Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cheating On The Diet

heartfelt

Recommended Posts

heartfelt Newbie
heartfelt
Posted

My question is what happens if you cheat once in awhile?. I was diagnosis 8 months ago and never had one side effect for this disease. I found out by a blood test. I'm really having a hard time convincing my husband this is important, but he  said if you never had any symptoms of this disease how serious is it?

Is there away I can read actually what this disease is and what happens if you cheat so I can have my husband and myself read. I was told me if I cheat I'm back to square one is that true? HELP

 

I'm new at this page so were do I type a question of my own topic? I can't find any were for this. That's why I'm I asking this question under coping  Thank you

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

I am curious why they tested you for Celiac?  That isn't a normal blood test.  They must have had a reason.

 

Read here:

 

Open Original Shared Link

 

"The gluten-free diet is a lifetime requirement. Eating any gluten, no matter how small an amount, can damage your intestine. This is true for anyone with the disease, including people who do not have noticeable symptoms......"

StClair Apprentice
StClair
Posted

My guess is that everyone reacts differently to consuming gluten, either accidentally or on purpose. I've read here that that there are 300 different symptoms of celiac disease, so your response will probably be unique to you. That said, serious damage can be done without your even knowing about it, so better not to consider cheating on the gluten free diet. I may want to eat a cinnamon roll and see what happens (I do!), but I'm way too afraid of the consequences to try it.

cyclinglady Grand Master
cyclinglady
Posted

I had life-long anemia which was attributed to 1) my being a woman and 2) a genetic anemia which was masking iron-deficiency anemia related to celiac disease which was caught finally during a routine consult for a colonoscopy (Yep, over 50!). Two months in to my diagnosis, I broke some vertabrae doing nothing. That's when I was diagnosed with osteoporosis. I had no tummy issues at the time I was diagnosed.

Why did they run a celiac panel? I too, am curious.

heartfelt Newbie
heartfelt
Posted
  • Author

I am curious why they tested you for Celiac?  That isn't a normal blood test.  They must have had a reason.

 

Read here:

 

Open Original Shared Link

 

"The gluten-free diet is a lifetime requirement. Eating any gluten, no matter how small an amount, can damage your intestine. This is true for anyone with the disease, including people who do not have noticeable symptoms......"

The reason why they did a test is I had my 10 year colonoscopy and they did a biopsy. I ask doctor why they did that and he said he does t with every patient. Then after I have had 2 blood test and very high

kareng Grand Master
kareng
Posted

The reason why they did a test is I had my 10 year colonoscopy and they did a biopsy. I ask doctor why they did that and he said he does t with every patient. Then after I have had 2 blood test and very high

So you have intestinal damage - whether you directly feel it or not. Have you checked your bone density? Are you anemic? Low on B12, D, etc. those are all things that can be caused by Celiac disease.

cyclinglady Grand Master
cyclinglady
Posted

Your hubby needs to get serious!

I was shocked at my diagnosis because my husband had been gluten free for 12 years (never tested/bad advice from two doctors). We maintain a gluten-free house. The kid gets her gluten fixes outside of the house. Some households can be mixed but you need safe areas to prepare food and he needs to brush his teeth before kissing you besides other things. Yes, you can get glutened from kissing!

Lucky that you had a celiac savvy doctor! Me too!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


heartfelt Newbie
heartfelt
Posted
  • Author

So you have intestinal damage - whether you directly feel it or not. Have you checked your bone density? Are you anemic? Low on B12, D, etc. those are all things that can be caused by Celiac disease.

I so surprised that I have this not one symptom. They say its hereditary so I had my parents tested and they were fine.  I would of never new if I didn't go to this doctor to have my colposcopy done.  I had a few bone dentistry test  level in that is average and no not anemic. I do take plenty of D and few others  but not sure on B12 how much I'm taking. I will have to check that. what other vitamins should I be taking for celiac disease?

Its just so hard as we travel a lot and never can find restaurants for my needs. Its always salads.

 

thank you Kareng

BlessedMommy Rising Star
BlessedMommy
Posted

Even in the absence of symptoms, a celiac patient suffers intestinal damage each time they consume gluten. That damage can add up to a lot of health problems, over time.

 

What a blessing that you were diagnosed! That doctor sounds like a really good one! :)

nvsmom Community Regular
nvsmom
Posted

Cheating will set you back a few weeks to a month.  If you cheat repeatedly, it will set you back further because autoantibody levels will start to rise.  The tissue transglutaminase antibodies (tTG IgA and tTG IgG) can be very slow to change.  I was gluten-free for about a year (with two known accidents in the early months) before my tTG IgA levels came down to normal.  That means that even though I was gluten-free for 363 meals in a year, my intestines were still being attacked and damaged... One year later!

 

Avoid cheating at all costs.  Eat raw fruits and veggies if you need to.  When we travel, we rent cottages, camp, or bring along camp stoves so we can prepare our food.  It's a pain not eating out while on vacation, but long term health is important.

 

Here are 300 possible symptoms of celiac disease :Open Original Shared Link As you can see, many of them are not very obvious.  It's no wonder that celiac disease is underdiagnosed.

Celiacandme Apprentice
Celiacandme
Posted

That's great that your GI doc routinely looks for celiac. I agree with the others - you've got a great doctor! You had an endoscopy at the same time as your colonoscopy?

