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Depression, Anxiety And Low Energy Testimonials


symphonyofdreams547

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symphonyofdreams547 Rookie

I'd like to hear your guy's stories on how going gluten free has helped with those 3 things since diagnosis.


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Jays911 Contributor

Depression was gone within three days, anxiety is 99% less, and energy is much higher. 

nvsmom Community Regular

I luckily did not have depression as a symptom, but I did have low energy.  I would say that my fatigue got worse before it got better.  I experienced a withdrawal when I went gluten-free, when I was very tired, moody, and cranky.  It wasn't a fun time.  After a month my energy increased by a lot but then I had a return of arthralgias, which always is proceeded by fatigue and flu like symptoms.  By 6 months gluten-free it had passed and my energy was better again.

 

I also have hypothyroidism so that will affect energy levels too.

across Contributor

Anxiety 100% gone unless I get glutened -- then it's back instantly. (I have to note that dairy also gives me anxiety, so I avoid it too).

 

For me, the sequence when I get glutened is anxiety, then depression, then tiredness. After three days, these acute symptoms pass. Before I gave up gluten, it was just constant anxiety all the time.

etbtbfs Rookie

Your response to removing gluten can depend on the length of time it has been causing problems.

 

(1) Did you have obscure symptoms early in life?  There are some symtpoms, such as dental problems and canker sores, that can signal gluten destruction.  I got these in my teens but did not understand what they meant; few doctors know about these.

(2) How long was it between (1), and the time you fully realized something was wrong?  It took me 25-30 years to get there.

(3) How long was it between (2), and the time you got a diagnosis and went off gluten?  It took me 12 years to get a diagnosis because I hesitated to go to a naturopath; allopathic medicine was worthless.

 

I am quite well now, after a lifetime of gluten that resulted in a celiac-enteropathy-nutritionaldeficiencies-hashimotos-hypothyroid-adrenalfatigue-hypoprotein syndrome.  The two most important things I have to do now daily, to get deep restorative sleep, are as follows.  I've never seen either of these tips in those many articles floating around the web about sleep problems.

 

(1) supplement with ~15 grams of free essential amino acids.  My Total Blood Protein (TBP) sits down around 6.1 g/dl (normal range 6.2-8.3) if I don't.  My current doctor told me that his vigorous patients tend to have TBP that is mid-range (7.3) or above.

(2) take my T3 (and T4) in the middle of the night.  This is the T3CM (T3 Circadian Method) mentioned at stopthethyroidmadness.com.  Taking T3 this way supports the adrenals so they don't wake you up before you've slept long enough to feel well.

symphonyofdreams547 Rookie

Anxiety 100% gone unless I get glutened -- then it's back instantly. (I have to note that dairy also gives me anxiety, so I avoid it too).

 

For me, the sequence when I get glutened is anxiety, then depression, then tiredness. After three days, these acute symptoms pass. Before I gave up gluten, it was just constant anxiety all the time.

 

 

interesting, i've experienced the exact same thing.  years ago previous to knowing i had an gluten issue i went 4 months 100 percent strict paleo.  then i went out and ate Mexican food with tons of corn and also gluten with flour and whatnot.   Not expecting anything negative i got hit with the worse wave of anxiety ever out of nowhere around 30 min after the meal.   then the next day started deep depression for no reason and also extreme fatigue.   

StClair Apprentice

Anxiety 100% gone unless I get glutened -- then it's back instantly. (I have to note that dairy also gives me anxiety, so I avoid it too).

For me, the sequence when I get glutened is anxiety, then depression, then tiredness. After three days, these acute symptoms pass. Before I gave up gluten, it was just constant anxiety all the time.

This is the same for me too. Reassuring to hear.

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sweetpomme Newbie

That's interesting. I am 6 months gluten free and still trying to understand how my body reacts to gluten. I went to a restaurant a few days ago, felt great for the first 24 hours, then I started to have mood swings, then felt depressed and extreme fatigue for the last 3 days. No GI symptoms. I was not sure if I got glutened but I'm staring to think that maybe I was...

sweetpomme Newbie

oh, and to answer your question, before my diagnosis my main symptom was extreme fatigue, and I felt way better after a few days! I used to take 2 hour naps after work, then wake up and go straight to bed for the night. of course there are still ups and downs since I am only 6 months gluten free, but overall I am so much more energized

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    • Aretaeus Cappadocia
      I wanted to respond to your post as much for other people who read this later on (I'm not trying to contradict your experience or decisions) > Kirkland Signature Super Extra-Large Peanuts, 2.5 lbs, are labeled "gluten free" in the Calif Costcos I've been in. If they are selling non-gluten-free in your store, I suggest talking to customer service to see if they can get you the gluten-free version (they are tasty) > This past week I bought "Sliced Raw Almonds, Baking Nuts, 5 lbs Item 1495072 Best if used by Jun-10-26 W-261-6-L1A 12:47" at Costco. The package has the standard warning that it was made on machinery that <may> have processed wheat. Based on that alone, I would not eat these. However, I contacted customer service and asked them "are Costco's Sliced Almonds gluten free?" Within a day I got this response:  "This is [xyz] with the Costco Member Service Resolutions Team. I am happy to let you know we got a reply back from our Kirkland Signature team. Here is their response:  This item does not have a risk of cross contamination with gluten, barley or rye." Based on this, I will eat them. Based on experience, I believe they will be fine. Sometimes, for other products, the answer has been "they really do have cross-contamination risk" (eg, Kirkland Signature Dry Roasted Macadamia Nuts, Salted, 1.5 lbs Item 1195303). When they give me that answer I return them for cash. You might reasonably ask, "Why would Costco use that label if they actually are safe?" I can't speak for Costco but I've worked in Corporate America and I've seen this kind of thing first hand and up close. (1) This kind of regulatory label represents risk/cost to the company. What if they are mistaken? In one direction, the cost is loss of maybe 1% of sales (if celiacs don't buy when they would have). In the other direction, the risk is reputational damage and open-ended litigation (bad reviews and celiacs suing them). Expect them to play it safe. (2) There is a team tasked with getting each product out to market quickly and cheaply, and there is also a committee tasked with reviewing the packaging before it is released. If the team chooses the simplest, safest, pre-approved label, this becomes a quick check box. On the other hand, if they choose something else, it has to be carefully scrutinized through a long process. It's more efficient for the team to say there <could> be risk. (3) There is probably some plug and play in production. Some lots of the very same product could be made in a safe facility while others are made in an unsafe facility. Uniform packaging (saying there is risk) for all packages regardless of gluten risk is easier, cheaper, and safer (for Costco). Everything I wrote here is about my Costco experience, but the principles will be true at other vendors, particularly if they have extensive quality control infrastructure. The first hurdle of gluten-free diet is to remove/replace all the labeled gluten ingredients. The second, more difficult hurdle is to remove/replace all the hidden gluten. Each of us have to assess gray zones and make judgement calls knowing there is a penalty for being wrong. One penalty would be getting glutened but the other penalty could be eating an unnecessarily boring or malnourishing diet.
    • trents
      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
    • Scott Adams
      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
    • trents
      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
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