Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened-Little Vent

powerofpositivethinking

Recommended Posts

powerofpositivethinking Community Regular
powerofpositivethinking
Posted

I've been strictly gluten-free since March 2013 and to my knowledge have only been glutened three times.  Unfortunately I'm still feeling the effects of the third one.  I can't pinpoint it exactly, but I think it either came from Thanksgiving dinner or Black Friday lunch out.  

 

In general I have delayed reactions.  I read about people knowing they've had gluten within a half hour, but that's usually not my case.  Instead on Sunday morning I woke up with a killer hangover except I hadn't had a single thing to drink, and I've woken up with one each morning, but thankfully they've been reducing in intensity.  I've had periods of brain fog, kidney pain and the dreaded C so I took some magnesium.  My intestinal area is so tender.  Drinking large amounts of water only makes me feel more bloated even though that's what I've been doing since that's what suggested.  I feel huge even though the scale only says a three pound gain.  I know the effects are being enhanced because it's that time of the month too, but I also know that so many of these things have not been happening monthly, and that most of it is from the glutening.  I ended up taking the day off from work, which I never do, but my body just needed the rest.  I can't believe I used to live like this daily, and think it was all normal.  Thanks for letting me vent, and now it's time to go back to sleep.  This too shall pass...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


notme Experienced
notme
Posted

sorry, kiddo :(  (((hugs)))  last time i got hit, it was at a Dreaded Restaurant.  i also have a delayed reaction, so it's like, 24-48 hrs later when i start feeling crummy.  luckily, it's been over a year (wow, i'm getting good at this!)  yes, it shall pass.  i think people think that the have a worse reaction to getting glutened than before they were gluten free, but i think it's the comparison to what we feel like now <good) as opposed to what we used to feel like all the time <bad, but instead of creeping up on us over the years, it's like POW here's what used to feel like 'normal'.....   does that make any sense lolz  ^_^

 

anyways, get some rest & feel better

nvsmom Community Regular
nvsmom
Posted

Oh darn!  :( I hope you feel better soon.

 

It really is amazing what normal used to be, isn't it? Yikes.  LOL

GF Lover Rising Star
GF Lover
Posted

Ughs....feel better soon and take it easy. 

icelandgirl Proficient
icelandgirl
Posted

It takes me at least 24 yours to feel it too. I'm sorry this happened to you. Good for you to take the day off work and take care of yourself. Hope today is better. ((((Hugs))))

julissa Explorer
julissa
Posted

I can either feel it within an hour, or a day later. hope you're feeling better now. after getting sick too many times, I just went all in and don't eat out anymore. it's a major lifestyle adjustment, but all I would do is worry and I realized it wasn't worth it. 

powerofpositivethinking Community Regular
powerofpositivethinking
Posted
  • Author

thanks everyone  :)  I've been resting more and am definitely getting back to feeling like myself.  I was told the pink coloring is back in my face which is a good sign.  No more dark circles under my eyes and my headaches/brain fog are much better, but my intestinal area is still a bit sore.  The gluten-free diet may be a little challenging at times, but feeling like myself is the best reward.  I do not miss feeling like this regularly at all!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


howlnmad Newbie
howlnmad
Posted

Glad that you're feeling a little better. I hate it when the wife gets fouled up. I feel sorry for her and upset that there is nothing I can do for her.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,243
    • Most Online (within 30 mins)
      7,748
    Maya Baum
    Newest Member
    Maya Baum
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Accuracy of testing concerns

      By knitty kitty · Posted

      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Accuracy of testing concerns

      By trents · Posted

      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Accuracy of testing concerns

      By McKinleyWY · Posted

      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      A little about me and my celiac disease

      By trents · Posted

      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Gluten Free Coffee

      By Peace lily · Posted

      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.