Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Depression, Anxiety And Low Energy Testimonials


symphonyofdreams547

Recommended Posts

symphonyofdreams547 Rookie

I'd like to hear your guy's stories on how going gluten free has helped with those 3 things since diagnosis.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jays911 Contributor

Depression was gone within three days, anxiety is 99% less, and energy is much higher. 

nvsmom Community Regular

I luckily did not have depression as a symptom, but I did have low energy.  I would say that my fatigue got worse before it got better.  I experienced a withdrawal when I went gluten-free, when I was very tired, moody, and cranky.  It wasn't a fun time.  After a month my energy increased by a lot but then I had a return of arthralgias, which always is proceeded by fatigue and flu like symptoms.  By 6 months gluten-free it had passed and my energy was better again.

 

I also have hypothyroidism so that will affect energy levels too.

across Contributor

Anxiety 100% gone unless I get glutened -- then it's back instantly. (I have to note that dairy also gives me anxiety, so I avoid it too).

 

For me, the sequence when I get glutened is anxiety, then depression, then tiredness. After three days, these acute symptoms pass. Before I gave up gluten, it was just constant anxiety all the time.

etbtbfs Rookie

Your response to removing gluten can depend on the length of time it has been causing problems.

 

(1) Did you have obscure symptoms early in life?  There are some symtpoms, such as dental problems and canker sores, that can signal gluten destruction.  I got these in my teens but did not understand what they meant; few doctors know about these.

(2) How long was it between (1), and the time you fully realized something was wrong?  It took me 25-30 years to get there.

(3) How long was it between (2), and the time you got a diagnosis and went off gluten?  It took me 12 years to get a diagnosis because I hesitated to go to a naturopath; allopathic medicine was worthless.

 

I am quite well now, after a lifetime of gluten that resulted in a celiac-enteropathy-nutritionaldeficiencies-hashimotos-hypothyroid-adrenalfatigue-hypoprotein syndrome.  The two most important things I have to do now daily, to get deep restorative sleep, are as follows.  I've never seen either of these tips in those many articles floating around the web about sleep problems.

 

(1) supplement with ~15 grams of free essential amino acids.  My Total Blood Protein (TBP) sits down around 6.1 g/dl (normal range 6.2-8.3) if I don't.  My current doctor told me that his vigorous patients tend to have TBP that is mid-range (7.3) or above.

(2) take my T3 (and T4) in the middle of the night.  This is the T3CM (T3 Circadian Method) mentioned at stopthethyroidmadness.com.  Taking T3 this way supports the adrenals so they don't wake you up before you've slept long enough to feel well.

symphonyofdreams547 Rookie

Anxiety 100% gone unless I get glutened -- then it's back instantly. (I have to note that dairy also gives me anxiety, so I avoid it too).

 

For me, the sequence when I get glutened is anxiety, then depression, then tiredness. After three days, these acute symptoms pass. Before I gave up gluten, it was just constant anxiety all the time.

 

 

interesting, i've experienced the exact same thing.  years ago previous to knowing i had an gluten issue i went 4 months 100 percent strict paleo.  then i went out and ate Mexican food with tons of corn and also gluten with flour and whatnot.   Not expecting anything negative i got hit with the worse wave of anxiety ever out of nowhere around 30 min after the meal.   then the next day started deep depression for no reason and also extreme fatigue.   

StClair Apprentice

Anxiety 100% gone unless I get glutened -- then it's back instantly. (I have to note that dairy also gives me anxiety, so I avoid it too).

For me, the sequence when I get glutened is anxiety, then depression, then tiredness. After three days, these acute symptoms pass. Before I gave up gluten, it was just constant anxiety all the time.

This is the same for me too. Reassuring to hear.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sweetpomme Newbie

That's interesting. I am 6 months gluten free and still trying to understand how my body reacts to gluten. I went to a restaurant a few days ago, felt great for the first 24 hours, then I started to have mood swings, then felt depressed and extreme fatigue for the last 3 days. No GI symptoms. I was not sure if I got glutened but I'm staring to think that maybe I was...

sweetpomme Newbie

oh, and to answer your question, before my diagnosis my main symptom was extreme fatigue, and I felt way better after a few days! I used to take 2 hour naps after work, then wake up and go straight to bed for the night. of course there are still ups and downs since I am only 6 months gluten free, but overall I am so much more energized

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      41

      My journey is it gluten or fiber?

    2. - cristiana replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      2

      Celiac support is hard to find

    3. - cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Newly diagnosed mam to coeliac 11 year old

    4. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      2

      Celiac support is hard to find

    5. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,972
    • Most Online (within 30 mins)
      7,748

    NinaElaine
    Newest Member
    NinaElaine
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      So I have the Benfo, Thiamax, and Neuromag along with my Super B Complex. When I read the labels it says take 3/take 4 times a day but one pill a day is ok correct since its 4 pills at breakfast.
    • cristiana
      Hi @tiffanygosci Well done for reaching out,  fantastic you have found this forum. It sounds like you are managing the diet well, it can be overwhelming at first, but it will get easier.     I wonder if you have seen the short film 'Glutened'? - someone shared it on this forum a few months ago and it reminded me of how isolating it can be, particularly at first, when you don't know anyone with celiac disease.  *see link for film below. I realise now how blessed I was that when I was diagnosed two friends were also diagnosed around the same time, as we shared a lot of tips and recipes at the start.   Since then the number of people I know diagnosed with coeliac disease has grown and grown, there seems to be a much greater awareness of it among healthcare professionals and the public, at least this side of the Atlantic (I'm British).  I think in time you may find this, too. That said, those two coeliac buddies were 'straightforward' cases who seemed to recover very quickly when on a gluten-free diet - I struggled for some time.  So I found that I spent much more time discussing things with this online coeliac family. If you have any more questions, we're here for you.  I hope your event on 15th goes well.  Sounds like a good start!  I like you am not keen on Facebook, but perhaps setting up an account short-term might help? * https://vimeo.com/486284734 Cristiana     
    • cristiana
      You are very welcome @Dizzyma. Gastroenterologists are now following this rule in the UK more and more with children, so I am not surprised your daughter is not having an endoscopy.   Switching to a gluten free diet should begin to help, but also, even if you have to have testing done privately, it would be very helpful for you to find out if your daughter has vitamin and mineral deficiencies, which is highly likely,    In the UK tests are generally offered on the NHS for B12 and ferritin, and sometimes vitamin D.  Shortages in these can really cause any anxiety or depression or ramp it up. If you do end up supplementing, make sure your GP is aware as levels do need to be monitored, for example,  too much ferritin can cause huge health issues. Re: anxiety, definitely speak to a GP or another health care professional about this if it is an issue. Hopefully the Coeliac Society of Ireland will also be able to help. Cristiana  
    • tiffanygosci
      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.