea.

Lisa B.

fisharefriendsnotfood Apprentice
Interested in seeing the results....good idea.

Lisa B.

<{POST_SNAPBACK}>

Thanks.

-Jackie

Eliza13 Contributor
I just wanted to make this poll because I fell like I'm one of the only ones who was diagnosed very young (2 years of age). Okay, Thanks!

-Jackie

<{POST_SNAPBACK}>

Oh boy....are you ever lucky. I learned this year at 29, after many medical complications.

KaitiUSA Enthusiast

I was diagnosed at 16...I am now 18

Carriefaith Enthusiast

I was 22.

ianm Apprentice

I was 36 and on the verge of losing everything. You are one of the lucky ones to have been diagnosed so young.


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ravenwoodglass Mentor
I just wanted to make this poll because I fell like I'm one of the only ones who was diagnosed very young (2 years of age). Okay, Thanks!

-Jackie

<{POST_SNAPBACK}>

Your so lucky. I was 45 and had been sick for 15 years, although the depression. DH and nuerological effects started when I was about 7. They couldn't figure out why I had poison ivy all year round. Duhhh. I went through years of very painful shots for that. I was almost totally disabled for the last 5 years before I was diagnosed. And I am not unusual :angry: .

2Boys4Me Enthusiast

My son was 5 (and 3/4) when he was diagnosed. So far, he's the only one in the family with it.

jerseyangel Proficient

I was 49 (still am) and have had problems for 20 years. They got a lot worse 2 yrs. ago.

Rachel--24 Collaborator

34 and like Ian...on the verge of losing everything. Back on track now.

jrom987 Apprentice

I am 46 and have had symptoms for years and years. I am sure that everyone thought I was a hypochondriac, even my family and doctors! In a weird way, I am glad they found something and now I can "cure" myself. I have so much to learn about being gluten-free but I am off to a good start and this place is such a God send! Thank you!

burdee Enthusiast

I'm 58, was diagnosed 18 months ago, but had accepted most of my symptoms as 'normal for me' UNTIL I experienced increasing excruciating abdominal pain after hemorrhoid surgery. That surgery was necessitated by chronic constipation which was due to casein intolerance which I suspected 50 years ago. <_<

BURDEE

MySuicidalTurtle Enthusiast

I was 17 when I was diagnosed.

celiac3270 Collaborator

Diagnosed at 13.

psawyer Proficient

I was 46 when given the diagnosis, but I had symptoms for years before that. I was an undiagnosed celiac for at least 5 years before that. Unexplained gastrointestinal problems since ange 15. Now I think I know what the cause was, but at the time the doctors had no clue.

jmarie Newbie

Diagnosed at 29 after 12 years of severe arthritis and anemia. At 17, they diagnosed me with "autoimmune disorder - unspecified", and they treated just symptoms for years. I assumed my stomach distress was psychosomatic/stress-related until it became so severe that I was vomiting after I ate anything. It would have been nice to be diagnosed earlier, but my gluten-free diet doesn't seem to be helping too much, either.

sonjaf Rookie

Diagnosed at 35, after having severe symptoms for 3 months. You are lucky you found out so young. I hate having to change my entire lifestyle at my age! :P

happygirl Collaborator

Diagnosed at age 23, right after I was married! Very sick for 10 months before diagnosis. But, had mild GI problems during college.

eherhold Newbie

Diagnosed at 37. Prior to that had problems since age 20 or so. More severe the last 5 (after my daughter was born).

Nicolette Rookie

Diagnosed this year, aged 33, after twenty-five years of symptoms.

Marjolein Newbie

I am now 39. I was diagnosed when I was 2 and the doctor said I was cured when I was 9. Was not realy healthy my whole life. Got sick during the hollidays 3 months ago and was diagnosed with.............celiac. So I am learning to eat gluten-free again.

Marjolein

FaithInScienceToo Contributor

I was 47, when I self - diagnosed in January '05, and when I was officially diagnosed in Feb 05 -

I went through 2 decades of severe problems.

I am SO happy for those that got diagnosed earlier in life :), and I am also SO happy that I finally found out what was 'wrong with me'...

Love, Gina

TheLibertarian Rookie

<_< I was diagnosed just recently at 25. I was really fortunate because I work in the health care industry and had access to software and dictionaries and reference materials I could research my own symptoms on. If I had'nt, I would never have gotten help.

All-time worst doctor story:Right after getting sick, I noticed my abdomen seemed swollen and large compared to the rest of me. I knew I had been too sick to excercize but I knew this was'nt right. When I brought it up at the doctor's office, she advised me to "do leg lifts."

elonwy Enthusiast

Diagnosed at 27 after years of minor naggling health issues and one year of really bad health. Interestingly enough, my bad symptoms developed after I quit smoking ( diff thread). Seems like theres alot of us here in that age range.

Elonwy

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    • cristiana
      When I have had what I think are episodes of this (I've never had a formal diagnosis for PF) it seems to be triggered by bloating caused by something I've eaten - a friend had an episode of this after eating too many apples, for me corn and rice cakes seemed to give me IBS and trigger this.  I am not a medical person but it seemed like the extra pressure down there perhaps added pressure to already sensitised pelvic and rectal muscles. Coeliacs can suffer from bloating when they are first diagnosed due to the inability to digest food properly.  Lactose for me caused a lot of bloating and when I came off it temporarily after diagnosis it helped reduce bloating.  Iron supplements and the timing of taking them also caused discomfort and I had to experiment a bit with type and timing before my gut felt comfortable.   Maybe something to think about?   Some coeliacs suffer from constipation - again, just a thought, but perhaps if you had issues with that it might be a contributor.
    • Rogol72
      At a family wedding in Italy last year I was drinking gluten free Peroni which was fine for me. From the Daura Damn website ... " Our guarantee less than 3ppm: each batch is analyzed and certified by the CSIC using the R5 Competitive ELISA test before hitting the market. This way, we ensure that its gluten content is always below 3ppm "
    • Mari
      Hi jmartes, I brought up doTerra's website and see that they do have many supplements, offer  support and help. And using their organic products has been helpful. and yet you are not able to work enough to support yourself when, if you were healtht, you could work for another 20 years. It does not seem that they offer a program to follow and instead are offering supplements for your symptoms. This has helped you but you are not able to work very much.  The Programs I have seen  online usually have 3 parts. The first is a Parasite cleanse. The 2nd is the Kidney cleanse and the  3rd is a Liver cleanse and gallbladder cleanse. You need to doall these cleanses to have your whole body functioning well. I can only reccommend the program I gave you because that is the one I used and still do. (drclark.net)  When I see a newprovider and tell I have Celiacs and they look skeptical I tell them that when I am gluttoned the reaction happens 8 or more hours later with intestinal painful cramping followed by diarrhea. Providers are willing to accept tha I probably have Celiacs and are more likely order tests such as vitamin levels. Is this what happens if you eat only a small amount of Gluten? You mentioned going to Mayors. 20 years ago many Dr.s wanted to include a celiac screening as a standard test so that more people eould diagnosed and not become disabled. It did not happen but the Federal levgislature did pass a law so that Celiacs could claim deductions for the gluten free food they bought. What were you going to ask the Mayors to do?
    • Colleen H
      How bad can this get ?? Does it go away??  How long ? Thank you 
    • Clear2me
      Thank you for all the excellent information. I moved from Wyoming to California. May be its where I am located but So far none of the Costco Kirkland brand I have looked at is labeled gluten free. Same with the Sam's Members Mark. The Kirkland nuts you mention all say they are processed in a plant that processes wheat.  I am going to keep checking. Thank you. The Azure Market looks promising 😁 Take care S
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