Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mysterious Symptoms..any Suggestions?


erikalikescows

Recommended Posts

erikalikescows Newbie

Hi, I'm hoping that someone else has experienced something similar and maybe can provide me with some insight into what is going on with my health. I am a celiac and I have been gluten free for quite some time and have had my symptoms under control with the exception of a few glutenings. In the past weeks, however, I've been feeling quite ill. After eating I have:

 -severe nausea (sometimes also accompanied by vomiting)

 -loud churning noises, sort of similar to the reaction I have to gluten

 - severe pain in the upper part of my abdomen under my rib cage that moves to the lower part

 - severe bloating & gas

 - almost no appetite at all & feeling really "full" even if I haven't eaten

 

My first thought to this, was that I was glutened... but I haven't had the usual symptoms (the cramping and subsequent diarrhea) that always goes along with it for me. My second thought was that it could be dairy, but I get just as sick from eating foods with no dairy as I do foods with dairy. It's been weeks now, and the only things that don't cause me pain while eating are plain chicken breast and toast. Naturally I am getting really sick of chicken breast with no seasoning on top. hahaha. 
In Germany you need a special recommendation from your doctor in order to be allowed to see a gastro, so I have just been dealing with my general care doctor so far. He is busy though, it's all really rushed, and beyond that I get the feeling that he isn't very competent when it comes to celiac/related conditions, which is why I thought I would look for some opinions here. Maybe if I go there again armed with some suggestions I can find a solution or at least a recommendation to see a specialist.. so far I have just had an ultrasound, and my gallbladder and pancreas appeared normal. The doctor suggested I have gastritis and gave me a prescription for pantoprozal which is an acid reducing drug that you take before eating. This doesn't seem to help at all. 

 

Any suggestions? Thanks for your help! I am desperate! 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Gallbladder? Open Original Shared Link

 

Let me correct one thing you said about Pataprozole as this is a medication I also am on and have been for a long time to treat acid reflux. It's a proton pump inhibitor type acid reducer and doesn't need to be taken before meals. It's not an acid neutalizer. I take 40 mg in the morning after breakfast and it works quite well for controlling my GERD. It is also used to treat peptic ulcers.

 

I sympathize with you in your frustration about the inattentiiveness of your physician. Changes in the medical delivery system here in the USA have caused primary care physician patient care loads to increase dramtiacally. Now, the doctor has his hand on the door knob as he talks to you, trying to hurry the interaction along in order to get to the next patient.

nvsmom Community Regular

Are you constipated?  I feel like that (minus the nausea but I am rarely nauseated) when I have C.

mommida Enthusiast

Seems like your gallbladder.  Are you belching/burping?

cyclinglady Grand Master

You sound like you need a GI refferal. A HIDA scan will catch a non-functioning gallbladder. The ultrasound just looks for stones.

Here is a link that talks about gallbladders. It is not a gov or edu site, but it is informative and I send it to family. The gallbladder curse runs strong in my family! ☺️

Open Original Shared Link

My Dad got down to eating broth and drinking Pepsi before his doctor took notice (a 30+ weight loss in a month). I presented differently. Pain in lower ab, passing out and infection. They thought it was appendicitis. It was my GB rotting! I suffered for over 20 years with these GB attacks. The HIDA scan was what identified our non-functioning gallbladders.

I hope this helps!

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,918
    • Most Online (within 30 mins)
      7,748

    Dizzyma
    Newest Member
    Dizzyma
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.