 

The book Celiac Disease: A Hidden Epidemic by Peter H.R. Green, MD and Rory Jones is a good one to check out. It easily could help you both learn more about the disease and why it is important to be strict with the gluten free lifestyle.

fran641 Contributor
fran641
Posted

I have heard that some people have silent celiac. Not in my case. The Peter Green book is very informative. That is the first place I read about lymphoma associated with celiac. I have had 2 forms of lymphoma treated with chemo and radiation. I did great in 2008 until 2010 after my first cancer and I went on a pity party with food! There isn't a pill for my kind of stupid. Again in 2011 cancer hit, worse. I struggled with staying gluten-free for long periods until last year when the most severe pain began every time I had gluten. I guess my body's reaction has increased over the years. Anyway pain is my motivator. Radiation damaged my biliary duct and gallbladder and because of that dairy makes me severely ill. All this and more can be avoided if you avoid gluten completely. It is so worth it.

psawyer Proficient
psawyer
Posted

My short answer about cheating: Don't do it!  Don't even think about it.

 

You have had some replies that explain why, so I won't belabor the points already made.

cap6 Enthusiast
cap6
Posted

Cheat and ultimately you sign your own death certificate. Bottom line.

My mother did it. It is not something to mess around with.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,705
    • Most Online (within 30 mins)
      7,748
    Lyana Chahine
    Newest Member
    Lyana Chahine
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Hi Christiana, Many thanks for your response.  Interestingly, I too cannot eat wheat in France without feeling effects (much less than in the US, but won't indulge nonetheless).  I also understand children are screened for celiac in Italy prior to starting their education. Wise idea as it seems my grandson has the beginning symptoms (several celiacs in his dad's family), but parents continue to think he's just being difficult.  Argh.  There's a test I took that diagnosed gluten sensitivity in 2014 via Entero Labs, and am planning on having done again.  Truth be told, I'm hoping it's the bromine/additives/preservatives as I miss breads and pastas terribly when home here in the states!  Be well and here's to our guts healing ❤️
    • Wends
      Inconclusive results

      By Wends · Posted

      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed? Calcium is dependent in the mechanism of antigen presenting cells in the gut. High calcium foods with gluten grains can initiate inflammation greater.  This is why breakfast cereals and milk combo long term can be a ticking time bomb for genetically susceptible celiacs (not a scientific statement by any means but my current personal opinion based on reasoning at present). Milk and wheat are the top culprits for food sensitivity. Especially in childhood. There are also patient cases of antibodies normalising in celiac children who had milk protein intolerance/ delayed type allergy. Some asymptomatic. There were a couple of cases of suspected celiacs that turned out to have milk protein intolerance that normalised antibodies on a gluten containing diet. Then there were others that only normalised antibodies once gluten and milk was eliminated. Milk kept the antibodies positive. Celiac disease is complicated to say the least.
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      And thank you for your encouragement. I am glad that her body is doing a good job fighting it. I also just want clarity for her moving forwards. She was only 6 for the last round of testing and she's 10 now, so I'm also hoping that makes a difference. It was weird during her last round of testing though, because right before her biopsy, we'd upped her gluten intake by giving her biscuits made from straight up vital wheat gluten, and her labs actually normalized slightly (lower ttg and her ema went negative). Bodies just do weird things sometimes! lol
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      The first negative biopsy in 2021 just said "no pathological change" for all the samples, and the second one in 2022 said "Duodenal mucosa with mild reactive change (focal foveolar metaplasia) and preserved villous architecture." So I think Marsh score 0 in both cases, though it's not actually written in the pathology reports. I'm really hoping to get a clear positive result this time, just for her sake.  
    • Wends
      Blood results

      By Wends · Posted

      Hopefully the biopsy gives a conclusive and correct diagnosis for your daughter. Im in the UK and have been in the situation a few years ago of trying to rule celiac in or out after inconclusive results. Many symptoms pointing to it including the classic symptoms and weight loss and folate and iron deficiency. You have to play a waiting game. I also had the label of IBS and likely food allergy. Genetic test showed low risk for celiac but not no risk. It sounds like the Gastroenterologist is on it and hopefully will diagnose what it is correctly. Food hypersensitivity (allergy) can also cause similar symptoms and inflammation as well as mimicking IBS. Milk / dairy and wheat (cereal grains) being the biggest culprits. The “oesophagitis” and “gastritis” you mentioned can be caused by another gastrointestinal disorder called “eosinophilic gastrointestinal disorders”. These are named depending on which part of the gastrointestinal tract is affected. For example eosinophilic oesophagitis, eosinophilic gastritis, eosinophilic gastroenteritis, and more rare eosinophilic colitis. They are antigen (allergen) driven. When the blood test measuring anti-ttg antibodies is positive in absence of a positive ema test - which is more specific to celiac, this can also suggest food hypersensitivity (allergy). Usually delayed type allergy similar to celiac but not autoimmune if that makes sense. In this case the ttg antibodies are transient. Which happens. I’ve first hand experience. For info, evidence of villous atrophy too can be caused by food hypersensitivity. Not just by celiac disease. In Egid disorders the six food elimination diet, under a dietitian and gastroenterologist care, is the dietary protocol to figure out the culprit or culprits. Sometimes only two food elimination diet is used at first. The number one culprit is milk protein / dairy. Followed by wheat, eggs, soy, fish and seafood, and nuts. Most are only reactive to one food group or two. Most are only reactive to milk. Hope this is a helpful reply.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.