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I Want To Tell You All Thank You


MycasMommy

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MycasMommy Enthusiast

You may not know it... But I come here every single day and read posts.  Its like you are all my secret rock. Even in the midst of pregnancy, it is better for me here because you all understand.  Youre so giving and helpful with your advice and opinions. I could probably do all of this on my own but being here has reduced my stress, worry and anxiety SO MUCH.  I realize I am now an over emotional ball of hormones right now but I would love to huggy squeeze each and every one of you. You are my internet ROCK!

 

Gah... I would love to gush and gush and gush about how much you mean to me.  Strangers I do not even ACTUALLY know.. and so what? *HUGSLIKECRAZY*

 

XOXOXOXOOXOX


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nvsmom Community Regular

:)  I hear you!  This bunch is great.  It's why I keep coming back after 3 years.  

ravenwoodglass Mentor

Glad the board is helpful to you. I think we have a pretty good bunch of folks here. My 1st 2 years on the diet would have been sooooo much easier if I had found this place then. Even after all these years I still find it a helpful place for info. 

bartfull Rising Star

Yep. I felt (and still feel) the same way. If it weren't for the wonderful people here I would have given up or gone crazy. And I am still here for two reasons - to pay it forward, and like Raven, I am STILL learning new stuff after almost four years.

StClair Apprentice

This board has been a HUGE help to me too, and I'm so grateful. I'm really touched by the generosity of those who have come a long way in the journey and come back to help those of us who are just starting. Even though I don't post every day, I too come to visit every day. You guys are the best! Thank you again for being there for us newbies.

kareng Grand Master

Bah! All this mushy stuff!

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LauraTX Rising Star

I feel the same way too!  Glad to have you on here as well, and glad your pregnancy hormones are taking you onto the happy side of the hill, at least for now, lol!! :D


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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
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