Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Depression, Anxiety And Low Energy Testimonials


symphonyofdreams547

Recommended Posts

symphonyofdreams547 Rookie

I'd like to hear your guy's stories on how going gluten free has helped with those 3 things since diagnosis.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jays911 Contributor

Depression was gone within three days, anxiety is 99% less, and energy is much higher. 

nvsmom Community Regular

I luckily did not have depression as a symptom, but I did have low energy.  I would say that my fatigue got worse before it got better.  I experienced a withdrawal when I went gluten-free, when I was very tired, moody, and cranky.  It wasn't a fun time.  After a month my energy increased by a lot but then I had a return of arthralgias, which always is proceeded by fatigue and flu like symptoms.  By 6 months gluten-free it had passed and my energy was better again.

 

I also have hypothyroidism so that will affect energy levels too.

across Contributor

Anxiety 100% gone unless I get glutened -- then it's back instantly. (I have to note that dairy also gives me anxiety, so I avoid it too).

 

For me, the sequence when I get glutened is anxiety, then depression, then tiredness. After three days, these acute symptoms pass. Before I gave up gluten, it was just constant anxiety all the time.

etbtbfs Rookie

Your response to removing gluten can depend on the length of time it has been causing problems.

 

(1) Did you have obscure symptoms early in life?  There are some symtpoms, such as dental problems and canker sores, that can signal gluten destruction.  I got these in my teens but did not understand what they meant; few doctors know about these.

(2) How long was it between (1), and the time you fully realized something was wrong?  It took me 25-30 years to get there.

(3) How long was it between (2), and the time you got a diagnosis and went off gluten?  It took me 12 years to get a diagnosis because I hesitated to go to a naturopath; allopathic medicine was worthless.

 

I am quite well now, after a lifetime of gluten that resulted in a celiac-enteropathy-nutritionaldeficiencies-hashimotos-hypothyroid-adrenalfatigue-hypoprotein syndrome.  The two most important things I have to do now daily, to get deep restorative sleep, are as follows.  I've never seen either of these tips in those many articles floating around the web about sleep problems.

 

(1) supplement with ~15 grams of free essential amino acids.  My Total Blood Protein (TBP) sits down around 6.1 g/dl (normal range 6.2-8.3) if I don't.  My current doctor told me that his vigorous patients tend to have TBP that is mid-range (7.3) or above.

(2) take my T3 (and T4) in the middle of the night.  This is the T3CM (T3 Circadian Method) mentioned at stopthethyroidmadness.com.  Taking T3 this way supports the adrenals so they don't wake you up before you've slept long enough to feel well.

symphonyofdreams547 Rookie

Anxiety 100% gone unless I get glutened -- then it's back instantly. (I have to note that dairy also gives me anxiety, so I avoid it too).

 

For me, the sequence when I get glutened is anxiety, then depression, then tiredness. After three days, these acute symptoms pass. Before I gave up gluten, it was just constant anxiety all the time.

 

 

interesting, i've experienced the exact same thing.  years ago previous to knowing i had an gluten issue i went 4 months 100 percent strict paleo.  then i went out and ate Mexican food with tons of corn and also gluten with flour and whatnot.   Not expecting anything negative i got hit with the worse wave of anxiety ever out of nowhere around 30 min after the meal.   then the next day started deep depression for no reason and also extreme fatigue.   

StClair Apprentice

Anxiety 100% gone unless I get glutened -- then it's back instantly. (I have to note that dairy also gives me anxiety, so I avoid it too).

For me, the sequence when I get glutened is anxiety, then depression, then tiredness. After three days, these acute symptoms pass. Before I gave up gluten, it was just constant anxiety all the time.

This is the same for me too. Reassuring to hear.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sweetpomme Newbie

That's interesting. I am 6 months gluten free and still trying to understand how my body reacts to gluten. I went to a restaurant a few days ago, felt great for the first 24 hours, then I started to have mood swings, then felt depressed and extreme fatigue for the last 3 days. No GI symptoms. I was not sure if I got glutened but I'm staring to think that maybe I was...

sweetpomme Newbie

oh, and to answer your question, before my diagnosis my main symptom was extreme fatigue, and I felt way better after a few days! I used to take 2 hour naps after work, then wake up and go straight to bed for the night. of course there are still ups and downs since I am only 6 months gluten free, but overall I am so much more energized

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof

    2. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

    3. - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    4. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,420
    • Most Online (within 30 mins)
      7,748

    maggie23
    Newest Member
    maggie23
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.