Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Synthroid Revisited...other Brands Better?


livinthelife

Recommended Posts

livinthelife Apprentice

I take 100 mcg of Synthroid and have for years. Since my celiac diagnosis last fall, it's the only medicine that the manufacturer won't guarantee as gluten-free. I spoke with the company today, and the rep confirmed that they do not test and would not guarantee the medicine to be gluten free. She told me to speak to my physician about it. DUH.

 

Yes, I'll call my doc tomorrow BUT....for those of you who take Synthroid, does it seem to bother you? Have you switched to another medication? I had bad celiac test results at my four month follow-up so I'm being extra double careful , as I now know I should've been before with medications. The generic Synthroid was simply abysmal, so that's not an option for this gal!

 

 

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced

Synthroid may very well be gluten-free....just because they do not test their product does not mean it contains gluten. I personally have never used Synthroid as I prefer a hormone replacement of both T3 and T4.  I use Nature-throid and have never had a problem with it and I am extremely sensitive to tiny amounts of gluten.

 

Having a "bad" Celiac panel done at the 4 month mark means nothing....unless the numbers went back up and you become symptomatic.  It may take much longer for your antibodies to normalize so I wouldn't sweat that.  If you feel uncomfortable with Synthroid, then you'll have to look for another replacement hormone.  The natural hormones like Armour and Nature-throid are gluten free but some doctors will not prescribe them.  They are biased towards T4 hormone only...which can be a problem.

Nikki2777 Community Regular

Well before my dx, my doctor switched me to the generic levothyroxine. Mine is made by a company called Mylan and, at least 6 months ago, it was on a gluten free list.

kareng Grand Master

I take it. My Celiac blood tests are negative.

GF Lover Rising Star

I take levothyroxine too.  No problems.

 

Colleen

LauraTX Rising Star

There is also more than one manufacturer of generic synthroid, if you can figure out which you had before, you can try another.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    2. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    3. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    4. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,220
    • Most Online (within 30 mins)
      7,748

    Dye42
    Newest Member
    Dye42
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.